Adult women have already experienced the major developmental phases of living with Turner Syndrome. Women who understand TS are more likely to have positive outcomes.
Learn what you need to know:
It is never too late to gain control of your health. If you haven’t seen a doctor in years or are feeling a change in your health or emotions, it may be time to put yourself first and find providers who can help.
Finding a doctor for adult care of Turner Syndrome is not always easy.
Medical Team
Organizing your medical team is essential for a continuum of care. It is up to you to find providers that are a good match for you.
Commonly sought specialists include:
After you receive a referral, call the medical office and speak with the doctor or nurse practitioner to ask insightful questions, such as:
Cardiovascular health is a paramount health concern for women. It is recommended that a baseline MRI/MRA be completed. If you never had this test, speak with your doctor to schedule this important test.
In the absence of bicuspid aortic valve, or other significant disease at the initial screening, TTE or CMR should be performed every 10 years in adults or prior to anticipated pregnancy. 4.9 2017 guidelines
Consider protecting yourself by carrying an Emergency Contact Card on your person to alert others of your medical condition and risks.
We are always in search of knowledgeable adult care providers. If you have a recommendation, we would love to hear from you!
Refer a doctor who treats TS
Advocate for TS. There are many ways and reasons to GET INVOLVED. TS does not define you! Take action. We stand together with you to make a difference.
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13 and Market, St. Louis, MO
Anderson Point Park Small Picnic Shelter
Buffalo Wild Wings
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Cedars-Sinai Medical Center
Clarks Creek Greenway
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Harris Middle School
Hyatt Regency
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Los Angeles, CA
LSU Pete Maravich Assembly Center
McGovern Medical School in the University of Texas Medical Center
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Red Mill
Road Runner Sports
Secaucus Public Library
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Snyders Park, Fort Lauderdale, FL
SoulCycle
St. Joseph's Children's Hospital
The Brownstone
The Children’s Hospital at Montefiore
The Salted Rim
Times Square
Tupelo Honey
Turner Syndrome Foundation- NJ
UTH Health Houston
YMCA Camp Ockanickon
Ynot Italian Restaurant
Yo Factor
Zacharias Park
2023thu01jun8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
2023thu08jun8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
2023thu15jun8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
2023thu22jun8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger,
more
This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger, BS, MHS, PA-C and Mary Gwyn Roper, MD, both active volunteers, leaders and professional members of the Foundation. The objective of this event is to assemble TS women in medicine with a diverse range of specialties to learn more about the mission and contribute to the discussion about solutions on issues facing patients today.
This working group will learn about:
In this discussion, you will:
WE Learn is a Turner Syndrome Foundation educational learning activity.
Every TS WOMAN IN MEDICINE is encouraged to be a professional member and an active contributor to this working group.
(Tuesday) 8:00 pm - 9:30 pm EDT
Online
2023thu29jun8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
Theme: Organization by Organic Themes.
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