Share Your Story for Turner Syndrome Awareness
Help raise awareness and support for Turner syndrome with your story! Every individual with Turner syndrome and their caregivers deserve to be heard.
By sharing our stories, we create a better understanding of the impact Turner syndrome has on lives, spreading information about the needs of this community, and helping to create positive change.
Your story might be exactly what someone else needs to hear.
Share Your story in three easy steps:
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- COMPLETE the form on which you share your story by answering the questions and uploading photos. Stories can be about living with, caring for, or loving someone affected by Turner syndrome. We may contact you about publishing your story if we have further requests for information. See examples of stories below.
- CREATE a fundraising page as an optional next step to bringing more awareness and support to Turner syndrome! On your page, be sure to share a bit of your story.
- SHARE your page with family, friends and community members, getting them involved in supporting the cause in your honor!
If you need any help setting up your personal story page, feel free to contact us for assistance:
Call: (800)594-4585
Email: info@tsfusa.org
Important note: The information you share via a My Story submission or fundraising page will be public information on the world wide web and may be posted to TSF’s website and/or social media. You should consider only entering information you are comfortable sharing publicly. Children must have the consent of their parents to post, and TSF assumes no responsibility in securing permissions, content, errors or omissions. TSF has the right to take down or edit any material that is deemed inaccurate, inappropriate or harmful.
Turner Syndrome Stories
Advice for Girls with Turner Syndrome on Going to College
The transition to college from high school can be daunting for any 18 year old, or even anyone going back to school, especially when it can sometimes mean relocating away from your familiar support system. For those with conditions like Turner syndrome, there may be additional challenges to consider that the average student might not
Decades of Strength: Rita’s 80-Year Journey with Turner Syndrome
As part of its My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents and caregivers. In this post, Rita, a woman in her 80s who was diagnosed with TS at 17 years old, shares her story and how she feels so lucky, even while having faced decades
Paths to Parenthood with Turner Syndrome
For many women with Turner syndrome (TS), conversations around fertility and parenthood can feel complex, uncertain, or even discouraging. While infertility is common in women with TS, it does not have to prevent them from pursuing parenthood or meaningful caregiving roles, if they choose to, in ways that align with their health, values, and calling.
Introducing Mike McDowell: TSF Board Member
One of the many struggles women with Turner syndrome and their families can face is a lack of understanding of the condition. This can include their own lack of understanding, or in more common cases, a lack of understanding by medical professionals, teachers, and the general public. Many get involved with the Turner Syndrome Foundation
Medical Gaps In The Treatment of Adult Women with Turner Syndrome
I am both a retired pediatric endocrinologist and a woman with Turner syndrome (TS). I have been a pediatric endocrinologist since 2000, and enjoy interacting with other girls and women with TS. My personal medical journey and pediatric endocrinology training have given me a unique perspective in the ongoing knowledge of Turner syndrome management. My
My Story: A Mother’s Journey With Turner Syndrome
A Diagnosis That Changed Everything During my pregnancy, I was considered high risk. My amniotic fluid levels were low, and my baby was measuring smaller than expected. The doctors suspected she might be born with a form of dwarfism. I was overwhelmed with fear, uncertainty, and a fierce desire to protect the tiny life inside
