As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, we present the story of Olivia was diagnosed in utero. She discusses how she has navigated life with TS and shares advice for patients and parents. Note: As always, everyone’s journey […]
My Story: Advice for Patients and Parents Read More
We asked our Star Sisters, a private Facebook group for individuals with Turner Syndrome (TS), for their insights on education. Read below to see what three ladies with TS had to say about their educational journey, their biggest challenges, and what they are most proud of. TS can present educational challenges, but people with the
Insights on Education: Ask Star Sisters Read More
Subscribe to our blog Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP) and what to do if the plan’s results are not satisfactory.
How To Advocate for Your Child in School: Navigating 504 Plans and IEPs Read More
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on her educational journey and the things she celebrates in life. I completed my Ph.D. at the University of Texas at Austin in fall of 2003.
In Celebration of Education Read More
Sharing your child’s Turner Syndrome (TS) diagnosis can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They have long been advocates for TS awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a child with the condition. We asked them to
Sharing Your Child’s Turner Syndrome Diagnosis: One Family’s Perspective Read More
This month, we are discussing all kinds of advocacy, which includes self-advocacy. To be a self-advocate means to understand your needs and speak up for them until you get what you need. Sometimes, this can be intimidating, like if you’re talking to a doctor or your boss about an unmet need or accommodation. Self-advocacy can
Self-Advocacy Tips for Healthcare, School, and Work Read More
A common challenge for women and teenagers who have Turner Syndrome is obtaining a Driver’s License. Cognitive issues related to visual-spatial awareness and executive functioning are often associated with TS. These challenges can make it difficult to learn to drive. While some women are not able to get their driver’s license, many women do despite
Tips for Obtaining your Driver’s License Read More
Every day two or more girls with TS are born in the United States. Resources are available to help these young scholars succeed.
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