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Turner Syndrome Foundation
Turner Syndrome Foundation

Advocacy Awareness Education Research

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Turner Syndrome Foundation
Turner Syndrome Foundation

Advocacy Awareness Education Research

  • PATIENT WELCOME
  • HOME
    • PATIENT REGISTRY
    • WHO WE ARE
    • OUR VISION
    • OUR MISSION
    • BLOG
    • NEWSLETTER
    • CONTACT US
  • About TS
    • WHAT IS TURNER SYNDROME?
    • TREATMENT
    • LEARNING & EDUCATION
    • LIFE STAGES
    • RESEARCH
    • RESOURCES
    • WEBINARS
  • Get Involved
    • VOLUNTEER
    • GET INVOLVED with TSF
    • ADVOCATE For Turner Syndrome
    • Ways to Take Action
    • Online Fundraising
    • Individual Volunteer
  • Support Us
    • Ways to Give
    • 1938 Collective Monthly Giving
    • Partnerships
  • Events
    • Upcoming Events
    • Fundraising Events
    • Plan an Event
  • PROVIDERS
  • PATIENT WELCOME
  • HOME
    • PATIENT REGISTRY
    • WHO WE ARE
    • OUR VISION
    • OUR MISSION
    • BLOG
    • NEWSLETTER
    • CONTACT US
  • About TS
    • WHAT IS TURNER SYNDROME?
    • TREATMENT
    • LEARNING & EDUCATION
    • LIFE STAGES
    • RESEARCH
    • RESOURCES
    • WEBINARS
  • Get Involved
    • VOLUNTEER
    • GET INVOLVED with TSF
    • ADVOCATE For Turner Syndrome
    • Ways to Take Action
    • Online Fundraising
    • Individual Volunteer
  • Support Us
    • Ways to Give
    • 1938 Collective Monthly Giving
    • Partnerships
  • Events
    • Upcoming Events
    • Fundraising Events
    • Plan an Event
  • PROVIDERS

  • PATIENT WELCOME
  • HOME
    • PATIENT REGISTRY
    • WHO WE ARE
    • OUR VISION
    • OUR MISSION
    • BLOG
    • NEWSLETTER
    • CONTACT US
  • About TS
    • WHAT IS TURNER SYNDROME?
    • TREATMENT
    • LEARNING & EDUCATION
    • LIFE STAGES
    • RESEARCH
    • RESOURCES
    • WEBINARS
  • Get Involved
    • VOLUNTEER
    • GET INVOLVED with TSF
    • ADVOCATE For Turner Syndrome
    • Ways to Take Action
    • Online Fundraising
    • Individual Volunteer
  • Support Us
    • Ways to Give
    • 1938 Collective Monthly Giving
    • Partnerships
  • Events
    • Upcoming Events
    • Fundraising Events
    • Plan an Event
  • PROVIDERS

Guidelines & Resources

REQUEST Guidelines Summary
NIH U.S. Clinical Care guidelines, 2007
Int'l Clinical Care Guidelines -2024
Int'l Clinical Care Guidelines - 2017
FInd a Doctor
Emergency Contact Card
Webinars
Specialized Centers
En Español
Four Year Colleges for LD
Summer Camps
24/7 Caregiver
Prenatal Testing & Information for Expectant Parents
PATIENT HANDBOOK
Common Symptoms
TS Know your body
Star Sisters
Self Advocacy
TSF Teacher's GUide
NonVerbal LD a Teacher's GUide
Nonverbal LD Middle High School
Organization Links
Youth Video Meet Tina
Adult Video Meet Allison
TSF Diaries Meet Sam
TSF Diaries Meet Emma
TSF Diaries Meet Suzanne
TSF Diaries Meet Susan
TSF Diaries Meet Kym
TSF Diaries Meet Jean
CMS Video Panel Discussion
Mother & Adoptive Daughter
Teen Acceptance

Connect

  • Share a Resource
  • Become a Supporter
  • Webinar Presenter Proposal Submission
  • Patient & Caregiver Registry
  • Policies
  • Contact Us
  • Press Releases
  • Share a Resource
  • Become a Supporter
  • Webinar Presenter Proposal Submission
  • Patient & Caregiver Registry
  • Policies
  • Contact Us
  • Press Releases

Hours & Info

  • P. O. Box 726, Holmdel, NJ 07733:
  • 1 Bethany Rd, Bldg 1, Ste 5, Hazlet, NJ 07730
  • 800-594-4585
  • info@tsfusa.org
  • M-F, 9am-5pm EST
  • SMS Chat #732-782-5575

get started

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Upcoming Events

Apr 1
April 1 - August 31

Study for Patient and Caregiver Perspectives of Genetics Care

Free
Online
Apr 6
April 6, 2026 - April 6, 2027

Send a Greeting Card

$5.00
Online
View Calendar

1938 Collective

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🇺🇸
TURNER SYNDROME FOUNDATION - By providing your phone number, you agree to receive promotional and marketing messages, notifications, and customer service communications from TURNER SYNDROME FOUNDATION. Message and data rates may apply. Consent is not a condition of purchase. Message frequency varies. Text HELP for help. Text STOP to cancel. See terms
Connection to Turner syndrome *
Your interests: *

Subscribe to our Newsletter

* indicates required
🇺🇸
TURNER SYNDROME FOUNDATION - By providing your phone number, you agree to receive promotional and marketing messages, notifications, and customer service communications from TURNER SYNDROME FOUNDATION. Message and data rates may apply. Consent is not a condition of purchase. Message frequency varies. Text HELP for help. Text STOP to cancel. See terms, See Privacy Policy
Connection to Turner syndrome *
Your interests: *

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