Specialized Center of Care

Specialized Centers of Care

On this page you will find a growing list of designated specialized centers of care for Turner Syndrome. Many centers listed here are facilitated through pediatric care centers and children’s hospitals. Access to adult care centers remain limited.

Alabama


Children’s Hospital of Alabama
1601 4th Ave S, Park Place 2
Birmingham, AL 35233-1723

Tel# 205-538-9107

Alaska



Providence Alaska Medical Center
3340 Providence Drive, Suite A – 351
Anchorage, AK 99508
Tel# 907-212-4824  Fax 907-212-4831
Contact: Cydney Fenton, MD
Website: http://Alaska.Providence.org/

California


Lucile Package Children’s Hospital Stanford
725 Welch Rd, Palo Alto, CA 94304
Tel# 650-723-5791
Contact: Ofelia Colin
Website: http://www.stanfordchildrens.org/

Children’s Hospital Los Angeles
4650 Sunset Blvd, Mailstop #61
Los Angeles, CA 90027
Tel# 323-361-4606
Contact: Janet Guerrero
Website: http://www.chla.org/medical-management-well-known-genetic-disorders

Radys Children’s Hospital, UC San Diego
7910 Frost Street, Ste. 200
San Diego, CA 92123
Contact: Karen Oerter Klein
Tel# 858- 966-5999
Website: https://www.rchsd.org


Colorado

Department of Endocrinology at Children’s Hospital Colorado
Anschutz Medical Campus 13123 East 16th Ave., Aurora, CO 80045
Tel: 720-777-1234
Contact: Susan Howell
Website: http://www.childrenscolorado.org/departments/endocrinology


Connecticut

Connecticut Children’s Medical Center
282 Washington Street, Hartford, CT 06106
Contact: Karen Rubin, MD
Tel: 860-545-9000
Website: http://www.connecticutchildrens.org


Florida


Turner Syndrome Center at the University of Florida
2000 SW Archer Road, Gainesville, FL 32608
Contact: Debbie McKeown, MD
Tel: 352-265-PEDS or 352-273-5625 Fax: 352-627-4415
Website: https://ufhealth.org

All Children’s Hospital
501 6th Avenue South, St. Petersburg, FL 33701
Tel: 727-898-7451 Toll-Free: 800-456-4543
Website: http://www.allkids.org


Georgia


Emory Children’s Center
2015 Upper Gate Drive NE, Atlanta, GA 30322
Contact: Aretha Samuels, Admin Assistant
Tel: 404-778-2400 Fax: 404-727-3423
Website: http://www.choa.org


Illinois


Lurie Children’s Hospital
225 E. Chicago Ave., Chicago, IL 60611​
Tel: 800-543-7362
Contacts: Lauren Robinson, RN Tel: 312-227-6495 or Eliz Capella Tel: 312-227-4641
Website: https://www.luriechildrens.org


Massachusetts


Turner Syndrome Clinic at Mass General Hospital for Children
Yawkey Center for Outpatient Care, Suite 6B, 32 Fruit Street, Boston, MA 02114
Contact:  Sheri Mangini, Service Coordinator , Pat Ryan, Ped Endo   Sylvia Curry, Repro Endo
Tel: 617-726-1561 Fax: 617-726-1566
Website: http://www.massgeneral.org


Michigan


C. S. Mott Children’s Hospital
1540 E. Hospital Drive
Ann Arbor, MI 48109
Pediatric Endocrinology (734) 764-5175
Referral from primary care physician required
http://www.mottchildren.org/patient-visitor-guide


Missouri

Children’s Mercy on Broadway- Turner Syndrome Clinic
3101 Broadway Blvd, Kansas City, MO 64111
Contact: Kathy Williams
Tel: 816-960-8803 Toll free: 888-563-3070
Website: http://www.childrensmercy.org

Turner Syndrome Clinic at Cardinal Glennon Children’s Medical Center
1465 S. Grand Boulevard, St. Louis, MO 63104
Contact: Dr. Susan Myers, MD
Tel: 314-577-5648
Website: http://www.cardinalglennon.com


New Jersey

The Alfiero and Lucia Palestroni Birth Defects Center, St. Joseph’s Children’s Hospital Adult Genetic Services
11 Getty Avenue, Paterson, NJ 07503
Contact: Lorien King, MS, LCG, / Counselor or Maria Molina, LCSW
Tel: 973-754-4503 Fax: 973-754-4521
Website: http://stjosephshealth.org

Rutgers-Robert Wood Johnson Medical School
Children’s Health Institute of New Jersey
89 French Street, Suite 2300, New Brunswick, NJ 08901
Contact: Ian Marshall, MD
Tel: 732-235-9378 or email: marshaia@rwjms.rutgers.edu
Website: http://umg.umdnj.edu

The Molly Center for Center for Children with Diabetes and Endocrine Disorders
Hackensack University Medical Center
30 Prospect Avenue, WFan Building, Hackensack, NJ 07601
Contact: Javier Aisenberg, MD or Amy Chartoff , APN
Tel: 551-996-5329
Website: http://www.hackensackumc.org


New Mexico

UNM Health System
2211 Lomas Blvd NE
3rd Floor Pediatric Dept/ Endo-Division
Albuquerque, NM 87102
Turner Syndrome Clinic – will see adults
To schedule appointment call 505 272-6631


