Research is critical to advancing the understanding of Turner syndrome, and successful research requires participation from those living with the condition. In this blog, learn about a new research study you can participate in to help a Doctoral candidate and woman with TS generate more knowledge about social skills in Turner syndrome. About the Researcher […]
Research Opportunity: TS & Social Skills – Read More
Turner syndrome (TS) is a genetic disorder and individuals with TS may have an increased risk of certain health conditions, including some cancers. While TS itself does not cause cancer, associated hormonal and genetic factors may contribute to an increased risk. The impact of Turner syndrome on several types of cancer risk will be explored
An Overview of Turner Syndrome and Various Cancer Risks Read More
   The future of Turner syndrome research is in the hands of the patient community. The Turner Syndrome Foundation, in collaboration with Invitae Patient Insights Network (PIN), has established a TSRX PIN to assist the patient community in assisting the scientific community in creating an inclusive global data registry on TS; the biggest in
Register for TSRX to Help Science Know More About Turner Syndrome! Read More
Subscribe to our blog Is there a connection between Turner syndrome (TS) and Autism Spectrum Disorder (ASD)? Both conditions occur on a spectrum, which means they will vary greatly in how they present in patients. Is there a connection between the two conditions, though? While knowledge of both conditions changes over time, and we have
The Connection between Turner Syndrome and Autism Read More
Subscribe to our blog We often hear a lot about the challenges of Turner syndrome (TS), which vary from patient to patient. But let’s make sure to look at the positives, too! One of those for individuals with TS is having above-average verbal skills. How can we nurture this in individuals with TS and help
Turner Syndrome & Verbal Skills: a Good-news Story! Read More
Subscribe to our blog Intro Much of the Turner Syndrome Foundation’s (TSF) focus is on helping individuals with Turner Syndrome (TS) manage their health challenges. However, with the pandemic highlighting the power of spreading awareness and sharing research to overcome global health challenges, we decided to change our approach. Written by a collaborative team of
International TS Treatments Read More
Subscribe to our blog The Importance of Early Diagnosis Early diagnosis is crucial because it helps: give growth hormone and/or hormone replacement therapies enough time to improve the health and height of patients with TS; and make potentially lifesaving medical interventions for heart, kidney, and other health challenges possible, keeping them from developing into dangerous
Electronic Health Records Enhance Turner Syndrome Diagnosis Read More
Subscribe to our blog One of the many things the COVID-19 pandemic has taught us is the importance of scientific research. Without research, we could not solve many health questions, like how to help treat people with rare conditions like Turner Syndrome (TS) during the pandemic. Whether you’re a medical professional, researcher, or patient, it
Everything You Need To Know about the TSRX-PIN Registry Read More
Subscribe to our blog Research is a team effort. The more people that are on the team, the more effective research can be. It is important for all women, girls, and family members affected by Turner Syndrome to contribute to clinical trials in order to provide researchers with a clear picture of the cause, impact,
Research Opportunities Read More
Subscribe to our Newsletter
