Subscribe to our blog One of the most challenging aspects of Turner Syndrome (TS) is knowing when and how to approach the TS diagnosis conversation. Whether you are a parent/caregiver or patient, read on to learn more about when and how to have this important conversation. The Importance of Approaching the TS Diagnosis Conversation We […]
How To Open a Conversation About Turner Syndrome Diagnosis Read More
Subscribe to our blog “Let us choose for ourselves our path in life, and let us try to strew that path with flowers.” – Emilie du Chatelet, mathematician, physicist, and author Clinical research indicates that there are differences in learning abilities, including challenges in math and spatial skills, among individuals with TS. However, with early
Connection Between Turner Syndrome and Math Skills Read More
Turner Syndrome (TS) and other chronic conditions can become a large part of one’s identity, but the Turner Syndrome Foundation (TSF wants) individuals with TS to know that they are so much more than their diagnosis! How Labels Work Labels reflect how people think about others and themselves. They not only influence how a personal
In the webinar about the Cognitive Impact of Turner Syndrome, Dr. O’Desky discusses different games and activities an individual may do to strengthen their cognitive abilities. Individuals of all ages can use these tools, but it is important to begin the intervention as early as possible. If you notice your child having challenges with attention,
Games to Develop Cognitive Skills Read More
We asked our Star Sisters, a private Facebook group for individuals with Turner Syndrome (TS), for their insights on education. Read below to see what three ladies with TS had to say about their educational journey, their biggest challenges, and what they are most proud of. TS can present educational challenges, but people with the
Insights on Education: Ask Star Sisters Read More
Subscribe to our blog Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP) and what to do if the plan’s results are not satisfactory.
How To Advocate for Your Child in School: Navigating 504 Plans and IEPs Read More
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on her educational journey and the things she celebrates in life. I completed my Ph.D. at the University of Texas at Austin in fall of 2003.
In Celebration of Education Read More
This month, we are discussing all kinds of advocacy, which includes self-advocacy. To be a self-advocate means to understand your needs and speak up for them until you get what you need. Sometimes, this can be intimidating, like if you’re talking to a doctor or your boss about an unmet need or accommodation. Self-advocacy can
Self-Advocacy Tips for Healthcare, School, and Work Read More
A common challenge for women and teenagers who have Turner Syndrome is obtaining a Driver’s License. Cognitive issues related to visual-spatial awareness and executive functioning are often associated with TS. These challenges can make it difficult to learn to drive. While some women are not able to get their driver’s license, many women do despite
Tips for Obtaining your Driver’s License Read More
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