This photo is an example of Madeleung deformity
The skeleton provides mechanical support for an individuals structure and movement, protects vital organs, and controls mineral homeostasis. A healthy skeleton must be maintained by constant bone modeling to carry out these crucial functions throughout life. Bone remodeling involves the removal of old or damaged bone by bone resorption and the subsequent replacement of new bone formed by bone formation. Normal bone remodeling requires a tight coupling of bone resorption to bone formation to guarantee no alteration in bone mass or quality after each remodeling cycle.
Infants with TS have an increased risk of congenital hip dislocation, which may be associated with degenerative arthritis of the hips in older women. Approximately 10% of girls with TS develop scoliosis, most commonly during adolescence.
Congenital developmental dysplasia of the hip occurs more frequently in girls with Turner syndrome than in the general population. This contributes to the development of arthritis of the hips in older individuals. Girls with Turner syndrome also have an increased risk of scoliosis, over curviture of the over-curvature of the thoracic vertebrae, or swayback an overexagerated curve in the lower spine.
The small and retrognathic mandible may contribute to malocclusion and other dental abnormalities. An orthodontic examination should therefore be undertaken at 8–10 yr of age.
Learn more about DENTAL ISSUES
If craniofacial anomalies cause concern, consider plastic surgery for the neck, face, or ears before the child enters school or thereafter, as indicated. Some individuals with Turner syndrome have a tendency to form keloids, which must be taken into account when surgery is considered.
Young women with Turner syndrome did not incur fractures more frequently than those without the disease; however, fracture location differed between the two groups, according to study results. Halley M. Wasserman, MD, assistant professor at Cincinnati Children’s Medical Center… read more
In a 2019 publication, ‘Fracture rate in women with oestrogen deficiency – Comparison of Turner Syndrome and premature ovarian insufficiency, a EU study concluded that TS is not associated with an overall excess risk of bone fracture. The higher rate of fractures at major osteoporatic fracture sites may be secondary to other issues such as hearing impairment and thinning or abnormal bone remodeling. Bone remodeling is the natural process of cyclical rebuilding of bone structure. read more
There is a high incidence of osteoporosis—meaning thin or weak bones—in women with Turner syndrome. Osteoporosis leads to loss of height, curvature of the spine and increased bone fractures.
Learn more about OSTEOPOROSIS
Frequently Asked Questions (FAQ’s) are commonly asked questions asking for more information to support this subject. The answers to the questions are provided by professionals to assist you in sourcing accurate information. Every individual requires specialized care. Always refer to your medical provider for individualized care.
Clinical researchers document their findings in ‘white papers’. Here you will find clinical resources on this topic.
To read more about bone health, scroll to page(s) G39 in the Clinical Guidelines found here: https://turnersyndromefoundation.org/wp-content/uploads/2017/07/Clinical-Practice-Guideslines-International-G1-2017.full_.pdf
Event Type:
All
All
Advocacy
Community
Corporate
Education
Fundraiser
Fundraiser
Medical Professional
research
research
Team TSF
Virtual
State:
All
All
Arizona
California
Colorado
Delaware
Florida
Georgia
Illinois
Louisianna
Massachusetts
Missouri
Nebraska
Nebraska
Nevada
New Jersey
New York
North Carolina
Pennsylvania
Tennessee
Texas
Virginia
Virginia
Washington
Washington DC
Event Location:
All
All
13 and Market, St. Louis, MO
Anderson Point Park Small Picnic Shelter
Buffalo Wild Wings
Capitol Hill
Cedars-Sinai Medical Center
Clarks Creek Greenway
Eno River State Park
Harris Middle School
Hyatt Regency
Kiawah Island Golf Resort
Los Angeles, CA
LSU Pete Maravich Assembly Center
McGovern Medical School in the University of Texas Medical Center
Monmouth Park
Monmouth Park & Oceanfront Promenade
Munroe Meyer Institute
Online
Peltier Park
Red Bull Arena
Red Mill
Road Runner Sports
Secaucus Public Library
Snyders Park
Snyders Park, Fort Lauderdale, FL
SoulCycle
St. Joseph's Children's Hospital
The Brownstone
The Children’s Hospital at Montefiore
The Salted Rim
Times Square
Tupelo Honey
Turner Syndrome Foundation- NJ
UTH Health Houston
Virtually anywhere
YMCA Camp Ockanickon
Ynot Italian Restaurant
Yo Factor
Zacharias Park
Buy it Now! Holiday Cards TSF Fundraiser ➡️ --VIEW THE HOLIDAY GREETING CARDS Search by Holiday. Pick
➡️ –VIEW THE HOLIDAY GREETING CARDS
Search by Holiday. Pick a card. Donate! Only one card per transaction. Lori will contact you for mailing instructions. Yes, she will mail the card for you too! Happy holidays and thank you for supporting this great cause!
