As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents or caregivers. In this post, Eileen, a 44-year-old woman who was diagnosed with TS at 16 years old, shares her story and reminds us that women with TS are unstoppable! Note: Everyone’s journey with […]
My Story: We Are Unstoppable Read More
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she shares the meaning behind her “word of the year.” Health – 1. a: the condition of being sound in body, mind, or spirit. b: the general
My 2021 Word of the Year: Health Read More
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, we present the story of Olivia was diagnosed in utero. She discusses how she has navigated life with TS and shares advice for patients and parents. Note: As always, everyone’s journey
My Story: Advice for Patients and Parents Read More
Learn Dr. Mary Gwyn Roper’s story on how she was affected by TS, why she started working with TSF, her hopes for the future, and how you can help the TS community! A Doctor’s TS Story Dr. Roper was born in Knoxville, Tennessee. She was diagnosed with Turner Syndrome when she was 2 years old,
A Doctor’s Turner Syndrome Story Read More
Sara is a woman who lost her second child in utero due to Turner Syndrome (TS). In this post, she shares her story of loss, acceptance, and perseverance in coping with miscarriage. While miscarriages occurs in up to 99% of every pregnancy in which TS is present, each pregnancy is different. This is one woman’s
Coping with Miscarriage: Sara’s Story Read More
Sharing your child’s Turner Syndrome (TS) diagnosis can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They have long been advocates for TS awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a child with the condition. We asked them to
Sharing Your Child’s Turner Syndrome Diagnosis: One Family’s Perspective Read More
In this post, Katie, a woman who has Turner Syndrome (TS), talks about her experience with growth hormone and estrogen therapies. Her experience may not be the same as that of others, but may shed some light on the treatments which are common for patients who have TS. My Diagnosis My name is Katie, and
My Hormone Therapy Experience Read More
Lori Kobular has adult daughter, Julie, with Turner Syndrome (TS). Lori is a Turner Syndrome Foundation (TSF) board member and serves on the volunteer Awareness Committee. In this post, she answers some questions about her experience parenting a daughter with TS. This is only one parent’s experience with TS and does not reflect every person’s
My Daughter’s Turner Syndrome Journey: Q&A with a Mother Read More
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