Behind every resource shared, every family supported, and every awareness campaign launched at the Turner Syndrome Foundation (TSF), there is one constant force making it all possible: our volunteers.
In 2025, volunteers continued to power TSF in countless ways, often behind the scenes, always with heart. Their time, skills, and lived experience help ensure that girls and women with Turner syndrome, along with their families and caregivers, are met with knowledge, compassion, and connection.
Our volunteers contribute across every area of TSF’s work, including:
- Client Services, speaking directly with patients and families to help them navigate diagnoses, access resources, and feel less alone
- Technology and Website Support, improving accessibility and user experience so information is easier to find and use
- Video Editing & Graphic Design, creating engaging, educational content for social media and digital campaigns
- Blog Writing & Content Creation, translating research, personal stories, and lived experiences into meaningful, accessible articles
- Legislative Advocacy, working to build outreach campaigns and elevate Turner syndrome awareness with policymakers
- Awareness & Outreach, spreading the word about Turner syndrome through campaigns, events, and storytelling
- Fundraising, helping secure the resources needed to sustain and grow TSF’s programs
Below, we’re honored to spotlight four volunteers whose contributions in 2025 reflect the dedication, talent, and heart that define the TSF community.
Nadia — Blog Writer
Nadia brings a deep commitment to research, clarity, and accessibility to her role as a TSF blog writer. Her work focuses on complex and often under-discussed health topics, including cancer risks associated with Turner syndrome.
“At TSF so far, I have written blog articles relating to the risks of various cancers in TS patients, as a result of chromosomal abnormalities and genetic mutations. I am glad that I have hopefully been able to present information from scientific journal articles to the TSF community in a way that may be more accessible to patients and families.”
Originally from Marlboro, New Jersey, Nadia began volunteering with TSF as a junior in high school after discovering the blog writer role on a volunteer recruitment platform. Now a rising freshman at Johns Hopkins University, she is passionate about research and cancer biology and hopes to pursue a career as a physician-scientist.
Her contributions to the blog serve an important role by translating dense scientific literature into easily digestible content that empowers the TS community with knowledge.
Brooke Caron — Blog Writer
For Brooke, storytelling is a superpower. As a blog writer, she transforms the personal stories shared by women with TS and caregivers inspiring articles that highlight resilience, advocacy, and the many paths taken by girls and women with Turner syndrome.
“I love being able to share the stories of these amazing girls, women, and their families… bringing awareness not just to Turner Syndrome but also to how strong we are, the obstacles we face, and the many things we can accomplish.”
Diagnosed with Turner syndrome at age 10, Brooke brings lived experience, empathy, and creativity to her work. She holds an English degree, works full-time in health insurance, and uses volunteering as both a creative outlet and a way to uplift her community.
Her advocacy extends beyond writing. Brooke and her family played a key role in getting Turner Syndrome Awareness Month officially recognized in Maine, demonstrating how individual voices can create lasting impact.
Helen Rhoads — Legislative Advocacy Committee Leader
Helen’s work with TSF’s Legislative Advocacy Committee reflects our commitment to bringing national awareness to Turner syndrome and engaging policymakers in the conversation. Over the past year, she has helped expand the committee and recently joined fellow volunteer Claire Hummel in meeting with a state representative to discuss Turner syndrome and future advocacy opportunities.
“It means that I’m able to play a small part in helping other TS patients and caregivers have a voice, as well as more knowledge and resources at their disposal.”
Born and raised in Montgomery, Alabama and diagnosed with Turner syndrome at age 12, Helen now lives in the Atlanta area. She holds degrees in Secondary Education (English/Language Arts) and Higher Education Leadership, and currently serves as an Academic Advisement Coordinator at Chattahoochee Technical College.
Her leadership, education background, and commitment to advocacy help strengthen TSF’s efforts to ensure Turner syndrome is better understood on a broader spectrum.
Nicole Topp — Star Sisters Coordinator
Nicole’s work with TSF’s Star Sisters program represents the power of peer support. As a leader, she helps foster a space where women with Turner syndrome can connect, support one another, and build meaningful community.
“I am very proud of working with the Star Sisters group, and seeing everyone supporting one another creating an incredible community together. It means a lot to me to volunteer with TSF, because it allows me to be closer with my community and not feel alone.”
Nicole lives in Rhode Island and is a 38-year-old woman with Turner syndrome. She holds a Bachelor’s degree in Political Science and works one-on-one with students on the autism spectrum, supporting them in achieving their personal and academic goals.
Her dedication reminds us that community is essential to all women and girls with Turner syndrome, as well as their caregivers.
Thank You to Every TSF Volunteer
Whether writing blogs, answering client calls, editing videos, designing graphics, advocating with legislators, fundraising, or supporting peers, TSF volunteers are the foundation of everything we do.
In 2025, your generosity of time, talent, and lived experience has helped ensure that no one affected by Turner syndrome has to navigate it alone.
From all of us at TSF: Thank you for being the heart of this mission.
If you would like to get involved with TSF as a volunteer, submit your Volunteer Application today!
THE 1938 COLLECTIVE IS MORE THAN A GIVING PROGRAM — IT’S A CIRCLE OF BELIEVERS STANDING FOR TURNER SYNDROME. YOUR GIFT OF ANY AMOUNT ENSURES THAT WE CAN CONTINUE TO HELP ALL PEOPLE.
JOIN US IN CHANGING LIVES EVERY SINGLE MONTH.
BECOME A MONTHLY MEMBER
Designed by Gerely Caba.
© Turner Syndrome Foundation, 2025
