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We at the Turner Syndrome Foundation understand that babies born with Turner Syndrome require a lifetime of specialized care beyond the pediatric setting. Obstacles often impede an early diagnosis for girls to receive critical health screenings and timely, life-altering, interventions. We see a void in transition from pediatric to adult care, and its effects on those with the disorder and their community. Significant issues abound with finding knowledgeable educators and providers for all stages of life.

The Foundation’s advocacy efforts identify these gaps and give voice to leaders who can make a difference.  The vision to improve the understanding of TS and to render support for women and children living with TS is made possible by advancing communications and inspiring relevant interest in this women’s health issue.

Turner Syndrome affects 1 in 2,000 females.  We can help.

Mission Statement:

The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and facilitate education programs that increase professional awareness and enhance medical care of those affected by Turner syndrome.   Early diagnosis and comprehensive treatments over the lifespan may lead to a brighter and healthier future for all young girls and women with Turner syndrome. TSF is a registered 501(c)(3) nonprofit organization

“First a baby, soon a growing child, and finally a woman, our efforts must transcend the Turner Syndrome life span.”


The Foundation is governed by a volunteer Board of Directors and is advised by a volunteer Medical Board. A few individuals with subject expertise serve on an advisory council. The Executive Director ensures advancement of the Foundation’s programmatic objectives, development and fundraising goals, and manages all staff and volunteer leaders.


Get to know the TSF:
Read TSF Annual Report
Board of Directors
Medical & Legal Advisory Board
Professional Initiatives
Staff & Volunteers

The Foundation relies on a considerable body of volunteers to execute many of the programs and services we provide. This enables us to be better stewards of our donors’ gifts. Time and talent are needed for ongoing or short-term assignments. Learn how you can apply to volunteer, participate, or lead a program initiative as an individual, community or professional in a capacity that best suits your interest and ability.
Learn how you can GET INVOLVED

Governance and Reporting

The Turner Syndrome Foundation is guided by standard practices to maintain fiduciary responsibility and transparency to its donors. Information is provided upon request. For a copy of the Turner Syndrome Foundation’s by-laws and articles of incorporation, please write to us: Turner Syndrome Foundation, PO Box 726, Holmdel, NJ 07733 Learn about TSF Policies


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