My Story with Turner Syndrome | Turner Syndrome Foundation //

My Story

Everyone has a story to tell...

Every individual and their family deserve to be heard and for those that wish to share their personal story, we provide you with this platform.  Our platform will also allow you to raise funds for this cause, which can multiply your impact.

Help raise awareness and support for Turner Syndrome with your story. Each one of us can raise a voice to create a better understanding of the impact Turner Syndrome has on lives. When you share your story, you are enabling us to tell others about the needs of this community to seek positive change.

“I didn’t realize my life’s story was interesting enough or would benefit someone else. I’m taken by the response.”

Post your story in three easy steps.

  1. COMPLETE the form on which you share your storyUpload a photo and write your personal story. Personal stories can be about living with, caring for or loving someone affected by Turner’s. We will then contact you about publishing your story to our website (see examples below).
  2. CREATE your fundraising page. Kickstart your fundraising with a donation, which encourages others to support you! Raise awareness by sharing your story. Honor, celebrate, keep your friends & family supporting this cause! These pages can be edited and shared over and over again.
  3. SHARE your page. The information you post will be public information on the world wide web. You should consider only entering information you are comfortable sharing. Children must have the consent of their parents to post, and TSF assumes no responsibility in securing permissions, content, errors or omissions. TSF has the right to take down or edit any material that is deemed inaccurate, inappropriate or harmful.

Influence support for advancements in Turner Syndrome care!

If you need any help setting up your personal story page, feel free to contact us for assistance:

Call: (800)594-4585
Email: info@tsfusa.org

Turner Syndrome Stories

My Story: Moving from Pain to Purpose

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their loved ones/caregivers. This month, it is an honor to share Bill’s story. His late wife, Jennifer, had TS and

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My Story: Never Stop Fighting

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals affected by Turner Syndrome (TS). Meet Kym, a TSF volunteer from NJ who will never stop fighting for increased awareness and earlier diagnosis. Note: Everyone’s journey

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Celebrating TS Moms

Celebrating TS Moms

Yesterday was Mother’s Day, so we want to feature some of the amazing moms within the Turner Syndrome community. Thank you to all of the amazing moms who support the TS community!

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My Story: I Feel So Lucky

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents and caregivers. In this post, Rita, a 78-year-old woman who was diagnosed with TS at 17 years old,

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You Are Enough (It’s a Girl Thing)

February is Turner Syndrome (TS) Awareness Month, and the Turner Syndrome Foundation (TSF) has several awareness and educational activities throughout the month. One of them is a blog hop and cardmaking challenge (see more information below). As a woman with

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