My Story

Everyone has a story to tell...

Every individual and their family deserve to be heard and for those that wish to share their personal story, we provide you with this platform.  Our platform will also allow you to raise funds for this cause, which can multiply your impact.

Help raise awareness and support for Turner Syndrome with your story. Each one of us can raise a voice to create a better understanding of the impact Turner Syndrome has on lives. When you share your story, you are enabling us to tell others about the needs of this community to seek positive change.

“I didn’t realize my life’s story was interesting enough or would benefit someone else. I’m taken by the response.”

Post your story in three easy steps.

  1. COMPLETE the form on which you share your storyUpload a photo and write your personal story. Personal stories can be about living with, caring for or loving someone affected by Turner’s. We will then contact you about publishing your story to our website (see examples below).
  2. CREATE your fundraising page. Kickstart your fundraising with a donation, which encourages others to support you! Raise awareness by sharing your story. Honor, celebrate, keep your friends & family supporting this cause! These pages can be edited and shared over and over again.
  3. SHARE your page. The information you post will be public information on the world wide web. You should consider only entering information you are comfortable sharing. Children must have the consent of their parents to post, and TSF assumes no responsibility in securing permissions, content, errors or omissions. TSF has the right to take down or edit any material that is deemed inaccurate, inappropriate or harmful.

Influence support for advancements in Turner Syndrome care!

If you need any help setting up your personal story page, feel free to contact us for assistance:

Call: (800)594-4585

Turner Syndrome Stories

My Story 2022: A Look Ahead

As we wrap up Turner Syndrome (TS) Awareness Month, the Turner Syndrome Foundation (TSF) would like to honor those who are living with or affected by TS. One way we do this is by sharing their stories in our monthly

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How Music Can Make a Difference

Music is a combination of tones and melodies combined with rhythm. There are so many ways to define it if you choose to look them up, yet, there is one thing we can all agree with-there’s something special about music.

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Our Powerful Turner Syndrome Stories

The Turner Syndrome Foundation’s (TSF) My Story project produced several amazing testimonials in 2021. From motivational to inspirational to incredibly moving, these stories are important for the Turner Syndrome (TS) community to feel connected and supported. See snippets of 2021’s

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Austin Corbett’s TS Story

Intro This holiday season, many are celebrating the positive aspects of their year as well as spread the spirit of charity by helping their communities.  Recently, we found a story that has done both for our foundation. We are proud

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