Study for Patient and Caregiver Perspectives of Genetics Care
https://form.jotform.com/jsform/260985603229160
Free
17 events found.
Turner Syndrome Foundation
Events from this organizer
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Send a Greeting Card
OnlineGreeting cards. A handwritten note. A keepsake. A thoughtful gesture. Card designers have donated their original art to support TS. Cards are $5.00 100% of the proceeds support Turner syndrome. Don't buy a card from a box store. Give an orginal and make it be a gift of support! Buy one or many. Stock up […]
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Turner Syndrome Kindness Campaign
OnlineSend a Card and Spread Kindness The Turner Syndrome Kindness Campaign is dedicated to bringing back the joy and personal connection of handwritten mail. We are bringing back the joy of receiving a card. You can lift someone with a kind note to show that you care. Send a beautifully handmade card with a custom […]
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Film & Advocacy Opportunity: A Family Planning Survey
Onlinehttps://form.jotform.com/jsform/261775708718167
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Research Opportunity: Positive Prenatal Screening for Turner Syndrome
Onlinehttps://form.jotform.com/jsform/261825198793169
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Wings of Hope – Book Fundraiser
OnlineWings of Hope's Story Wings of Hope was created to honor the strength, resilience, and beauty of those living with Turner syndrome. This initiative accompanies the release of Wings of Hope, a deeply personal book that shares the journey of a mother and daughter navigating Turner syndrome through faith, perseverance, and purpose. Read or purchase […]
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Facebook Chat: TSF Campus Club Launch
OnlineJoin us for a live conversation on Facebook to discuss the Campus Life, Aug 27, 8pm ET. To participate, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences and engage with others in the […]
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BlueClaws vs Wilmington Blue Rocks
Jersey Shore BlueClaws 2 Stadium Way, Lakewood, NJ, United StatesTurner Syndrome Community Event 8/28 7:05 PM – Jersey Shore BlueClaws VS Wilmington Blue Rocks at ShoreTown Ballpark Lakewood, NJ 08701 Baseball and Turner Syndrome... As good as it gets! Join us at the BlueClaws Baseball Game on August 28th for the 2nd Turner Syndrome Foundation community event. The game starts at 7:05 pm. Tickets […]
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Star Sisters Monthly Meet Up Event
OnlineStar Sisters Monthly Meet-Up Event Be a Star Sister - Meet Others - Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join today […]
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TSF Campus Club Launch
OnlineThe Turner Syndrome Foundation Campus Club Initiative empowers college students to lead awareness, advocacy, and education efforts for Turner syndrome—an often underrecognized and underserved condition. Despite affecting approximately 1 in 2,000 females, Turner syndrome remains widely underdiagnosed, and many individuals lack access to resources and support. Campus clubs help bridge this gap by increasing […]
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Legislative Advocacy Meeting
OnlineLegislative Advocacy Working Group The Turner Syndrome Foundation's Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy, education, and community engagement, members help ensure that the voices of patients, families, caregivers, and healthcare professionals are […]
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Education Working Group
OnlineThe education working group will meet the first Monday of each month. The group is comprised of educators, administrators, and allied health professionals. https://form.jotform.com/jsform/240147016103137
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Club Ambassador Office Hours – Wednesdays
OnlineCampus Club Ambassador Office Hours Ready to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. Whether you're just getting started or preparing for your first event, these office hours provide an opportunity to ask […]
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Club Ambassador Office Hours – Thursdays
OnlineCampus Club Ambassador Office Hours Ready to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. Whether you're just getting started or preparing for your first event, these office hours provide an opportunity to ask […]
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NVLD and Navigating Emerging Adulthood
OnlineWE LEARN Webinar NVLD and navigating Emerging Adulthood Hosted by Turner Syndrome Foundation, Inc. Date: Thursday, October 8 Time: 8:00 PM EDT Format: Live Stream About This Event Join us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive […]
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TS Women in Medicine
This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger, BS, MHS, PA-C and Mary Gwyn Roper, MD, both active volunteers, leaders and professional members of the Foundation. The objective of this event is to […]
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Introducing NASCARR: A new partnership connecting researchers, families, TSF, and the NIH to advance research for X&Y Chromosome Variations
OnlineIntroducing NASCARR: A new partnership connecting researchers, families, TSF, and the NIH to advance research for X&Y Chromosome Variations Join us for an informative webinar introducing NASCARR and its potential to advance research and clinical trial readiness for Turner syndrome. With a combined 40+ years of experience in medicine and clinical research, including the […]
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