Balancing Emotional Wellness

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From time to time, we all need a little support to maintain emotional wellness. After months of sheltering in place, we must find balance in managing health and emotional wellness as we begin anew. WEBINAR TOPIC Balancing Emotional Wellness REGISTER HERE Online at: https://turnersyndromefoundation.org/webinar-balancing-emotional-wellbeing-06-15-2021/ Please join us for Webinar- Balancing Emotional Wellness, as we are joined by […]

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Exercise and Young People with Turner Syndrome

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This post summarizes an article by Dr. Thalia Thompson, et al. titled “A Mixed-Methods Study of Physical Activity and Quality of Life in Adolescents with Turner Syndrome.” It explores how Turner Syndrome (TS) affects young people’s ability to exercise, given their TS-related health challenges. About the Study Purpose The two purposes of this study were

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How to Find a Turner Syndrome Specialist

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Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with your specific health needs, called specialists, and how to refer others to specialists that have

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Is Growth Hormone Therapy Right for Your Child?

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In a recent webinar, Dr. Mary Gwyn Roper discussed Growth Hormone Therapy (GHT) in patients who have Turner Syndrome. Read below to learn some things she shared that might help you decide whether Growth Hormone Therapy (GHT) is right for your child. Disclaimer: This post is not meant to replace individualized medical advice. Deciding whether

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Finding Your “Something”

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Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome (TS). In this article, she reflects on finding her “something”–a cause that speaks to her and allows her to contribute to her community. The Well of Ancient Mysteries To look

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Financial Resources for Growth Hormone Therapy

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Do you have a child or loved one who has Turner Syndrome (TS) and needs growth hormone therapy (GHT) but cannot afford it? Do you know another parent in this situation? Read below to learn about what financial resources for GHT that could help you or other parents. Financial Resources for Growth Hormone Therapy Connections

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is growth hormone therapy right for your child?

What Are Growth Hormone and Estrogen Therapy?

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Subscribe to our blog Growth hormone and estrogen therapies are among the most common treatments for individuals who have Turner Syndrome (TS). Short stature affects at least 95% of all individuals with TS and is the most consistent and readily recognizable clinical feature of TS. Additionally, only 16% of those affected have spontaneous puberty, and many

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Self-Advocacy Tips for Healthcare, School, and Work

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This month, we are discussing all kinds of advocacy, which includes self-advocacy. To be a self-advocate means to understand your needs and speak up for them until you get what you need. Sometimes, this can be intimidating, like if you’re talking to a doctor or your boss about an unmet need or accommodation. Self-advocacy can

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