Turner Syndrome awareness
February & Everyday
Turner Syndrome Awareness Month (TSAM) in February each year is a time to raise visibility of Turner syndrome, share real stories, and take meaningful actions that improve understanding and support for the Turner syndrome community.
The best part: getting involved doesn’t have to be complicated. When many people take small actions together, it creates a powerful ripple effect online, in our communities, and in the systems that shape patient care.
We challenge you to take action this February, then keep the momentum going all year long!
Turner Syndrome Facts
Turner syndrome is a chromosomal condition that randomly affects females.
It occurs when one X chromosome is fully or partially missing.
It affects approximately 1 in every 2,000 live female births.
Common features include short stature, delayed or absent puberty, heart and kidney differences, hearing challenges, learning differences, and increased risk for certain health conditions.
Turner syndrome can be diagnosed before birth, at birth, in childhood, or in adulthood.
No two individuals with Turner syndrome are exactly alike — symptoms and experiences vary widely.
Turner syndrome is a lifelong condition, but with early diagnosis, proper medical care, and community support, individuals can thrive.
Awareness is critical to reduce delayed diagnosis, increase research on the condition, and improve patient care.
We’re so excited to introduce something new this Turner Syndrome Awareness Month — our official TSAM mascot, Mirabel, beautifully designed by TS woman Ezelle Robinson.
Mirabel was created to thoughtfully reflect the lived experiences of girls and women with Turner syndrome. She embodies gentle strength, resilience, and self-acceptance.
Her butterfly wings symbolize transformation and growth at one’s own pace. Her calm presence reminds us that development doesn’t follow one fixed timeline, and that growing differently never means growing less.
Mirabel carries this message for our community:
“I grow in my own time, and that is enough.”
Get Involved
Choose one (or a few!) ways to participate this February. Whether you show up once or all month long, your voice matters.
Join the Turner Syndrome Awareness Crew
The Awareness Crew launches in February and continues year-round with simple weekly or monthly actions you can take to raise awareness in your local community, online, and beyond.
Actions may include sharing a post, bringing a flyer to a clinic, completing an advocacy action, and more. Participate as often as you’d like and know that when we take small steps together, they lead to big leaps forward!
Download the Awareness Toolkit
Want ready-to-use resources to raise awareness in your community? Download the TSAM toolkit, which includes:
- Turner syndrome talking points
- Printable flyers
- Social media images and templates
- & more!
Shop Turner Syndrome Awareness Merchandise
Show your support, spark conversations, and help spread awareness everywhere you go with TSAM and Turner Syndrome Pride merch!
100% of proceeds from shop sales benefit the Turner Syndrome Foundation.
Play TSAM PHoto Bingo
Our TSAM Bingo card is a fun way to participate by completing photo-friendly awareness actions throughout February. Get BINGO, submit a form sharing your completed tasks, and win a prize!
Sign the Petition for Patient Care
Awareness and advocacy go hand in hand. By urging legislators to prioritize Turner syndrome, we can start a national movement to bring more research, information, and support to this cause. Sign (and share!) our petition calling for improved Turner syndrome patient care.
Share Your Story
Your story helps someone else feel seen, and helps the world understand Turner syndrome beyond definitions and statistics.
Individuals with Turner syndrome and caregivers are invited to submit their story to be featured on our website and/or social media during TSAM and year-round.
Join Our Weekly Facebook Chats
Join us every Wednesday in February at 8 PM EST for a Facebook chat to connect with the Turner syndrome community, share your experiences, and learn from others.
Each week, we will post a series of questions on various topics related to life with Turner syndrome. RSVP for the events on Facebook to be reminded when they’re taking place.
Support the Mission Year-Round
You can make a lasting impact beyond February by joining the 1938 Collective, TSF’s community of monthly donors powering education, awareness, advocacy, and support every single month.
Fundraise for TSF
Invite your friends, family, and community to support Turner syndrome awareness with you through an online fundraiser. This is an excellent way to make an impact by helping TSF keep working to spread awareness of Turner syndrome year-round!
Let's make a lasting impact!
Turner Syndrome Awareness Month is just one month, but it is a critical time to spread information about the condition to a broader audience, and we need everyone’s support to make the biggest impact!
Whether you share one post or check off every item on this list of ways to get involved, your participation helps create a world with greater awareness, increased understanding, and better care for all affected by Turner Syndrome.
Thank you for supporting Turner syndrome awareness!
P.S. Don’t forget that the best way to stay connected with TSF’s awareness initiatives year-round is by joining the Awareness Crew! Sign up today to stay in the loop.
