As an advocacy organization we realize gaps exist in legislation and insurance coverage from state-to-state. Use your passion to advocate and help enact laws and policies that will make Turner Syndrome a top national priority. Advocates make a great impact by establishing relationship with elected officials and ensuring that women receive the optimal care they deserve for a better quality of life.
You CAN make a difference.
An advocate is an individual or group who act to publicly support or recommend a particular cause or policy. Advocacy for Turner Syndrome awareness & legislation is essential for the advancement of this cause!
Self-advocacy is the act of asserting ones rights and speaking up for yourself, making your own decisions about your own life, learning how to get information so that you can understand things that are of interest to you, finding out who will support you in your journey, knowing your rights and responsibilities, problem solving, listening and learning, reaching out to others when you need help and friendship, and learning about self-determination. (WrightsLaw.com) This mission is dedicated to supporting individuals in their quest for information & support.
The time is now to advocate for Turner Syndrome! Let us help you get started!