Sharing your child’s Turner Syndrome (TS) diagnosis can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They have long been advocates for TS awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a child with the condition. We asked them to […]
Sharing Your Child’s Turner Syndrome Diagnosis: One Family’s Perspective Read More
Lori Kobular has adult daughter, Julie, with Turner Syndrome (TS). Lori is a Turner Syndrome Foundation (TSF) board member and serves on the volunteer Awareness Committee. In this post, she answers some questions about her experience parenting a daughter with TS. This is only one parent’s experience with TS and does not reflect every person’s
My Daughter’s Turner Syndrome Journey: Q&A with a Mother Read More
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses her experience with Hormone Replacement Therapy. Hormones are your body’s chemical messengers. They travel in your bloodstream to tissues or organs to help them do their
Loud and Clear: My Hormone Replacement Therapy Journey Read More
Subscribe to our blog The eXemplarY Kids Clinic of Cedars-Sinai in Los Angeles, CA is a multidisciplinary clinic for children with X & Y chromosome variations. We spoke with Dr. Schweiger, Director of Pediatric Endocrinology and Co-Director of the Clinic, to learn how this center cares for girls with Turner Syndrome. What kind of specialized
TS Care Center: eXemplarY Kids Clinic Read More
Subscribe to our blog A list of Common Symptoms: Short statured Verbally gifted Learning issues Frequent earaches Delayed puberty ORDER A WINDOW DECAL FOR AWARENESS TAKE A CLOSER LOOK AT SHORT GIRLS WHAT IS TS? SYMPTOMS DIAGNOSING
Turner Syndrome. Know the Signs. Read More
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