National Council of State Leaders NCSL
Leadership Advances Turner Syndrome Care
A National Volunteer Leadership Network
The Turner Syndrome Foundation’s National Council of State Leaders (NCSL) is a national volunteer leadership network that empowers individuals to advance Turner syndrome awareness, education, advocacy, access to care, and community support in their own states.
Access to knowledgeable healthcare, educational resources, and community support can vary greatly depending on where a person lives. NCSL helps address these regional gaps by developing informed volunteer leaders who can identify local needs, build relationships, and connect their communities with the resources and programs of the Turner Syndrome Foundation.
Volunteer leadership is sought in all 50 states.
Local Leadership. National Impact.
NCSL volunteers serve as a bridge between the Turner Syndrome Foundation’s national mission and the communities where people live, learn, work, and receive care.
Every state has different needs and opportunities. Volunteers can contribute according to their interests, experience, availability, and the needs of their region.
How NCSL Volunteers Make an Impact
Legislative Advocacy – Increase awareness among state policymakers and support initiatives affecting the Turner syndrome community.
Professional Outreach – Connect with healthcare professionals, educators, professional associations, hospitals, and institutions to share Turner syndrome information and resources.
Patient & Caregiver Education – Facilitate educational programs, workshops, and opportunities for families to learn and connect.
Access to Care – Encourage regional clinical expertise, specialized care programs, and stronger professional referral networks.
Grand Rounds & Medical Education – Help bring the patient and family perspective into professional medical education and connect clinicians with TSF resources.
Community Building – Organize local meetups and opportunities for individuals and families affected by Turner syndrome to connect.
Team TSF & Awareness Activities – Lead or support community awareness campaigns, walks, events, and grassroots activities.
Interagency Collaboration – Develop relationships with state agencies, healthcare systems, schools, universities, and community organizations.
Community Partnerships – Engage businesses, civic organizations, and other community partners to expand awareness and support for the mission.
Fundraising – Organize online or community-based fundraising initiatives that help sustain TSF programs and services.
Communications – Share trusted Turner syndrome information, resources, and Foundation initiatives through regional networks and communication channels.
Supported by the Turner Syndrome Foundation
NCSL volunteers do not work alone. The Turner Syndrome Foundation provides orientation, resources, information, tools, and ongoing support to help volunteers represent the mission effectively and take meaningful action in their communities.
Through relationship building, education, advocacy, and community engagement, this national volunteer leadership network can help identify unmet needs, strengthen local resources, expand professional awareness, and create new opportunities for collaboration.
Be the Connection in Your State
A national mission becomes stronger when people take action locally. By developing volunteer leadership across all 50 states, the Turner Syndrome Foundation can extend its reach while responding to the unique needs of individual communities.
One volunteer can open a door. One relationship can create an opportunity. Together, a national network of leaders can advance the future of Turner syndrome care and support.
