Specialized Centers of Care for TS

Specialized centers for Turner syndrome (TS) are medical clinics concentrated on providing thorough care for families and their children who have been diagnosed with TS. They offer a one-stop shop that helps girls and women with TS, and their families, to feel supported and empowered.

We were awarded the opportunity to speak with Dr. Fadoju, a Pediatric Endocrinologist at Emory + Children’s Pediatric Institute, Center for Advanced Pediatrics. Regarding her experience being a provider within a clinic, she shared that “Working in a Turner syndrome clinic means so much more to me than treating a medical condition. It means that I have the complete joy and privilege of supporting girls and women through crucial times in their lives and providing the care and information that will allow them to thrive and reach their highest potential.”

We are so grateful for providers like her who dedicate so much time to helping people with TS.

Benefits of TS Clinics

Coordinating Appointments & Care Among Providers

One of the primary benefits of specialized Turner syndrome clinics is the convenience of accessing an entire team of knowledgeable providers during one coordinated visit. Individuals with TS may need ongoing care from several specialists throughout the year, including cardiologists, endocrinologists, gynecologists, and urologists. Without a specialized clinic, coordinating these appointments often means traveling to multiple offices on different days, adding to the mental and logistical burden of managing care. TS clinics help simplify this process by bringing multiple specialists together, allowing patients to receive more comprehensive care in a single visit. An additional benefit is that providers may more easily communicate with each other to coordinate care for the patient.

Finding Knowledgeable Doctors

Additionally, the providers at these clinics have a high level of understanding of TS and vast experience working with TS patients. Many patients share the sentiment that it is difficult to find a provider who understands the condition, so going into an appointment knowing your health needs are understood can provide comfort and make the process more efficient.

Connecting with Community

As mentioned previously, many clinics offer community events such as meetups and medical presentations. This offers patients and caregivers the opportunity to connect with others in their area and form valuable relationships. We recommend seeking out a clinic near you not only for healthcare, but also for community-building opportunities!

How TS Clinics Can Continue to Evolve to Support TS Patients

While TS clinics provide many benefits for patients and their families, we hope to see more clinics established and grow to better meet the needs of the patient community.

The transition to adult care is a common challenge for women with TS, and this could be solved by establishing more clinics that focus on adulthood. One mother, Grace, states, “We are fortunate to have a great Turner syndrome clinic here in Denver, Colorado, but they only see pediatric patients and very young adults. As my daughter is entering adulthood and outgrowing this clinic, I am very concerned that the excellent healthcare and monitoring she has received will end because the adult providers she transitions to are not as familiar or educated about her specific health needs.”

In addition, there is limited access to clinics across the U.S., and many families travel very far to seek one out. Some families are simply unable to travel to a clinic, like Jenna, whose daughter has Turner syndrome. She says that they see a pediatrician, endocrinologist, ENT, audiologist, and cardiologist, and “I wish we had a TS clinic nearby so we could group our specialty appointments together.”

Clinics Spotlight

Below are a few of the specialized TS clinics that have been doing great work for the community, and whose providers are involved with TSF’s mission.

Turner Syndrome Adult Comprehensive Care Center at UT Houston
1. They provide extensive multidisciplinary care for adult TS patients including cardiology, otolaryngology, dermatology and more.
2. Provider highlight: Dr. Siddharth Prakash is a TSF Professional Member and has presented several webinars for TSF.
3. This clinic offers a yearly TS community day, this year’s is April 12, 2026.
Emory + Children’s Pediatric Institute, Center for Advanced Pediatrics
1. This clinic provides expansive multidisciplinary care for pediatric TS patients including cardiology, endocrinology, gastroenterology, and more
2. Provider highlight: Dr. Doris Fadoju is a TSF Professional Member and has presented a webinar on Pediatric Referrals
Turner Syndrome Clinic at Pediatric Subspecialty Clinic at Stead Family Children’s Hospital
1. At this clinic, pediatric patients can expect to see an endocrinologist, nutritionist, and psychologist.
2. Provider highlight: Dr. Catherina Pinnaro and Dr. Eirene Alexandrou are professional members of TSF and have presented webinars on TS & Diabetes and Estrogen Therapy
3. They provide opportunities for TS patients to be a part of important research if they wish.