Specialized centers are self-identified medical centers of care or practices dedicated to the comprehensive care of Turner Syndrome. This is a growing list, please check back often.
Professional members are specialists who self-identify a willingness to care for patients with Turner Syndrome. Their support helps to grow a network of care. TSF does not endorse or recommend any provider. This list is provided for information purposes only.
Providence Alaska Medical Center 3340 Providence Drive, Suite A – 351 Anchorage, AK 99508 Tel 907-212-4824 | Fax 907-212-4831 Contact: Cydney Fenton, MD Web: http://Alaska.Providence.org/
California
Lucile Package Children’s Hospital Stanford 725 Welch Rd, Palo Alto, CA 94304 Tel 650-723-5791 Contact: Ofelia Colin Web: http://www.stanfordchildrens.org/
Connecticut Children’s Medical Center 282 Washington St, Hartford, CT 06106 Contact: Karen Rubin, MD Tel: 860-545-9000 Website: http://www.connecticutchildrens.org
Delaware
Nemours | Alfred I. duPont Hospital for Children eXtraordinarY Kids Clinic Program 1600 Rockland Rd, Wilmington, DE 19803 Contact: Karen Kowal, PA Tel 215-955-1648 | Fax 215-955-1744 | kkowal@nemours.org https://www.nemours.org
District of Columbia
Children’s National Medical Center Turner Syndrome Clinic 111 Michigan Ave NW, Washington, DC 20010 Contact: Roopa Kanakatti Shankar, MD Tel 202-476-2121 Web: https://childrensnational.org/
Florida
Turner Syndrome Center at the University of Florida 2000 SW Archer Rd, Gainesville, FL 32608 Contact: Debbie McKeown, MD Tel 352-265-PEDS or 352-273-5625 | Fax: 352-627-4415 Web: https://ufhealth.org
Emory + Children’s Pediatric Institute Center for Advanced Pediatrics 1400 Tullie Road, Atlanta, GA 30329 Contact: Andres Flores or Aretha Samuels Tel 404-785-5437 Web: www.choa.org/medical-services/endocrinology
Illinois
Lurie Children’s Hospital 225 E. Chicago Ave., Chicago, IL 60611 Tel: 800-543-7362 Contacts: Lauren Robinson, RN Tel: 312-227-6495 or Eliz Capella Tel: 312-227-4641 Website: https://www.luriechildrens.org
Iowa
Stead Family Children’s Hospital at University of Iowa 200 Hawkins Drive, Iowa City, IA 52242 Schedule Appointment: (319) 356-2229 or (888)-573-5437(KIDS)
Massachusetts
Massachusetts General Hospital Turner Syndrome Clinic Co-Directors Dr. Angela Lin, Dr. Lynne Levitsky and Dr. Frances Hayes. Genetics Counselor Ashley Wong, MS, CGC
C. S. Mott Children’s Hospital 1540 E. Hospital Drive Ann Arbor, MI 48109 Pediatric Endocrinology Tel: (734) 764-5175 Referral from primary care physician required http://www.mottchildren.org/patient-visitor-guide
Missouri
Children’s Mercy on Broadway- Turner Syndrome Clinic 3101 Broadway Blvd, Kansas City, MO 64111 Contact: Kathy Williams Tel: 816-960-8803 Toll free: 888-563-3070 Web: http://www.childrensmercy.org
Turner Syndrome Clinic at Cardinal Glennon Children’s Medical Center 1465 S. Grand Boulevard, St. Louis, MO 63104 Contact: Dr. Susan Myers, MD Tel: 314-577-5648 Web: https://www.ssmhealth.com/cardinal-glennon
New Jersey
The Alfiero and Lucia Palestroni Birth Defects Center, St. Joseph’s Children’s Hospital Youth and Adult Care 11 Getty Avenue, Paterson, NJ 07503 Contact: Christina Flora, MSGC, CGC GENETICS, Coordinator / Counselor or Ashley-Lynn Amoruso, LSW Tel: 973-754-2174 or 973-754-3222 Fax: 973.566.9467 Web: http://stjosephshealth.org
