Individuals with Turner syndrome (TS) are more prone to hearing loss due to both structural and inner ear issues. In childhood, differences in skull and throat structure can lead to frequent middle ear infections (otitis media), causing conductive hearing loss. As they age, many develop sensorineural hearing loss due to inner ear or auditory nerve […]
FAQ: Hearing Loss in Turner Syndrome Read More
Turner syndrome (TS) is a condition that occurs in about 1 in every 2,000 live female births. TS is random and is characterized by a missing or partially missing X chromosome. TS symptoms are a spectrum and can look very different from person to person. Some may have short stature or delayed puberty, while others
Why Genetic Counseling Matters in Turner Syndrome Read More
Girls and women with Turner Syndrome (TS) face unique cognitive, emotional, and educational challenges that are often underrecognized, yet highly addressable with the right support. In the Turner Syndrome Foundation webinar: Psychosocial & Educational Considerations for Turner Syndrome, Mackenzie Norman, PhD., walked families, educators, and providers through the latest research and real-world strategies for improving
FAQ: Psychosocial Considerations for Turner Syndrome Read More
When it comes to supporting girls with Turner Syndrome (TS), we often think of care in two separate worlds: the medical clinic and the classroom. However, when these spheres work in isolation, important needs often go unmet. Girls with Turner Syndrome often present quietly. They may not act out or fall behind academically, but internally,
Coordinating Care Between Schools and Healthcare Providers for Girls with Turner Syndrome Read More
Turner Syndrome (TS) is often discussed in terms of medical needs and physical development, but there are invisible areas of difference that can be just as impactful, one of them being social development. For example, TS patient Sydney, “TS has been more of a mental, social battle mostly. From the different doctors appointments to the
Social Skills Development in Turner Syndrome Read More
Navigating Healthcare with Turner Syndrome Navigating the healthcare system can be confusing and frustrating—even more so when living with a genetic condition like Turner syndrome (TS). As someone with TS, I’ve often walked into doctors appointments only to discover the provider has little to no knowledge of the condition. These moments can leave you feeling
Navigating Healthcare with Turner Syndrome Read More
How Educators and Families Can Support Strengths and Challenges in Learning Turner syndrome (TS) is a chromosomal condition affecting about 1 in 2,000 females, and while the physical characteristics may be obvious, it is lesser known that the condition also affects learning and cognition. Understanding the learning strengths and challenges associated with TS is essential
Understanding the Cognitive Profile of Girls with Turner Syndrome Read More
Subscribe to our blog We’ve all heard the idiom “practice makes perfect” at some point. However, recent scientific studies might have proven otherwise. Have you ever felt that you never seem to improve on a given skill, no matter how actively you pursue it? Is it possible that it might not be the quantity of
When Practice Doesn’t Always Make Perfect Read More
Subscribe to our blog Pregnancy and Infant Loss Remembrance Day October 15 is Pregnancy and Infant Loss Remembrance Day, a day to recognize and honor those affected by miscarriage, stillbirth, SIDS, ectopic pregnancy, pregnancy termination for medical reasons, and newborn death. Each of these challenges profoundly impacts those who experience them. This article focuses on
Coping with Loss: Miscarriage and Infertility Read More
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