Study for Patient and Caregiver Perspectives of Genetics Care
https://form.jotform.com/jsform/260985603229160
https://form.jotform.com/jsform/260985603229160
Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. Card designers have donated their original art to support TS. Cards are $5.00 100% of the proceeds support Turner syndrome. Don't buy a card from a box store. Give an orginal and make it be a gift of support! Buy one or many. Stock up […]
https://form.jotform.com/jsform/261775708718167
https://form.jotform.com/jsform/261825198793169
This is not therapy, but a structured coaching program focused on turning goals into consistent action. Supporting the Turner Syndrome Foundation Enrollment in this special Turner syndrome cohort also creates a meaningful opportunity to support the Turner Syndrome Foundation. A portion of the service fee may be donated to TSF at the client's discretion. https://form.jotform.com/jsform/261816097341156
Growth Experiences July 15: 8-9pm Join us for a live conversation on Facebook to discuss experiences with growth in individuals with Turner syndrome. To participate, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences […]
Growth Charts for Children with Turner Syndrome in MyChart Join us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos, a large-scale dataset created through collaboration among leading […]
Star Sisters Monthly Meet-Up Event Be a Star Sister - Meet Others - Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join today […]
Legislative Advocacy Working Group The Turner Syndrome Foundation's Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy, education, and community engagement, members help ensure that the voices of patients, families, caregivers, and healthcare professionals are […]
Monday, August 10, 2026 | 8:00 PM ET Complimentary Live Webinar Every student deserves an educational environment where they are understood, supported, and empowered to succeed. Join the Turner Syndrome Foundation's Educating the Educator Initiative for an informative webinar designed to help educators, school psychologists, counselors, administrators, therapists, and families better understand the educational implications […]
WE LEARN Webinar NVLD and navigating Emerging Adulthood Hosted by Turner Syndrome Foundation, Inc. Date: Thursday, October 8 Time: 8:00 PM EDT Format: Live Stream About This Event Join us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive […]
This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger, BS, MHS, PA-C and Mary Gwyn Roper, MD, both active volunteers, leaders and professional members of the Foundation. The objective of this event is to […]