Lori Kobular has adult daughter, Julie, with Turner Syndrome (TS). Lori is a Turner Syndrome Foundation (TSF) board member and serves on the volunteer Awareness Committee. In this post, she answers some questions about her experience parenting a daughter with TS. This is only one parent’s experience with TS and does not reflect every person’s […]
My Daughter’s Turner Syndrome Journey: Q&A with a Mother Read More
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses her experience with Hormone Replacement Therapy. Hormones are your body’s chemical messengers. They travel in your bloodstream to tissues or organs to help them do their
Loud and Clear: My Hormone Replacement Therapy Journey Read More
Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki shares how her group successfully advocated in the state of Nebraska. Renee’s Turner Syndrome Advocacy
A Turner Syndrome Advocacy Success Story Read More
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses recognizing your beauty in a world that often focuses on the external. You’ve got to get up every morning with a smile on your face,
Recognizing Your Beauty Read More
It’s National Volunteer Month! Today we are highlighting Leisa Jenkins, mother of a girl who has Turner Syndrome, coach, author of 10x Your Inner Rockstar, and a TSF volunteer. As a volunteer, Leisa is a member of our Engaged Volunteer Committee and serves as the Star Sisters Group Mentor. She is there to offer support,
Leisa’s Passion for Helping Others Read More
Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome after aortic dissection surgery. Life Post-Surgery Hello again! I hope everyone is doing well and staying safe during these most challenging times. This month, I would like to look
My Life After Aortic Dissection Surgery Read More
by Katie Steedly Curling, PhD, Writer & Guest Blogger for TSF Sometimes in our rush to think about awareness as big events and campaigns, we forget that awareness is, above all, personal. Connection is the heart of Turner Syndrome awareness. Communication is the heart of connection. Talking and writing are the heart of communication. Awareness
An Awareness Success Story Read More
I would like to start by thanking you for taking the time to read my story. I hope you will gain knowledge and comfort from my experiences with Turners. My name is Christina Quint and I was diagnosed with Turner Syndrome at birth, thirty years ago. I was blessed with parents who have helped and
Christina’s Turner Syndrome Story Read More
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