Emergency Contact Card

The Turner Syndrome Foundation’s Emergency Contact Card allows for peace of mind. Patients and caregivers carry a medical identification card that provides information that can speak for them if ever there is a medical emergency. With an identification card in hand, a healthcare professional aware of this condition can direct care strategies and possibly save lives.

Critical Information You Must Know

There are several inherent risks associated with having Turner Syndrome including cardiac problems with the associated blood pressure issues, diabetes and kidney malformations. The Emergency Contact Card (ECC) can provide invaluable information to emergency responders.

Individuals with Turner Syndrome are at a higher risk than the average population for possible life-threatening cardiac events especially aortic dissection (a tear or rupture between layers of the aortic wall).  It is important for all women to know the signs of aortic dissection and what to do in the event that they may experience unexplained chest, back, or abdominal pain.

What are the symptoms

Symptoms of an aortic dissection can be variable, relatively minor, and nonspecific. Chest pain is the most common symptom, but pain can also occur in the back/or abdomen. The pain may be described as severe or vague, constant or intermittent, migratory, tearing, tightness, or fullness.

What can you do?

Be sure that you and or your family member are prepared to:

    1. Advocate for yourself by telling emergency department staff that you have Turner Syndrome and the increased risk of aortic dissection.
    2. Communicate effectively with doctors and nurses in the emergency department.
    3. Show them your emergency alert card.
    4. Emergency departments tend to be very busy and the knowledge about Turner Syndrome can vary.  Do not be shy about telling doctors and nurses what you know about your condition.
    5. In an emergency pick up the telephone and dial 9-1-1.

Ordering Information for the Emergency Alert Card 

An Emergency Contact Card (ECC) can provide important information in times of an emergency or can be provide an added sense of security when traveling. This program is NOT associated with any alert program. In times of a medical emergency, pick up the telephone and dial 9-1-1. The plastic wallet-sized contact card has Emergency Contact Card clearly identified at the top of the card for easy visibility in your wallet or handbag.  All cardholder information should be entered carefully. Character space is limited – abbreviate as necessary. Provide a bill to and ship to address. The information will be entered exactly as provided. All sales are final. No refunds. Please allow 2 – 3 weeks for delivery.

First you will order the card. Secondly, you will receive the card information form to complete. 

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