Turner Syndrome FoundationSince Turner syndrome was first described in 1938, pediatric endocrinologists, cardiologists and other specialists have done extensive research to better understand the disorder and improve quality of life for patients. Many advancements in the treatment of the disease have been made; at present, for example, growth hormone therapy can increase final adult height in women with Turner syndrome…Cardiovascular problems in Turner syndrome are a major concern | Endocrine Today
MRI – According to Paul H. Saenger, the sensitivity of MRI in the detection of cardiovascular problems in patients with Turner Syndrome is superior to echocardiography. “Therefore,” Saenger said, “an MRI is the method of choice for all patients past the age of 10 years.”
-Endocrine Today news article above
The Turner syndrome Foundation is deeply committed to saving lives. The TSF Council on Cardiology assembled to improve cardiovascular diagnostics, management and surgical interventions for patients with Turner Syndrome. An educational activity, ‘Strategies for Improving the Management of Cardiovascular Issues Seen with Turner Syndrome’ for medical professionals. This activity was created by professionals volunteers and generously funded by charitable donations.
The Turner Syndrome Foundation’s Emergency Contact Card has been designed to allow for an individual’s peace of mind. Patients and caregivers who carry a medical identification card can feel they have a layer of protection to shield from mishandling should there be aq medical emergency. The ECC will provide first responders with critical medical information. With an identification card in hand, a healthcare professional aware of this condition can direct care strategies and possibly save lives.
The Heart in Turner Syndrome Printable PDF
Leo Lopez MD
Director of Pediatric Cardiac Noninvasive Imaging
Children’s Hospital at Montefiore
Associate Professor of Clinical Pediatrics
Albert Einstein College of Medicine
To read more about cardiovascular health, scroll to page(s) G25-G31 in the Clinical Guidelines found here: https://turnersyndromefoundation.org/wp-content/uploads/2017/07/Clinical-Practice-Guideslines-International-G1-2017.full_.pdf
American Heart Association Statement- Cardiovascular Health in Turner Syndrome
