Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome. This month I would like to shed some light on the open-heart surgery that I underwent last year, and how self-advocacy led to a life-saving intervention. I hope that […]
Self-Advocacy for Better Health Read More
Patient Handbook on Turner Syndrome
New! Turner Syndrome Patient Handbook Read More
February Awareness Month is almost here, and we have prepared so many ways for you to join us in making change. Raising awareness happens all year, but February is a special time for us to focus our efforts and work together! We have created a packet for you to download that explains many Awareness Month
Awareness Month Involvement Packet Read More
Subscribe to our blog Click to order a copy! The Turner Syndrome Patient Guide is available upon request. The “Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome- Brief Synopsis” is a guide that provides a summary of the main points from the 2017 report for medical professionals about indicators of
Turner Syndrome Patient Guide Available Upon Request Read More
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