Rutgers-Robert Wood Johnson Medical School Children’s Health Institute of New Jersey 89 French Street, Suite 2300, New Brunswick, NJ 08901 Contact: Ian Marshall, MD Tel: 732-235-9378 or email: marshaia@rwjms.rutgers.edu Web: http://umg.umdnj.edu
The Molly Center for Center for Children with Diabetes and Endocrine Disorders Hackensack University Medical Center 30 Prospect Avenue, WFan Building, Hackensack, NJ 07601 Contact: Javier Aisenberg, MD or Amy Chartoff , APN Tel: 551-996-5329 Web: http://www.hackensackumc.org
New Mexico
UNM Health System 2211 Lomas Blvd NE 3rd Floor Pediatric Dept/ Endo-Division Albuquerque, NM 87102 Turner Syndrome Clinic – will see adults Tel: 505- 272-6631
Children’s Hospital at Montefiore 3415 Bainbridge Ave., Bronx, NY 10467 Contact: Leslie Lam, MD or Susan Wesoly, RPA-C Tel: 718-741-2450 Website: http://cham.org
Weil Cornell Medical College 1300 York Avenue, New York, NY 10065 Tel: 212-746-1503 | Fax: 212-746-8527 Contact: Thomas Cunningham Web: https://weillcornell.org/pedsendo
North Carolina
UNC School of Medicine Turner Syndrome Clinic, UNC Department of Pediatrics 260 MacNider Building, CB# 7220, UNC School of Medicine, Chapel Hill, NC 27599 Contact: Jennifer Leonard Tel: 919-966-1505 Fax: 919-966-7299 Web: http://pediatrics.med.unc.edu
Turner Syndrome Clinic Nationwide Children’s Hospital Outpatient Care Center 555 S. 18th Avenue, Columbus, OH 43205 Contact: Dr. David R. Respaske, MD Tel: 614-722-4425 Web: http://www.nationwidechildrens.org
University of Oklahoma College of Medicine Turner Syndrome Clinic 1200 Children’s Avenue, Suite 4D, Oklahoma City, OK 73104 Tel: 405-271-3303 Fax: 405-271-3093 Web: http://www.oumedicine.com
Schusterman Center – OU Health Harold Hamm Diabetes & Endocrinology Clinic 4444 E. 41st St. Tulsa, OK 74135 Tel: 918-619-4803 Web: http://www.oumedicine.com
Oregon
Doernbecher Children’s Hospital Endocrinology Clinic Physicians Pavilion, 1st Schnitzer Diabetes Health Center 3181 SW Sam Jackson Park Road, Portland, OR 97239 Contact: Candi Hepper, RN Tel: 503-494-3273 Web: http://www.ohsu.edu
Pennsylvania
Turner Syndrome Program at Children’s Hospital of Philadelphia 34th Street and Civic Center Boulevard, Philadelphia, PA 19104 Contact: Denise Gruccio, MSN, CRNP Tel: 215-590-3174 Web: http://www.chop.edu
Children’s Hospital of Pittsburgh One Children’s Hospital Drive, 4401 Penn Ave, Pittsburgh, PA 15224 Contact: Tammy Nenadovich, Endocrinology Tel: 412-692-5325 Web: http://www.chp.edu
Thomas Jefferson University Kimmel School of Medicine Nemours Children’s Clinic 833 Chestnut Street, Suite 1210, Philadelphia, PA 19107 Contact: Judith L. Ross, MD or Karen Kowal Tel: 215-955-6520 Fax: 215-860-0408 Web: http://www.jefferson.edu
The University of Texas Health Science Center at Houston Turner Syndrome Adult Comprehensive Care Center 6410 Fannin, Suite 500 Houston, Texas 77030 Tel: 832-325-6516 Contact: Michelle Rivera-Davila, MD Web: https://www.utphysicians.com/center/turner-syndrome-care-center/
Virginia
Children’s Hospital of Richmond at VCU Pembrooke Office Park, 2305 N Parham Rd, Ste 1, Henrico, VA 23229 Tel: 804-828-2467 Web: http://www.chrichmond.org/
University of Washington Medical Center Genetic Medicine Clinic | Turner Syndrome Clinic 1705 North East Pacific St, K253, Box 357720, Seattle, WA 98195 Contact: Virginia P. Sybert, MD Tel: 206-598-4030 | Fax: 206-598-3269 Web: http://depts.washington.edu/medgen/clinics.shtml