Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki shares how her group successfully advocated in the state of Nebraska. Renee’s Turner Syndrome Advocacy […]
A Turner Syndrome Advocacy Success Story Read More
It’s National Volunteer Month! Today we are highlighting Leisa Jenkins, mother of a girl who has Turner Syndrome, coach, author of 10x Your Inner Rockstar, and a TSF volunteer. As a volunteer, Leisa is a member of our Engaged Volunteer Committee and serves as the Star Sisters Group Mentor. She is there to offer support,
Leisa’s Passion for Helping Others Read More
Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome after aortic dissection surgery. Life Post-Surgery Hello again! I hope everyone is doing well and staying safe during these most challenging times. This month, I would like to look
My Life After Aortic Dissection Surgery Read More
In our second Twitter chat for Turner Syndrome awareness, we talked about health concerns. It was insightful to hear so many perspectives on the condition. As we learned, TS affects every woman and girl differently. There are some more common symptoms such as short stature, infertility, and cardiac issues, while even these are quite varied.
Perspectives on Health and Turner Syndrome Read More
by Katie Steedly Curling, PhD, Writer & Guest Blogger for TSF Sometimes in our rush to think about awareness as big events and campaigns, we forget that awareness is, above all, personal. Connection is the heart of Turner Syndrome awareness. Communication is the heart of connection. Talking and writing are the heart of communication. Awareness
An Awareness Success Story Read More
I would like to start by thanking you for taking the time to read my story. I hope you will gain knowledge and comfort from my experiences with Turners. My name is Christina Quint and I was diagnosed with Turner Syndrome at birth, thirty years ago. I was blessed with parents who have helped and
Christina’s Turner Syndrome Story Read More
Subscribe to our blog Laura Fasciano, Dawn Petr, and Lori Kobular, are friends, mothers, volunteers, and TSF Board Members. But they weren’t always united over the common goal of making a difference for all women and girls affected by TS. Turner Syndrome, a condition often seen as rare and random, influenced on each of their lives in a major
Three Women Connected by TS Read More
Subscribe to our blog Kourtney’s Story “My pregnancy with Natalie was my third pregnancy. After two fetal loses, the doctors were watching me closely and considered me high risk. We were terrified to get our hopes up that this pregnancy would be successful. At 10 weeks we had an ultrasound and they found a cystic
From Heartbroken to Hopeful Read More
Subscribe to our blog Ivy was diagnosed with Turner Syndrome at 16 weeks in utero. The doctors gave us no hope that she would live. But 20 weeks later, our little girl beat the 1% odds and came screaming into this world and she’s been a fighter ever since. After open heart surgery and 5
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