Turner Syndrome FoundationEveryone has a story to tell...
Every individual and their family deserve to be heard and for those that wish to share their personal story, we provide you with this platform. Our platform will also allow you to raise funds for this cause, which can multiply your impact.
Help raise awareness and support for Turner Syndrome with your story. Each one of us can raise a voice to create a better understanding of the impact Turner Syndrome has on lives. When you share your story, you are enabling us to tell others about the needs of this community to seek positive change.
“I didn’t realize my life’s story was interesting enough or would benefit someone else. I’m taken by the response.”
Post your story in three easy steps.
- COMPLETE the form on which you share your story. Upload a photo and write your personal story. Personal stories can be about living with, caring for or loving someone affected by Turner’s. We will then contact you about publishing your story to our website (see examples below).
- CREATE your fundraising page. Kickstart your fundraising with a donation, which encourages others to support you! Raise awareness by sharing your story. Honor, celebrate, keep your friends & family supporting this cause! These pages can be edited and shared over and over again.
- SHARE your page. The information you post will be public information on the world wide web. You should consider only entering information you are comfortable sharing. Children must have the consent of their parents to post, and TSF assumes no responsibility in securing permissions, content, errors or omissions. TSF has the right to take down or edit any material that is deemed inaccurate, inappropriate or harmful.
Influence support for advancements in Turner Syndrome care!
If you need any help setting up your personal story page, feel free to contact us for assistance:
Call: (800)594-4585
Email: info@tsfusa.org
Turner Syndrome Stories
TSF Celebrates National Disability Awareness Month
March is National Disability Awareness Month. It is a time to celebrate the contributions of those with disabilities, including people who also have chronic conditions like Turner syndrome (TS). While TS is not in itself a disability, some individuals with
My Story: From Pregnancy Loss to Cast-iron Endurance
The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community.
Turner Syndrome Care Around the World
Throughout the years, the amount of available resources, treatments and educational material about Turner syndrome (TS) has steadily increased. TS is gaining much more attention in the medical field, with new research and more recognition around the world than in
My Story: Grateful for My Early Diagnosis
The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers impacted by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community.
My Story: Becoming My Own Advocate
The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community.
A Day in the Life with Turner Syndrome: Throughout the Lifespan
With this post, we conclude our “Day in the Life” series and recall all the amazing individuals we’ve gotten to know! Canon Pham, a high school senior from California and Turner Syndrome Foundation (TSF) blog volunteer, came up with the
