Turner Syndrome FoundationSpecialized centers are self-identified medical centers of care or practices dedicated to the comprehensive care of Turner Syndrome. This is a growing list, please check back often.
Professional members are specialists who self-identify a willingness to care for patients with Turner Syndrome. Their support helps to grow a network of care. TSF does not endorse or recommend any provider. This list is provided for information purposes only.
Alabama
Children’s Hospital of Alabama
1601 4th Ave S, Park Place 2
Birmingham, AL 35233-1723
Tel 205-638-9107 | Fax 205-638-9107
Web: https://www.childrensal.org/turner-syndrome-clinic
Alaska
Providence Alaska Medical Center
3340 Providence Drive, Suite A – 351
Anchorage, AK 99508
Tel 907-212-4824 | Fax 907-212-4831
Contact: Cydney Fenton, MD
Web: http://Alaska.Providence.org/
California
Lucile Package Children’s Hospital Stanford
725 Welch Rd, Palo Alto, CA 94304
Tel 650-723-5791
Contact: Ofelia Colin
Web: http://www.stanfordchildrens.org/
Children’s Hospital Los Angeles
4650 Sunset Blvd, Mailstop #61
Los Angeles, CA 90027
Tel 323-361-4606 | 888-631-2452
Contact: Janet Guerrero
Web: http://www.chla.org/medical-management-well-known-genetic-disorders
Radys Children’s Hospital, UC San Diego
7910 Frost Street, Ste. 200
San Diego, CA 92123
Contact: Karen Oerter Klein
Tel 858- 966-5999
Web: https://www.rchsd.org/programs-services/endocrinology-diabetes/services/turner-syndrome-clinic/
Colorado
Department of Endocrinology at Children’s Hospital Colorado
Anschutz Medical Campus 13123 East 16th Ave, Aurora, CO 80045
Tel 720-777-8375 | Fax 720-777-7868
Contact: Susan Howell
E:Turnersyndrome@childrenscolorado.org
http://www.childrenscolorado.org/departments/endocrinology
Connecticut
Connecticut Children’s Medical Center
282 Washington St, Hartford, CT 06106
Contact: Karen Rubin, MD
Tel: 860-545-9000
Website: http://www.connecticutchildrens.org
Delaware
Nemours | Alfred I. duPont Hospital for Children eXtraordinarY Kids Clinic Program
1600 Rockland Rd, Wilmington, DE 19803
Contact: Karen Kowal, PA
Tel 215-955-1648 | Fax 215-955-1744 | kkowal@nemours.org
https://www.nemours.org
District of Columbia
Children’s National Medical Center Turner Syndrome Clinic
111 Michigan Ave NW, Washington, DC 20010
Contact: Roopa Kanakatti Shankar, MD
Tel 202-476-2121
Web: https://childrensnational.org/
Florida
Turner Syndrome Center at the University of Florida
2000 SW Archer Rd, Gainesville, FL 32608
Contact: Debbie McKeown, MD
Tel 352-265-PEDS or 352-273-5625 | Fax: 352-627-4415
Web: https://ufhealth.org
All Children’s Hospital
501 6th Avenue South, St. Petersburg, FL 33701
Tel: 727-898-7451 Toll-Free: 800-456-4543
Web: https://www.hopkinsallchildrens.org/find-a-doctor#
Georgia
Emory + Children’s Pediatric Institute
Center for Advanced Pediatrics
1400 Tullie Road, Atlanta, GA 30329
Contact: Andres Flores or Aretha Samuels
Tel 404-785-5437
Web: www.choa.org/medical-services/endocrinology
Illinois
Lurie Children’s Hospital
225 E. Chicago Ave., Chicago, IL 60611
Tel: 800-543-7362
Contacts: Lauren Robinson, RN Tel: 312-227-6495 or Eliz Capella Tel: 312-227-4641
Website: https://www.luriechildrens.org
Iowa
Stead Family Children’s Hospital at University of Iowa
200 Hawkins Drive, Iowa City, IA 52242
Schedule Appointment: (319) 356-2229 or (888)-573-5437(KIDS)
Massachusetts
Massachusetts General Hospital Turner Syndrome Clinic
Co-Directors Dr. Angela Lin, Dr. Lynne Levitsky and Dr. Frances Hayes. Genetics Counselor Ashley Wong, MS, CGC
Medical Genetics, MassGeneral Hospital for Children
175 Cambridge St., Boston, MA 02114
(617) 726-1561; 643-3133 FAX (617) 726-1566
Website: http://www.massgeneral.org/children/services/treatmentprograms.aspx?id=1682
Turner Syndrome Clinic is Friday morning every week.
