Health Department Advocacy

The responsibility of the Health Departments across the United States is to ensure the health and well-being of all Americans, by providing effective health and human services.

While there are many federal health agencies to ensure the health and well-being of Americans, it is the responsibility of state and local health departments to make sure that Americans in their region get access to the resources they need. As the needs and problems of each region can vary greatly across the country, it is the collective effort of all health departments that helps ensure the well-being of all Americans in this country as a whole.

The Turner Syndrome Foundation’s public health initiative would like to explore if state health departments in the United States are addressing the special needs of people with genetic disorders, specifically Turner Syndrome.

We invite your department to complete this brief assessment to help the Turner Syndrome Foundation:

•     Identify existing Turner syndrome information and resources within your state
•     Understand how residents are directed to appropriate services and specialists
•     Identify opportunities to improve public health information and professional awareness
•     Share credible Turner syndrome educational and referral resources
•     Establish a point of contact for future information and collaboration

This is not an evaluation of your department. Our goal is to identify opportunities to work collaboratively so that individuals and families affected by Turner syndrome can more easily find accurate information and appropriate support.

Thank you for helping improve awareness, access, and lifelong health outcomes for girls and women with Turner syndrome.