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  • Send a Greeting Card

    Online

    Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. Card designers have donated their original art to support TS.  Cards are $5.00 100% of the proceeds support Turner syndrome. Don't buy a card from a box store. Give an orginal and make it be a gift of support! Buy one or many. Stock up […]

    $5.00

  • Turner Syndrome Kindness Campaign

    Online

    Bringing Back Snail Mail The Turner Syndrome Kindness Campaign is dedicated to bringing back the joy and personal connection of handwritten mail. With just a $5 donation, you will have the opportunity to send a beautifully handmade card with a custom message that we will handwrite and mail to someone living with Turner syndrome. Whether […]

  • Star Sisters

    Star Sisters Monthly Meet Up Event

    Star Sisters Monthly Meet Up Event
    Online

    Star Sisters Monthly Meet-Up Event  Be a Star Sister - Meet Others - Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join today […]

  • Legislative Advocacy Meeting

    Legislative Advocacy Meeting
    Online

    Legislative Advocacy Working Group The Turner Syndrome Foundation's Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy, education, and community engagement, members help ensure that the voices of patients, families, caregivers, and healthcare professionals are […]

  • Education working group

    Education Working Group

    Education Working Group
    Online

    The education working group will meet the first Monday of each month. The group is comprised of educators, administrators, and allied health professionals. https://form.jotform.com/jsform/240147016103137

  • Turner Syndrome Women In Medicine

    TS Women in Medicine

    TS Women in Medicine

    This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger, BS, MHS, PA-C and Mary Gwyn Roper, MD, both active volunteers, leaders and professional members of the Foundation. The objective of this event is to […]

  • Facebook Chat: Growth Experiences

    Online

    Growth Experiences July 15: 8-9pm Join us for a live conversation on Facebook to discuss experiences with growth in individuals with Turner syndrome. To participate, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences […]

  • Summer Social at Liberty Lake, Bordentown, NJ

    Liberty Lake Picnic 1195 Florence Columbus Rd, Bordentown, NJ, United States

    Summer Fun with Friends! A Day of Connection, Nature, and Community Join the Turner Syndrome Foundation for a meaningful one-day retreat designed for girls, women, and families living with Turner syndrome. Set in a peaceful, nature-based environment, this experience offers something rare and powerful: the opportunity to connect with others who truly understand the journey. […]

  • Webinar – Growth Charts for Children with Turner Syndrome in MyChart

    Online

    Growth Charts for Children with Turner Syndrome in MyChart Join us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos, a large-scale dataset created through collaboration among leading […]

    Free

  • WE- NVLD and Navigating Emerging Adulthood

    Online

    WE LEARN Webinar NVLD and navigating Emerging Adulthood Hosted by Turner Syndrome Foundation, Inc. Date: Thursday, October 8 Time: 8:00 PM EDT Format: Live Stream About This Event Join us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive functioning […]

    Free