Living With Turner Syndrome: Caring For Your Heart and Blood Vessels

Cardiovascular health is an important topic for the TS community as several concerns are more common in TS than in the general population. In this webinar, Dr. Prakash provides an overview of these concerns and the care guidelines to ensure early detection. After reviewing congenital heart and blood vessel problems that are more common in people with Turner syndrome, Dr. Prakash will discuss recommendations for screening and treatment of cardiovascular disease. Aortic dissection and heart disease affect many people who do not have TS. The principles in this presentation apply to many people in the non-TS general population who are living with heart and blood vessel conditions.

Topic Overview: 

What is aortic dissection, and why is it something that the TS community needs to be aware of?
What can patients do to be proactive about their heart health?
What monitoring and evaluations are recommended in the Clinical Care Guidelines?
What should be in an emergency action plan for people with TS?
If an aortic dissection does take place, what are the next steps for intervention?
How can patients can support TS/aortic dissection research?

Who Should Attend:
Patients, caregivers, allied health professionals, clinical researchers, health administration, policymakers, philanthropists

Webinar Link:
Check the email you provided to receive the webinar link.

Cost:
Free. Donations are appreciated.

About the Presenter:

Dr. Prakash is Professor of Internal Medicine at the University of Texas Health Science Center at Houston. He is the co-director of the Turner Syndrome Adult Comprehensive Care Center, directs the aortopathy clinic, and conducts collaborative research on bicuspid aortic valve and Turner syndrome.

Degree & Certifications:
MD, PhD Adult Congenital Heart Disease Adult Cardiovascular Disease Internal Medicine Echocardiography

Specialty & Area of Focus:
Siddharth Prakash has a Ph.D. in Molecular and Human Genetics from Baylor College of Medicine, where he also completed his residency in Internal Medicine and a fellowship in Cardiovascular Disease. He is board certified in cardiology, echocardiography, and adult congenital heart disease. Since 2011, Dr. Prakash has worked as the cardiologist in the Multidisciplinary Aortic and Vascular Disease Clinic at McGovern Medical School, a part of the University of Texas Health Science Center at Houston, where he specializes in medical therapy, imaging, and surveillance of patients with heritable aortic and vascular diseases. He is Professor of Internal Medicine and is co-director of the Turner Syndrome Adult Comprehensive Care Center, a multispecialty clinic that sees Turner syndrome patients from across the southwest region. He leads the national Turner Syndrome Research Registry and is chair of the Scientific Advisory Board of the Turner Syndrome Society of the United States. He also co-chairs the Collaborative Clinical Science working group of the GenTAC Alliance and is an investigator with the Montalcino Aortic Consortium. Dr. Prakash’s translational research focuses on the contribution of rare genetic variants to bicuspid aortic valve (BAV), the most common adult congenital heart defect. Dr. Prakash uses an innovative strategy to identify new candidate genes for BAV, based in part on the hypothesis that reduced dosage of genes on the X chromosome is responsible for sex differences in the prevalence of BAV and other congenital heart diseases. His team demonstrated that specific rare genetic variants predict complications of patients with BAV. Dr. Prakash has received funding from the National Science 1 Foundation, American Heart Association, National Institutes of Health, and the John Ritter Foundation for Aortic Health, which funded the first clinical trial of exercise in aortic dissection survivors led by Dr. Prakash.

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