Hello!
Hello there, my name is Angela. I am blessed with many things in life. I have wonderful family and friends, a love for reading and learning, the cutest dog ever, and I also have Turner syndrome. As a nurse, I am passionate about health education so I hope anyone reading is able to learn something for my story.
DIAGNOSIS
I was diagnosed with Turner syndrome at birth. It was a nurse who first recognized the signs and advocated for me to get tested. This early diagnosis allowed me to get started at the Great Heights Clinic at Children’s Mercy in Kansas City early in my development. Here, I was a part of a study where I got free growth hormone and access to providers who were knowledgeable about TS. I continuously saw the same nurse for many years who was a great support for me. This made me want to become a nurse myself and care for others.
NURSING SCHOOL
While in nursing school, my professor briefly mentioned Turner syndrome in a lecture and if I hadn’t spoken up, then that would have been all my small group of nursing students would have heard about the subject. I did speak up though and shared my story because I felt like I owed it to any future TS patients these nursing students might care for in their career. Through projects and presentations, I shared about Turner syndrome multiple times during my schooling. I graduated nursing school in 2021 and I am now a public health nurse.
CONNECTING WITH TSF
I believe everyone with TS deserves the same opportunities and resources I was fortunate enough to be given. This is why when I first heard about the Turner Syndrome Foundation volunteer opportunities I knew I had to jump at the chance to volunteer. I hope that with the help of the Turner Syndrome Foundation I can educate future health care professionals as well as the public about Turner Syndrome and raise awareness that will positively affect all my fellow TS butterflies.
MY MESSAGE TO YOU
I want people to know that anyone with TS has the opportunity for a bright and wonderful future. I believe we all are capable of more than we think. Advocating for yourself or for your child is one of the most important things you can do. I encourage everyone affected by TS to reach out to the Turner Syndrome Foundation for any needed resources. Thank you for reading my story.
Written by Angela Lenhardt, Volunteer. Designed by Delvis Rodriguez, Data Management.
© Turner Syndrome Foundation, 2025
