Advocating for Turner Syndrome

Why Advocate for Turner Syndrome?

As an advocacy organization, we realize that gaps exist in legislation and insurance coverage from state-to-state. You can use your passion to help enact laws and policies that will make Turner Syndrome a top national priority.  Advocates make a great impact by establishing relationships with elected officials and ensuring that women receive the optimal care they deserve for a better quality of life. You CAN make a difference.  

Individuals and Groups Unite for Advocacy

An advocate is an individual or group who act to publicly support or recommend a particular cause or policy, also called legislative advocacy. Another form of advocacy is public health advocacy, creating pathways for health awareness and resources everywhere.
Advocacy for Turner Syndrome awareness, legislation and public health is essential for the advancement of this cause!

Self-advocacy is the act of asserting ones rights and  speaking up for yourself, making your own decisions about your own life, learning how to get information so that you can understand things that are of interest to you, finding out who will support you in your journey, knowing your rights and responsibilities, problem solving, listening and learning, reaching out to others when you need help and friendship, and learning about self-determination. ( This mission is dedicated to supporting individuals in their  quest for information & support.

The time is now to advocate! Let us help you get started! 

How can I advocate for Turner Syndrome?

Good question! Advocacy is learned, so when you ask, ‘How can I advocate for Turner Syndrome?’, a response will be for you to consider what has motivated you. What is your call to action? Living with or caring for women’s health are both genuinely strong catalysts for activism. It is good to take a moment to assess your considerations; time commitment, skillset and influence that you will lend to this outreach. Advocacy is strategically organized and when individuals and groups of people work towards a common goal, it is most effective. Now that you understand that any one person or group can unite in advocacy, let us share more information with you about several types of opportunities.

    • Legislative Advocacy can include: Federal, State, County, Municipal jurisdictions. Where will YOU have the greatest impact?
    • Public Health Advocacy is an agenda to connect with Federal, State, County and municipalities. Where would YOU have the greatest impact?
    • Self-Advocacy is an empowerment of the girls, women and families to know their rights, obtain resources and most importantly possessing the knowledge and support to self-advocate. Where would YOU have the greatest need and impact?
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Support Turner Syndrome Awareness

February and every day awareness begins with you!