The Turner Syndrome Patient Guide is available upon request.

The “Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome- Brief Synopsis” is a guide that provides a summary of the main points from the 2017 report for medical professionals about indicators of Turner Syndrome and patient treatment. This complimentary booklet is a valuable resource for those interested in familiarizing themselves with Turner Syndrome, as it presents a comprehensive overview in an easy to read manner. We urge anyone in the medical field to review this information so you may be better prepared to diagnose Turner Syndrome based on the typical symptoms and characteristics, as well as being empowered to provide quality care for girls with the disorder.

The main points addressed in the booklet include:
• Introduction
• Diagnosis and Genetics of TS
• Growth and Puberty
• Fertility and Assisted Reproductive Technologies
• Cardiovascular Health Issues in TS
• Health Surveillance for Associated Health Issues Throughout Life
• Transition from Pediatric to Adult Care
• Neurocognition and Behavior
• Optimizing Care Across the Lifespan

To request your copy, please complete the online order form by clicking the image link below. We ask that you provide a donation to support the service of educational information and to cover shipping costs.

We urge you to redistribute this copy when you have completed reviewing it, so the information may be passed along among the population of medical professionals. In addition to this guide, patients, caregivers and professionals will find an abundance of information on the www.TurnerSyndromeFoundation.org website.

If you would like to research Turner Syndrome more, please reference the full text document at https://www.ncbi.nlm.nih.gov/pubmed/28705803, and you may also find additional resources from the Turner Syndrome Foundation at https://turnersyndromefoundation.org/professionals/.

The patient guide will help you learn more about the important issues of baby girls and women affected by Turner Syndrome. This random and complex disorder requires a lifetime of specialized care.