New York

Winthrop University Hospital
120 Mineola Blvd #210, Mineola, NY 11501
Contact: Paul H. Saenger, MD
Tel: 917-359-9837

Children’s Hospital at Montefiore
3415 Bainbridge Ave., Bronx, NY 10467
Contact: Rubina Heptulla, MD or Susan Wesoly, RPA-C
Tel: 718-741-2450
Website: http://cham.org

Weil Cornell Medical College
1300 York Avenue, New York, NY 10065
Tel: 212-746-1503 Fax: 212-746-8527
Contact: Thomas Cunningham
Website: http://www.weillcornellmedicine.com


North Carolina

UNC School of Medicine Turner Syndrome Clinic, UNC Department of Pediatrics
260 MacNider Building, CB# 7220, UNC School of Medicine, Chapel Hill, NC 27599
Contact: Jennifer Leonard
Tel: 919-966-1505 Fax: 919-966-7299
Website: http://pediatrics.med.unc.edu


Ohio

Cincinnati Children’s Turner Syndrome Center
3333 Burnet Avenue, Cincinnati, Ohio 45229
Contact: Lori Casnellie, RN
Tel: 513-636-0226
 Appointment: 513-636-4744, option 1
Website: http://www.cincinnatichildrens.org

Turner Syndrome Clinic
Nationwide Children’s Hospital Outpatient Care Center
555 S. 18th Avenue, Columbus, OH 43205
Contact: Dr. David R. Respaske, MD
Tel: 614-722-4425
Website: http://www.nationwidechildrens.org

Turner Syndrome Center at Akron Children’s Hospital
Considine Professional Building
215 W. Bowery Street, Suite 6400, Akron, OH 44308
Contact: Mary Zwisler, RN, BC
Tel: 330-543-3276
Website: https://www.akronchildrens.org/cms/fad_locations/turner_syndrome_cen
ter/


Oklahoma

For more information, to schedule an appointment, or to make a referral, contact Jennifer Campbell, RN.
Oklahoma Specialized Care, Turner Syndrome Clinic
1200 Children’s Avenue, 4D
Oklahoma City, OK 73104
Tel: 405-271-6764 Fax: 405-271-3093
Website: http://www.oumedicine.com


Oregon

Doernbecher Children’s Hospital Endocrinology Clinic
Physicians Pavilion, 1st Schnitzer Diabetes Health Center
3181 SW Sam Jackson Park Road, Portland, OR  97239
Contact: Candi Hepper, RN
Tel: 503-494-3273
Website: http://www.ohsu.edu


Pennsylvania

Turner Syndrome Program at Children’s Hospital of Philadelphia
34th Street and Civic Center Boulevard, Philadelphia, PA 19104
Contact:  Denise Gruccio, MSN, CRNP
Tel: 215-590-3174
Website:  http://www.chop.edu

Children’s Hospital of Pittsburgh
One Children’s Hospital Drive, 4401 Penn Ave., Pittsburgh, PA 15224
Contact: Tammy Nenadovich, Endocrinology
Tel: 412-692-5325
Website: http://www.chp.edu

Thomas Jefferson University Kimmel School of Medicine
Nemours Children’s Clinic
833 Chestnut Street, Suite 1210, Philadelphia, PA 19107
Contact: Judith L. Ross, MD or Karen Kowal
Tel: 215-955-6520  Fax: 215-860-0408
Website: http://www.jefferson.edu

Lehigh Valley Hospital
1200 Cedar Crest Blvd., Allentown, PA 18103
Tel: 610-402-8000
Website: https://www.lvhn.org/conditions_treatments/childrens_care/turner_syndrome/learn_about_turner_syndrome


South Carolina


University of South Carolina School of Medicine
Office Hours – 8:30 a.m. – 4:30 p.m.
Phone: (803) 434-7990
Fax: (803) 434-4669
9 Medical Park, Suite 230
Columbia, SC 29203


Tennessee


Monroe Carrell Jr. Children’s Hospital at Vanderbilt
2200 Children’s Way, Nashville, TN 37232
Tel: 615-322-7427
Website: https://www.childrenshospital.vanderbilt.org/index.php


Texas

The University of Texas Health Science Center at Houston
6410 Fannin, Suite 500 Houston, Texas 77030
Tel: 832-325-6516
Contact: Michelle Rivera-Davila, MD
Website: http://www.utphysicians.com/1215/pediatric—endocrinology/

Lone Star Pediatrics
12120 FM 620 North, Austin, TX 78750
Tel: 512-833-7334
Website: http://www.lonestarpediatrics.com/Medical-Content/Medical- Conditions/Turner-Syndrome.aspx


Virginia

Children’s Hospital of Richmond at VCU
Pembrooke Office Park, 2305 N Parham Rd, Ste 1, Henrico, VA 23229
Tel: 804-828-2467
Website: http://www.chrichmond.org/


Washington

University of Washington Medical Center Genetic Medicine Clinic Turner Syndrome Clinic
1705 North East Pacific Street, K253, Box 357720, Seattle, WA 98195
Contact: Virginia P. Sybert, MD
Tel: 206-598-4030 Fax: 206-598-3269
Website: http://depts.washington.edu/medgen/clinics.shtml

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Turner Syndrome Foundation

Turner Syndrome Foundation

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