1 (Friday) 1:00 am - 31 (Sunday) 12:59 am
The Fundamentals of Financial Well Being - Participants of this webinar from the TS community have an opportunity to connect with experienced financial professionals and take some time out
more
The Fundamentals of Financial Well Being – Participants of this webinar from the TS community have an opportunity to connect with experienced financial professionals and take some time out of their week to learn about the basics of financial wellness. Being able to share even just one valuable piece of information could help someone and their family more than words can describe because what might be common financial knowledge to one person, could be a completely foreign concept to another. We want to be able to share our knowledge and help the community. Presented by: Paul Bacchioni
SIGN UP HERE FOR THE ZOOM LINK: https://wp.me/P8Q9YE-mAs
(Wednesday) 8:00 pm - 9:00 pm
Join the Advocacy Working Group to make real change in your community! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change.
Join the Advocacy Working Group to make real change in your community! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets regularly on the first Thursday evening at 8PM EDT.
(Thursday) 8:00 pm
ACTIVITY FOR EVERYONE! CREATE A TSF DISPLAY BOARD WITH LORI on Wednesday, December 20, 2023 8PM EDT COME ONE COME ALL... IT IS TIME TO MAKE A DISPLAY BOARD FOR TSAM! We will
more
ACTIVITY FOR EVERYONE!
CREATE A TSF DISPLAY BOARD WITH LORI on Wednesday, December 20, 2023 8PM EDT
COME ONE COME ALL… IT IS TIME TO MAKE A DISPLAY BOARD FOR TSAM!
We will meet on Zoom. Be sure to sign up and we’ll send you a shopping list so you can work along with us. We will also mail you materials to use on your board!
December display board for awareness month
Sign up here: https://turnersyndromefoundation.org/february-awareness-month-email-list-sign-up/
Awareness Committee will meet the third Wednesday of each month to rally, brainstorm and plan for awareness outreach and impact. If you would like to be part of the committee, please complete a volunteer application and let us know you wish to be part of the committee. If you have already submitted a volunteer application, email kho
lly@tsfusa.org to let her know that you would like to be part of the working committee. Link to Join: https://turnersyndromefoundation.org/volunteer_take_action/talent-application/
Why join this committee?
Raise awareness all year long and celebrate with us each and every February. Why? Because it is Awareness Month, of course!
Thank you to everyone who is part of the awareness committee. We are so glad that you are here!
Questions? Contact nwhitner@tsfusa.org or call 800-594-4585
(Wednesday) 8:00 pm - 9:00 pm
Join Nicole and friends for Holiday Party and a night of conversation, building connections, sharing stories about your favorite books together with friends! Socialize and have fun being a Star
more
Join Nicole and friends for Holiday Party and a night of conversation, building connections, sharing stories about your favorite books together with friends! Socialize and have fun being a Star Sister!
What you’ll need: Computer screen and wifi
Being a Star Sister is a way to connect with others in the Turner syndrome community to share honest experiences and form a sisterhood of positivity. This is an opportunity to raise awareness while receiving support. All meet-ups and events occur online – so anyone personally affected by TS, almost anywhere can participate!
Star Sister’s enjoy these benefits offered freely to all who join.
If you are new to TSF and wish to join Star Sisters, sign up here: https://turnersyndromefoundation.org/living/star-sisters/star-sisters-application/
The meeting link will be sent to you along with reminders for monthly meetups.
(Friday) 8:00 pm - 10:00 pm
Theme: Organization by Organic Themes.
©2023 Copyright Turner Syndrome Foundation - All rights Reserved.