This photo is an example of Madeleung deformity
The skeleton provides mechanical support for an individuals structure and movement, protects vital organs, and controls mineral homeostasis. A healthy skeleton must be maintained by constant bone modeling to carry out these crucial functions throughout life. Bone remodeling involves the removal of old or damaged bone by bone resorption and the subsequent replacement of new bone formed by bone formation. Normal bone remodeling requires a tight coupling of bone resorption to bone formation to guarantee no alteration in bone mass or quality after each remodeling cycle.
Infants with TS have an increased risk of congenital hip dislocation, which may be associated with degenerative arthritis of the hips in older women. Approximately 10% of girls with TS develop scoliosis, most commonly during adolescence.
Congenital developmental dysplasia of the hip occurs more frequently in girls with Turner syndrome than in the general population. This contributes to the development of arthritis of the hips in older individuals. Girls with Turner syndrome also have an increased risk of scoliosis, over curviture of the over-curvature of the thoracic vertebrae, or swayback an overexagerated curve in the lower spine.
The small and retrognathic mandible may contribute to malocclusion and other dental abnormalities. An orthodontic examination should therefore be undertaken at 8–10 yr of age.
Learn more about DENTAL ISSUES
If craniofacial anomalies cause concern, consider plastic surgery for the neck, face, or ears before the child enters school or thereafter, as indicated. Some individuals with Turner syndrome have a tendency to form keloids, which must be taken into account when surgery is considered.
Young women with Turner syndrome did not incur fractures more frequently than those without the disease; however, fracture location differed between the two groups, according to study results. Halley M. Wasserman, MD, assistant professor at Cincinnati Children’s Medical Center… read more
In a 2019 publication, ‘Fracture rate in women with oestrogen deficiency – Comparison of Turner Syndrome and premature ovarian insufficiency, a EU study concluded that TS is not associated with an overall excess risk of bone fracture. The higher rate of fractures at major osteoporatic fracture sites may be secondary to other issues such as hearing impairment and thinning or abnormal bone remodeling. Bone remodeling is the natural process of cyclical rebuilding of bone structure. read more
There is a high incidence of osteoporosis—meaning thin or weak bones—in women with Turner syndrome. Osteoporosis leads to loss of height, curvature of the spine and increased bone fractures.
Learn more about OSTEOPOROSIS
Frequently Asked Questions (FAQ’s) are commonly asked questions asking for more information to support this subject. The answers to the questions are provided by professionals to assist you in sourcing accurate information. Every individual requires specialized care. Always refer to your medical provider for individualized care.
Clinical researchers document their findings in ‘white papers’. Here you will find clinical resources on this topic.
To read more about bone health, scroll to page(s) G39 in the Clinical Guidelines found here: https://turnersyndromefoundation.org/wp-content/uploads/2017/07/Clinical-Practice-Guideslines-International-G1-2017.full_.pdf
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13 and Market, St. Louis, MO
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2022feb1:00 amfeb(feb 28)11:59 pmIt's February Awareness Month!Month Long Event (february)
February is Turner Syndrome Awareness Month, a special opportunity to take action! Every February our community comes together to post, share, talk, and educate. We challenge you to take action
February is Turner Syndrome Awareness Month, a special opportunity to take action! Every February our community comes together to post, share, talk, and educate. We challenge you to take action this February – then keep the momentum going all year long!
Month Long Event (february)
Fundraiser contest hosted by Doreen Sullivan. Raising $2000 -$1,000 of the proceeds will benefit TSF - $1,000 paid out to winners Setting up this football pool to have some fun, win some money (perhaps)
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Fundraiser contest hosted by Doreen Sullivan.
Raising $2000
-$1,000 of the proceeds will benefit TSF
– $1,000 paid out to winners
Setting up this football pool to have some fun, win some money (perhaps) and support a good cause!
Select your boxes here. Donating $25 per box:
https://superbowlpoolsite.com/contest/462473
Doreen Squares Contest is an online squares contest created for free at Super Bowl Pool Site.
This contest was created by Doreen Sullivan. This fundraiser is a proceeds benefit hosted by an individual, and not by TSF. If you have any questions about this contest, please direct those questions via email to the commissioner at drs0908@aol.com
Rules: https://superbowlpoolsite.com/rules/462473
Month Long Event (january)
Month Long Event (january)
Card artists are invited to donate cards for the February Awareness Month annual card auction! World renowned artists, and enthusiasts, have joined together to support Lori Kobular's fundraiser for Turner
Card artists are invited to donate cards for the February Awareness Month annual card auction! World renowned artists, and enthusiasts, have joined together to support Lori Kobular’s fundraiser for Turner Syndrome Awareness. You can help Lori to reach her fundraising goals again this year. Lori is asking for your generous support to make this event a continued tremendous success. The cards will be awarded to the highest bidder!
The event is being organized by Lori Kobular on Instagram @mulchlady6 or email: lkobular@tsfusa.org.
1 (Wednesday) 9:00 am - 28 (Tuesday) 11:59 pm
2023thu09feb8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
Awareness Committee will meet the third Wednesday of each month to rally, brainstorm and plan for awareness outreach and impact. If you would like to be part of the committee,
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Awareness Committee will meet the third Wednesday of each month to rally, brainstorm and plan for awareness outreach and impact. If you would like to be part of the committee, please complete a volunteer application and let us know you wish to be part of the committee. If you have already submitted a volunteer application, email kholly@tsfusa.org to let her know that you would like to be part of the working committee. Link to Join: https://turnersyndromefoundation.org/volunteer_take_action/talent-application/
Why join this committee? 1- You can make a difference 2- You all meet some really great people 3- You will hone new skills & learn more about the mission. Gaining experience through doing is good for the mission and for you, too!
Thank you to everyone who is part of the awareness committee. We are so glad that you are here!
(Wednesday) 8:00 pm - 9:00 pm
2023thu16feb8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
2023thu23feb8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
Join in on a night of conversation, building connections, sharing stories and coloring together with friends! Socialize, have fun & introduce your pets to the Star Sisters community! What you'll need:
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Join in on a night of conversation, building connections, sharing stories and coloring together with friends! Socialize, have fun & introduce your pets to the Star Sisters community!
What you’ll need: Get comfy – relax in the comfort of home to meet & share with friends!
Being a Star Sisters is a way to connect with others in the Turner syndrome community to share honest experiences and form a sisterhood of positivity. This is an opportunity to raise awareness while receiving support. All meet-ups and events occur online – so anyone personally affected by TS, almost anywhere can participate!
Star Sister’s enjoy these benefits offered freely to all who join.
If you are new to TSF and wish to join Star Sisters, sign up here: https://turnersyndromefoundation.org/living/star-sisters/star-sisters-application/
(Friday) 8:00 pm - 9:00 pm
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