Specialized Center of Care

Specialized Centers of Care

Alabama Children’s Hospital of Alabama 1601 4th Ave S

Park Place 2 Birmingham, AL 35233-1723

Tel# 205-538-9107

Alaska Providence Alaska Medical Center 3340 Providence Drive, Suite A – 351 Anchorage, AK 99508 Tel# 907-212-4824  Fax 907-212-4831 Contact: Cydney Fenton, MD Website: http://Alaska.Providence.org/

California Lucile Package Children’s Hospital Stanford 725 Welch Rd, Palo Alto, CA 94304 Tel# 650-723-5791 Contact: Ofelia Colin Website: http://www.stanfordchildrens.org/ Children’s Hospital Los Angeles 4650 Sunset Blvd, Mailstop #61 Los Angeles, CA 90027 Tel# 323-361-4606 Contact: Janet Guerrero Website: http://www.chla.org/medical-management-well-known-genetic-disorders Radys Children’s Hospital, UC San Diego 7910 Frost Street, Ste. 200 San Diego, CA 92123 Contact: Karen Oerter Klein Tel# 858- 966-5999 wWebsite: http://www.radyschildrenshospital.org Colorado Department of Endocrinology at Children’s Hospital Colorado Anschutz Medical Campus 13123 East 16th Ave., Aurora, CO 80045 Tel: 720-777-1234 Contact: Susan Howell Website: http://www.childrenscolorado.org/departments/endocrinology Connecticut Connecticut Children’s Medical Center 282 Washington Street, Hartford, CT 06106 Contact: Karen Rubin, MD Tel: 860-545-9000 Website: http://www.connecticutchildrens.org Florida Turner Syndrome Center at the University of Florida 2000 SW Archer Road, Gainesville, FL 32608 Contact: Debbie McKeown, MD Tel: 352-265-PEDS or 352-273-5625 Fax: 352-627-4415 Website: https://ufhealth.org All Children’s Hospital 501 6th Avenue South, St. Petersburg, FL 33701 Tel: 727-898-7451 Toll-Free: 800-456-4543 Website: http://www.allkids.org Georgia Emory Children’s Center 2015 Upper Gate Drive NE, Atlanta, GA 30322 Contact: Aretha Samuels, Admin Assistant Tel: 404-778-2400 Fax: 404-727-3423 Website: http://www.choa.org Illinois Lurie Children’s Hospital 225 E. Chicago Ave., Chicago, IL 60611​ Tel: 800-543-7362 Contacts: Lauren Robinson, RN Tel: 312-227-6495 or Eliz Capella Tel: 312-227-4641 Website: https://www.luriechildrens.org Massachusetts Turner Syndrome Clinic at Mass General Hospital for Children Yawkey Center for Outpatient Care, Suite 6B, 32 Fruit Street, Boston, MA 02114 Contact:  Sheri Mangini, Service Coordinator , Pat Ryan, Ped Endo   Sylvia Curry, Repro Endo Tel: 617-726-1561 Fax: 617-726-1566 Website: http://www.massgeneral.org Michigan C. S. Mott Children’s Hospital 1540 E. Hospital Drive Ann Arbor, MI 48109 Pediatric Endocrinology (734) 764-5175 Referral from primary care physician required http://www.mottchildren.org/patient-visitor-guide Missouri Children’s Mercy on Broadway- Turner Syndrome Clinic 3101 Broadway Blvd, Kansas City, MO 64111 Contact: Kathy Williams Tel: 816-960-8803 Toll free: 888-563-3070 Website: http://www.childrensmercy.org Turner Syndrome Clinic at Cardinal Glennon Children’s Medical Center 1465 S. Grand Boulevard, St. Louis, MO 63104 Contact: Dr. Susan Myers, MD Tel: 314-577-5648 Website: http://www.cardinalglennon.com New Jersey The Alfiero and Lucia Palestroni Birth Defects Center, St. Joseph’s Children’s Hospital Youth and Adult Care 11 Getty Avenue, Paterson, NJ 07503 Contact: Christina Flora, MSGC, CGC GENETICS, Coordinator / Counselor or Ashley-Lynn Amoruso, LSW Tel: 973-754-2174
