WE LEARN Webinar NVLD and navigating Emerging Adulthood Hosted by Turner Syndrome Foundation, Inc. Date: Thursday, October 8 Time: 8:00 PM EDT Format: Live Stream About This Event Join us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive […]
Make an Impact Through Your Donor-Advised Fund A Donor-Advised Fund (DAF) offers a simple, flexible, and tax-efficient way to support the Turner Syndrome Foundation and help improve the lives of girls and women affected by Turner syndrome. By recommending a grant to the Turner Syndrome Foundation (TSF) through your DAF, you help advance our mission […]
The education working group will meet the first Monday of each month. The group is comprised of educators, administrators, and allied health professionals. https://form.jotform.com/jsform/240147016103137
Legislative Advocacy Working Group The Turner Syndrome Foundation's Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy, education, and community engagement, members help ensure that the voices of patients, families, caregivers, and healthcare professionals are […]
Star Sisters Monthly Meet-Up Event Be a Star Sister - Meet Others - Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join today […]
Campus Club Ambassador Office Hours Ready to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. Whether you're just getting started or preparing for your first event, these office hours provide an opportunity to ask […]
Campus Club Ambassador Office Hours Ready to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. Whether you're just getting started or preparing for your first event, these office hours provide an opportunity to ask […]
Join us for a live conversation on Facebook to discuss the Campus Life, Aug 27, 8pm ET. To participate, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences and engage with others in the […]
Monday, August 10, 2026 | 8:00 PM ET Complimentary Live Webinar Every student deserves an educational environment where they are understood, supported, and empowered to succeed. Join the Turner Syndrome Foundation's Educating the Educator Initiative for an informative webinar designed to help educators, school psychologists, counselors, administrators, therapists, and families better understand the educational implications […]
Growth Charts for Children with Turner Syndrome in MyChart Join us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos, a large-scale dataset created through collaboration among leading […]
Growth Experiences July 15: 8-9pm Join us for a live conversation on Facebook to discuss experiences with growth in individuals with Turner syndrome. To participate, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences […]
https://form.jotform.com/jsform/261775708718167
Free Virtual Event Join TSF for a peer-to-peer panel discussion designed for expectant parents and families navigating a prenatal diagnosis of Turner syndrome. In this conversation, three mothers of girls with Turner syndrome will share their personal experiences receiving their daughters’ diagnoses during pregnancy. Panelists will discuss the emotions and uncertainty that can come with […]
The Role of Occupational Therapy for Turner Syndrome Occupational Therapy is a keen intervention for patients with Turner syndrome. This webinar will include an overview of the definition and scope of practice of occupational therapy, including how occupational therapy helps people perform important daily life activities. The webinar will also discuss the various challenges associated […]
Facebook Chat: Occupational Therapy Experiences May 13th, 8 PM ET Join us for a live conversation on Facebook to discuss the role of occupational therapy for individuals with Turner syndrome. To participate, just visit the Turner Syndrome Foundation's Facebook page at the scheduled time and respond to the question posted on our timeline every 10 […]
We’re truly grateful for this new collaboration with the National Lymphedema Network and for the opportunity to share trusted resources on Turner syndrome and lymphedema with our community. Turner syndrome and lymphedema are typically related to a genetic lymphatic response. Topics of particular interest to our audience include: How lymphedema may present in infant patients with Turner syndrome […]
Bloom Spring Auction Benefiting the Turner Syndrome Foundation Welcome to the Bloom Spring Auction, where generosity blooms into impact. Every bid you place directly supports the Turner Syndrome Foundation’s mission to advance research, education, advocacy, and care for individuals affected by Turner syndrome. This is more than an auction—it’s an opportunity to create meaningful change. […]
Join independent filmmaker Brooke Gonsalves for an exclusive behind-the-scenes look at Like A Butterfly, her deeply personal and thought-provoking film. In this WE Learn webinar, Brooke shares the inspiration behind the story, why Turner Syndrome stories must be told, and how film can be a powerful tool for awareness, advocacy, and connection. Discover how storytelling […]
A Pampered Chef fundraiser hosted by Marianne Hand is being held to benefit for TSF now through 4/20. This is the third year Marianne is supporting the cause. Order https://table.pamperedchef.com/party/2852257aby If you have a small business and would like to support the cause, submit an event form to market your event. 100% of all […]
https://form.jotform.com/jsform/260985603229160
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