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Turner Syndrome Foundation
Turner Syndrome Foundation

Advocacy Awareness Education Research

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Turner Syndrome Foundation
Turner Syndrome Foundation

Advocacy Awareness Education Research

  • HOME
    • PATIENT WELCOME
    • PATIENT REGISTRY
    • WHO WE ARE
    • OUR VISION
    • OUR MISSION
    • BLOG
    • NEWSLETTER
    • CONTACT US
  • About TS
    • WHAT IS TURNER SYNDROME?
    • TREATMENT
    • LEARNING & EDUCATION
    • LIFE STAGES
    • RESEARCH
    • RESOURCES
    • WEBINARS
  • Get Involved
    • VOLUNTEER
    • GET INVOLVED with TSF
    • ADVOCATE For Turner Syndrome
    • Ways to Take Action
    • Online Fundraising
    • Individual Volunteer
  • Support Us
    • Ways to Give
    • 1938 Collective Monthly Giving
    • Partnerships
  • Events
    • Upcoming Events
    • Fundraising Events
  • PROVIDERS
  • HOME
    • PATIENT WELCOME
    • PATIENT REGISTRY
    • WHO WE ARE
    • OUR VISION
    • OUR MISSION
    • BLOG
    • NEWSLETTER
    • CONTACT US
  • About TS
    • WHAT IS TURNER SYNDROME?
    • TREATMENT
    • LEARNING & EDUCATION
    • LIFE STAGES
    • RESEARCH
    • RESOURCES
    • WEBINARS
  • Get Involved
    • VOLUNTEER
    • GET INVOLVED with TSF
    • ADVOCATE For Turner Syndrome
    • Ways to Take Action
    • Online Fundraising
    • Individual Volunteer
  • Support Us
    • Ways to Give
    • 1938 Collective Monthly Giving
    • Partnerships
  • Events
    • Upcoming Events
    • Fundraising Events
  • PROVIDERS

  • HOME
    • PATIENT WELCOME
    • PATIENT REGISTRY
    • WHO WE ARE
    • OUR VISION
    • OUR MISSION
    • BLOG
    • NEWSLETTER
    • CONTACT US
  • About TS
    • WHAT IS TURNER SYNDROME?
    • TREATMENT
    • LEARNING & EDUCATION
    • LIFE STAGES
    • RESEARCH
    • RESOURCES
    • WEBINARS
  • Get Involved
    • VOLUNTEER
    • GET INVOLVED with TSF
    • ADVOCATE For Turner Syndrome
    • Ways to Take Action
    • Online Fundraising
    • Individual Volunteer
  • Support Us
    • Ways to Give
    • 1938 Collective Monthly Giving
    • Partnerships
  • Events
    • Upcoming Events
    • Fundraising Events
  • PROVIDERS

Guidelines & Resources

REQUEST Guidelines Summary
NIH U.S. Clinical Care guidelines, 2007
Int'l Clinical Care Guidelines -2024
Int'l Clinical Care Guidelines - 2017
FInd a Doctor
Emergency Contact Card
Webinars
Specialized Centers
En Español
Four Year Colleges for LD
Summer Camps
24/7 Caregiver
Prenatal Testing & Information for Expectant Parents
PATIENT HANDBOOK
Common Symptoms
TS Know your body
Star Sisters
Self Advocacy
TSF Teacher's GUide
NonVerbal LD a Teacher's GUide
Nonverbal LD Middle High School
Organization Links
Youth Video Meet Tina
Adult Video Meet Allison
TSF Diaries Meet Sam
TSF Diaries Meet Emma
TSF Diaries Meet Suzanne
TSF Diaries Meet Susan
TSF Diaries Meet Kym
TSF Diaries Meet Jean
CMS Video Panel Discussion
Mother & Adoptive Daughter
Teen Acceptance

Connect

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  • Share a Resource
  • Become a Supporter
  • Webinar Presenter Proposal Submission
  • Patient & Caregiver Registry
  • Policies
  • Contact Us
  • Press Releases

Hours & Info

  • P. O. Box 726, Holmdel, NJ 07733:
  • 1 Bethany Rd, Bldg 1, Ste 5, Hazlet, NJ 07730
  • 800-594-4585
  • info@tsfusa.org
  • M-F, 9am-5pm EST
  • SMS Chat #732-782-5575

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Upcoming Events

Jan 14
January 14 - March 31

Study – Health in Women with Turner Syndrome

Free
Online
Feb 28
Featured February 28 @ 9:00 am - March 15 @ 11:59 pm EST

Card Auction 2026

Online
View Calendar
Great NonProfits

1938 Collective

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