Did You Know?
Each journey is unique and often complicated.  Patients seek answers and providers and educators need impactful resources and support to help these young scholars. New discoveries through research is the answer.

A Guide for Teachers: Turner Syndrome in a Classroom Setting
Statistically, in 1 out of every 160 classrooms there is a girl with Turner Syndrome. This guide will help teachers Identify and understand cognitive strengths and weaknesses, social functioning issues, and recommendations to create an optimal learning environment.

• Teachers:   Friendly and open communications provide a pathway to academic success through collaborative support from parent and teacher.
• Social Worker: Mediates learner, staff, and family team needs to create a working plan for success.
• Administrators: An informed faculty enables an optimal learning environments and monitors progress through all phases of learning.
• School Nurses: Girls at 5% or below normal height along with other possible indications are recommended for screening for Turner Syndrome.
• College bound students: 4 Year Colleges with Structured Proactive LD Support Programs

Be a Champion in Education

Education professionals have the power to influence every step of a Turner Syndrome girl’s journey, from early childhood through adolescence. Be our partner in caring by becoming a member today. Teachers, social workers, administrators, school nurses, and professors are all invited to join.

Special Education Committee is Accepting Applications

The Education Committee is accepting applications from credentialed education professionals to join the effort of the Foundation to increase the understanding of Turner Syndrome in academic settings. Interested candidates should complete the Educator Membership Form as well as furnish a letter of interest.


A Social Worker’s Perspective



As we know from clinical experience, and extensive literature, to be included and accepted by teenage friends is probably the most important factor – after actual physical appearance – that contributes to self-esteem. Given the outright rejection related to delays in emotional development as well as short stature and dysmorphic facial features, it is not unusual for a girl with TS to proceed through her teenage years without ever experiencing a close and trusting friendship.  All too often, negative peer group judgments contribute to feelings of inferiority, which can last a lifetime.

The summer months present a respite for girls to overcome difficulties and to interact with other girls sharing the same genetic anomaly and concerns.  Summer recess provides an opportunity to gain independence and confidence from engaging in educational and social programs to foster new skills, friendships, and lasting memories.  Health specific sleep-a-way camps, day camps and learning centers offer counseling and enrichments critical to the social and psychological development of girls with this disorder. Get more info