Michigan
C. S. Mott Children’s Hospital
1540 E. Hospital Drive
Ann Arbor, MI 48109
Pediatric Endocrinology
Tel: (734) 764-5175
Referral from primary care physician required
http://www.mottchildren.org/patient-visitor-guide
Missouri
Children’s Mercy on Broadway- Turner Syndrome Clinic
3101 Broadway Blvd, Kansas City, MO 64111
Contact: Kathy Williams
Tel: 816-960-8803 Toll free: 888-563-3070
Web: http://www.childrensmercy.org
Turner Syndrome Clinic at Cardinal Glennon Children’s Medical Center
1465 S. Grand Boulevard, St. Louis, MO 63104
Contact: Dr. Susan Myers, MD
Tel: 314-577-5648
Web: https://www.ssmhealth.com/cardinal-glennon
New Jersey
The Alfiero and Lucia Palestroni Birth Defects Center, St. Joseph’s Children’s Hospital Youth and Adult Care
11 Getty Avenue, Paterson, NJ 07503
Contact: Christina Flora, MSGC, CGC GENETICS, Coordinator / Counselor or Ashley-Lynn Amoruso, LSW
Tel: 973-754-2174 or 973-754-3222
Fax: 973.566.9467
Web: http://stjosephshealth.org
Rutgers-Robert Wood Johnson Medical School
Children’s Health Institute of New Jersey
89 French Street, Suite 2300, New Brunswick, NJ 08901
Contact: Ian Marshall, MD
Tel: 732-235-9378 or email: marshaia@rwjms.rutgers.edu
Web: http://umg.umdnj.edu
The Molly Center for Center for Children with Diabetes and Endocrine Disorders
Hackensack University Medical Center
30 Prospect Avenue, WFan Building, Hackensack, NJ 07601
Contact: Javier Aisenberg, MD or Amy Chartoff , APN
Tel: 551-996-5329
Web: http://www.hackensackumc.org
New Mexico
UNM Health System
2211 Lomas Blvd NE
3rd Floor Pediatric Dept/ Endo-Division
Albuquerque, NM 87102
Turner Syndrome Clinic – will see adults
Tel: 505- 272-6631
New York
NYU Langone Hospital—Long Island’s Turner Program
101 Mineola Bvld 2nd Floor, Mineola NY 11501
Contact: Lori Benzoni
Tel: 516-663-2112
Email: Lori.Benzoni@nyulangone.org
Web: Turnersyndrome@nyulangone.org
Learn More
Children’s Hospital at Montefiore
3415 Bainbridge Ave., Bronx, NY 10467
Contact: Leslie Lam, MD or Susan Wesoly, RPA-C
Tel: 718-741-2450
Website: http://cham.org
Weil Cornell Medical College
1300 York Avenue, New York, NY 10065
Tel: 212-746-1503 | Fax: 212-746-8527
Contact: Thomas Cunningham
Web: https://weillcornell.org/pedsendo
North Carolina
UNC School of Medicine Turner Syndrome Clinic, UNC Department of Pediatrics
260 MacNider Building, CB# 7220, UNC School of Medicine, Chapel Hill, NC 27599
Contact: Jennifer Leonard
Tel: 919-966-1505 Fax: 919-966-7299
Web: http://pediatrics.med.unc.edu
Ohio
Cincinnati Children’s Turner Syndrome Center
3333 Burnet Avenue, Cincinnati, Ohio 45229
Contact: Lori Casnellie, RN
Tel: 513-636-0226
Appointment: 513-636-4744, option 1
Web: http://www.cincinnatichildrens.org
Turner Syndrome Clinic
Nationwide Children’s Hospital Outpatient Care Center
555 S. 18th Avenue, Columbus, OH 43205
Contact: Dr. David R. Respaske, MD
Tel: 614-722-4425
Web: http://www.nationwidechildrens.org
Turner Syndrome Center at Akron Children’s Hospital
Considine Professional Building
215 W. Bowery Street, Suite 6400, Akron, OH 44308
Contact: Mary Zwisler, RN, BC
Tel: 330-543-3276
Web: https://www.akronchildrens.org/departments/Turner-Syndrome-Center.html
Cincinnati Children’s Adult Turner Syndrome Center
To schedule an appointment, call 513-636-4744, option 1.https://www.cincinnatichildrens.org/service/e/endocrinology/programs/adult-turner-syndrome
