White Papers

  • White papers provide expert findings to issues related to Turner Syndrome at every stage of life.

Adolescent 

Adult Care 

Autoimmune 

Bone Health

Books

New Turner Syndrome Guide for Families, Patricia Reiser, CFNP and Marsha Davenport, MD

Cancer Incidence

  • Cancer incidence in women with Turner syndrome in Great Britain: a national cohort study https://www.ncbi.nlm.nih.gov/pubmed/18282803

Cardiovascular

Centers 

Chromosome 

Clinical Care Management Guidelines

Developmental Milestones 

Early Childhood 

Education

    • IDEA ACT Information about the regulations of the Individuals with Disabilities Education Act site was created to provide a one-stop shop for resources related to IDEA and its implementing regulations.
    • USDOE Publications Order free U.S.D.O.E. publications
      U.S. Dept. of Education Clarifies Schools’ Obligation to Provide Equal Opportunity to Students with Disabilities to Participate in Extracurricular Activities

Endocrinology 

Growth/ Hormones 

Hearing 

Reproductive Health

Plastic Surgery

Psycho-Social

Visuals

Other White Papers


MedlinePlus – Health information
GARD – Genetic and Rare Disease Information
NIH – National Institutes of Health Eunice Kennedy Shriver

PubMed 

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