Subscribe to our blog Get Started on Your Mental Health Journey Photo by Kindel Media, Pexels Regardless of whether your child or yourself is diagnosed with TS or another rare condition, mental health is a key part of helping you thrive. With the nonstop stress that comes along with health issues, we need a way […]
Mental Health & Sand Play Webinar Read More
Subscribe to our blog Dear Health Professionals, When people ask me what I do for a living, my first answer is, “I breathe.” I often get a look of humor, contempt, curiosity, or disbelief. Well, I am a healthcare professional, and I’m glad you put up with my opening line. Not many would, and I
From a Health Professional: Why don’t we know enough? Read More
Subscribe to our blog CALLING ALL BUTTERFLIES! Come on out and join other Turner Syndrome Families for the 3rd Annual Summer Bash at Liberty Lake on August 24th! Whether you know someone or will be meeting us for the first time, come for a refreshing day in the hot summer season. Lounge at the pools
Subscribe to our blog The State of Healthcare and Educational Access for Girls with TS Turner syndrome (TS) can have varying degrees of impact on one’s education through both potential learning and physical disabilities. These may include social cognition, ADHD or ADD, math abilities, and visuospatial organization. Often girls with Turner syndrome and their families
Psychosocial and Educational Considerations Read More
Subscribe to our blog BUY Ellis merch! Make a Donation Pete Fairbanks, Tampa Bay Rays, and Turner Syndrome The joy that comes with having a child is immense. Yet, it cannot compare to the heaviness felt when losing a child. Lydia and Pete Fairbanks, pitcher for the Tampa Bay Rays, lost their daughter Ellis after
Pete Fairbanks, Tampa Bay Rays, Turner Syndrome Read More
Subscribe to our blog Calling all Healthcare Professionals, Advocates, and Policymakers Like a fortified scaffold, an informed healthcare team can support a woman with TS in achieving their health goals. As girls with Turner syndrome (TS) grow into adults, these patients can benefit from primary care physicians and specialists adept at TS care in the
Calling All Healthcare Professionals, Advocates, and Policymakers Read More
Subscribe to our blog Join Us and Wear Your GREEN for TS Awareness Join us at the TSF x Blue Claws baseball game with the Turner Syndrome Foundation as the community partner! By buying tickets, you will be supporting TS females and their families. Invite everyone – friends, families, coworkers, Girl Scout troops, all are
Join us at the BlueClaws x TSF Baseball Game! Read More
Subscribe to our blog Walk Toward a Brighter Future,Join Take a Step for TS 2024 The Turner Syndrome (TS) community is walking together for TS awareness and research this spring. From April 1 through April 15, 2024, the Turner Syndrome Foundation is hosting Take a Step for TS 2024, a walk to promote awareness and
Subscribe to our blog Rodrigo Colon sat down with Lori Kobular on his podcast, Own Your Career Special, to discuss her experience with Turner syndrome and the importance of awareness that truly impacts the lives of women. When Rodrigo’s granddaughter, Lily, was diagnosed with Turner Syndrome, his first reaction was, “What is that?” Rodrigo Colon
Spreading Awareness with Rodrigo Colon Read More
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