Oklahoma
University of Oklahoma College of Medicine Turner Syndrome Clinic
1200 Children’s Avenue, Suite 4D, Oklahoma City, OK 73104
Tel: 405-271-3303 Fax: 405-271-3093
Web: http://www.oumedicine.com
Schusterman Center – OU Health Harold Hamm Diabetes & Endocrinology Clinic
4444 E. 41st St.
Tulsa, OK 74135
Tel: 918-619-4803
Web: http://www.oumedicine.com
Oregon
Doernbecher Children’s Hospital Endocrinology Clinic
Physicians Pavilion, 1st Schnitzer Diabetes Health Center
3181 SW Sam Jackson Park Road, Portland, OR 97239
Contact: Candi Hepper, RN
Tel: 503-494-3273
Web: http://www.ohsu.edu
Pennsylvania
Turner Syndrome Program at Children’s Hospital of Philadelphia
34th Street and Civic Center Boulevard, Philadelphia, PA 19104
Contact: Denise Gruccio, MSN, CRNP
Tel: 215-590-3174
Web: http://www.chop.edu
Children’s Hospital of Pittsburgh
One Children’s Hospital Drive, 4401 Penn Ave, Pittsburgh, PA 15224
Contact: Tammy Nenadovich, Endocrinology
Tel: 412-692-5325
Web: http://www.chp.edu
Thomas Jefferson University Kimmel School of Medicine
Nemours Children’s Clinic
833 Chestnut Street, Suite 1210, Philadelphia, PA 19107
Contact: Judith L. Ross, MD or Karen Kowal
Tel: 215-955-6520 Fax: 215-860-0408
Web: http://www.jefferson.edu
Lehigh Valley Hospital
1200 Cedar Crest Blvd., Allentown, PA 18103
Tel: 610-402-8000
Web: https://www.lvhn.org/medical-services/pediatric-endocrinology
South Carolina
University of South Carolina School of Medicine
9 Medical Park, Suite 230
Columbia, SC 29203
Tel: 803-434-7990
Fax: 803-434-4669
Tennessee
Monroe Carrell Jr. Children’s Hospital at Vanderbilt
2200 Children’s Way, Nashville, TN 37232
Tel: 615-322-7427
Web: https://www.childrenshospital.vanderbilt.org/index.php
Texas
The University of Texas Health Science Center at Houston
Turner Syndrome Adult Comprehensive Care Center
6410 Fannin, Suite 500 Houston, Texas 77030
Tel: 832-325-6516
Contact: Michelle Rivera-Davila, MD
Web: https://www.utphysicians.com/center/turner-syndrome-care-center/
Virginia
Children’s Hospital of Richmond at VCU
Pembrooke Office Park, 2305 N Parham Rd, Ste 1, Henrico, VA 23229
Tel: 804-828-2467
Web: http://www.chrichmond.org/
Washington
Seattle Children’s Turner Syndrome Clinic
4800 Sand Point Way, NE, Seattle, WA 98105
Call 206-987-7693 and mention TS Clinic in voicemail
Web: https://www.seattlechildrens.org/clinics/turner-syndrome-clinic/
University of Washington Medical Center Genetic Medicine Clinic | Turner Syndrome Clinic
1705 North East Pacific St, K253, Box 357720, Seattle, WA 98195
Contact: Virginia P. Sybert, MD
Tel: 206-598-4030 | Fax: 206-598-3269
Web: http://depts.washington.edu/medgen/clinics.shtml
