When a child is diagnosed with Turner syndrome (TS), it’s natural to have questions about their life and future. You may be focused on managing present or future medical challenges, but just as important are the questions that arise around education, independence, and career opportunities. One common concern we often hear is “What kind of […]
Turner Syndrome and Careers: A World of Opportunities Read More
Living with Turner syndrome (TS) presents unique challenges and triumphs, not only for the girls and women diagnosed, but also for their families. Often, loved ones become key advocates, navigating the journey alongside them. In this post, we share the stories of three mothers, Lucia, Victoria, and Kimberly, who are dedicated to understanding TS and
From the Mother’s Viewpoint: Advocating for Turner Syndrome Girls Read More
How can women with Turner syndrome find their path in life despite challenges? How can you advocate for your health needs? Rosie shares her journey with Turner syndrome and how she has overcome challenges in her life. In addition, she shares an important message for medical professionals. Navigating External Judgement & Overcoming Childhood Challenges I
My Story: Finding My Path Read More
Subscribe to our blog Like many women with Turner syndrome (TS), I went my whole life with the reality that I most likely would never be able to have my own kids, a diagnosis confirmed with recent testing. Even though I had the understanding, it still hit harder than I could have ever imagined when
Infertility in Women with Turner Syndrome: Kayla’s Story Read More
Subscribe to our blog Previous versions of this post were originally published in February 2021 and October 2022. The Turner Syndrome Foundation (TSF) is wrapping up its celebration of TS Awareness Month (TSAM) for 2025, but its mission to promote awareness and advocacy for TS will continue every day. TSF hosted several awareness, advocacy, and
Subscribe to our blog Hey, I’m Jaclyn Hey! I’m Jaclyn. A 31 year-old millennial thriving on Celsius, an upbeat Spotify playlist, and cheetah print everything. Though I do not have Turner syndrome myself, my reason for being here is a pretty freakin’ incredible one. Meet Sammie Sam & I met when we were about 7
Sammie’s Story (Jaclyn’s Version) Read More
Subscribe to our blog How does someone decide their career? What inspires them? Does having Turner syndrome impact that decision? Meet Lauren who shares her journey with Turner syndrome and the influencers who were there to shape her self-worth as an individual and guide her towards choosing a career in medicine. Meet Lauren Hi, my
From Being Diagnosed to a Future of Diagnosing Read More
Subscribe to our blog We know Turner syndrome has its difficulties. But what if you could help foster a positive community using your experiences having TS? Read about Kayla’s TS journey and her encouragement to others with TS! Who is Kayla? Who am I, and who do I want to be? Those are questions that
Turning TS Into a Positive Community Read More
Subscribe to our blog Dear Health Professionals, When people ask me what I do for a living, my first answer is, “I breathe.” I often get a look of humor, contempt, curiosity, or disbelief. Well, I am a healthcare professional, and I’m glad you put up with my opening line. Not many would, and I
From a Health Professional: Why don’t we know enough? Read More
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