Learn Dr. Mary Gwyn Roper’s story on how she was affected by TS, why she started working with TSF, her hopes for the future, and how you can help the TS community! A Doctor’s TS Story Dr. Roper was born in Knoxville, Tennessee. She was diagnosed with Turner Syndrome when she was 2 years old, […]
A Doctor’s Turner Syndrome Story Read More
Sara is a woman who lost her second child in utero due to Turner Syndrome (TS). In this post, she shares her story of loss, acceptance, and perseverance in coping with miscarriage. While miscarriages occurs in up to 99% of every pregnancy in which TS is present, each pregnancy is different. This is one woman’s
Coping with Miscarriage: Sara’s Story Read More
In this post, Katie, a woman who has Turner Syndrome (TS), talks about her experience with growth hormone and estrogen therapies. Her experience may not be the same as that of others, but may shed some light on the treatments which are common for patients who have TS. My Diagnosis My name is Katie, and
My Hormone Therapy Experience Read More
Lori Kobular has adult daughter, Julie, with Turner Syndrome (TS). Lori is a Turner Syndrome Foundation (TSF) board member and serves on the volunteer Awareness Committee. In this post, she answers some questions about her experience parenting a daughter with TS. This is only one parent’s experience with TS and does not reflect every person’s
My Daughter’s Turner Syndrome Journey: Q&A with a Mother Read More
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses her experience with Hormone Replacement Therapy. Hormones are your body’s chemical messengers. They travel in your bloodstream to tissues or organs to help them do their
Loud and Clear: My Hormone Replacement Therapy Journey Read More
Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki shares how her group successfully advocated in the state of Nebraska. Renee’s Turner Syndrome Advocacy
A Turner Syndrome Advocacy Success Story Read More
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses recognizing your beauty in a world that often focuses on the external. You’ve got to get up every morning with a smile on your face,
Recognizing Your Beauty Read More
It’s National Volunteer Month! Today we are highlighting Leisa Jenkins, mother of a girl who has Turner Syndrome, coach, author of 10x Your Inner Rockstar, and a TSF volunteer. As a volunteer, Leisa is a member of our Engaged Volunteer Committee and serves as the Star Sisters Group Mentor. She is there to offer support,
Leisa’s Passion for Helping Others Read More
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