or 973-754-3222 Fax: 973.566.9467 Website: http://stjosephshealth.org Rutgers-Robert Wood Johnson Medical School Children’s Health Institute of New Jersey 89 French Street, Suite 2300, New Brunswick, NJ 08901 Contact: Ian Marshall, MD Tel: 732-235-9378 or email: marshaia@rwjms.rutgers.edu Website: http://umg.umdnj.edu The Molly Center for Center for Children with Diabetes and Endocrine Disorders Hackensack University Medical Center 30 Prospect Avenue, WFan Building, Hackensack, NJ 07601 Contact: Javier Aisenberg, MD or Amy Chartoff , APN Tel: 551-996-5329 Website: http://www.hackensackumc.org New Mexico UNM Health System 2211 Lomas Blvd NE 3rd Floor Pediatric Dept/ Endo-Division Albuquerque, NM 87102 Turner Syndrome Clinic – will see adults To schedule appointment call 505 272-6631 New York Winthrop University Hospital 120 Mineola Blvd #210, Mineola, NY 11501 Contact: Paul H. Saenger, MD Tel: 917-359-9837 Website: http://www.winthrop.org Children’s Hospital at Montefiore 3415 Bainbridge Ave., Bronx, NY 10467 Contact: Rubina Heptulla, MD or Susan Wesoly, RPA-C Tel: 718-741-2450 Website: http://cham.org Weil Cornell Medical College 1300 York Avenue, New York, NY 10065 Tel: 212-746-1503 Fax: 212-746-8527 Contact: Thomas Cunningham Website: http://www.weillcornellmedicine.com North Carolina UNC School of Medicine Turner Syndrome Clinic, UNC Department of Pediatrics 260 MacNider Building, CB# 7220, UNC School of Medicine, Chapel Hill, NC 27599 Contact: Jennifer Leonard Tel: 919-966-1505 Fax: 919-966-7299 Website: http://pediatrics.med.unc.edu Ohio Cincinnati Children’s Turner Syndrome Center 3333 Burnet Avenue, Cincinnati, Ohio 45229 Contact: Lori Casnellie, RN Tel: 513-636-0226
Appointment: 513-636-4744, option 1 Website: http://www.cincinnatichildrens.org Turner Syndrome Clinic Nationwide Children’s Hospital Outpatient Care Center 555 S. 18th Avenue, Columbus, OH 43205 Contact: Dr. David R. Respaske, MD Tel: 614-722-4425 Website: http://www.nationwidechildrens.org Turner Syndrome Center at Akron Children’s Hospital Considine Professional Building 215 W. Bowery Street, Suite 6400, Akron, OH 44308 Contact: Mary Zwisler, RN, BC Tel: 330-543-3276 Website: https://www.akronchildrens.org/cms/fad_locations/turner_syndrome_cen ter/ Oklahoma University of Oklahoma College of Medicine Turner Syndrome Clinic 1200 Children’s Avenue, Suite 4D, Oklahoma City, OK 73104 Contact:  Traci Schaeffer, RN Tel: 405-271-6764 Fax: 405-271-3093 Website: http://www.oumedicine.com Oregon Doernbecher Children’s Hospital Endocrinology Clinic Physicians Pavilion, 1st Schnitzer Diabetes Health Center 3181 SW Sam Jackson Park Road, Portland, OR  97239 Contact: Candi Hepper, RN Tel: 503-494-3273 Website: http://www.ohsu.edu Pennsylvania Turner Syndrome Program at Children’s Hospital of Philadelphia 34th Street and Civic Center Boulevard, Philadelphia, PA 19104 Contact:  Denise Gruccio, MSN, CRNP Tel: 215-590-3174 Website:  http://www.chop.edu Children’s Hospital of Pittsburgh One Children’s Hospital Drive, 4401 Penn Ave., Pittsburgh, PA 15224 Contact: Tammy Nenadovich, Endocrinology Tel: 412-692-5325 Website: http://www.chp.edu Thomas Jefferson University Kimmel School of Medicine Nemours Children’s Clinic 833 Chestnut Street, Suite 1210, Philadelphia, PA 19107 Contact: Judith L. Ross, MD or Karen Kowal Tel: 215-955-6520  Fax: 215-860-0408 Website: http://www.jefferson.edu Lehigh Valley Hospital 1200 Cedar Crest Blvd., Allentown, PA 18103 Tel: 610-402-8000 Website: https://www.lvhn.org/conditions_treatments/childrens_care/turner_syndrome/learn_about_turner_syndrome South Carolina University of South Carolina School of Medicine Office Hours – 8:30 a.m. – 4:30 p.m. Phone: (803) 434-7990 Fax: (803) 434-4669 9 Medical Park, Suite 230 Columbia, SC 29203 Tennessee Monroe Carrell Jr. Children’s Hospital at Vanderbilt 2200 Children’s Way, Nashville, TN 37232 Tel: 615-322-7427 Website: https://www.childrenshospital.vanderbilt.org/index.php Texas The University of Texas Health Science Center at Houston 6410 Fannin, Suite 500 Houston, Texas 77030 Tel: 832-325-6516 Contact: Michelle Rivera-Davila, MD Website: http://www.utphysicians.com/1215/pediatric—endocrinology/ Lone Star Pediatrics 12120 FM 620 North, Austin, TX 78750 Tel: 512-833-7334 Website: http://www.lonestarpediatrics.com/Medical-Content/Medical- Conditions/Turner-Syndrome.aspx Virginia Children’s Hospital of Richmond at VCU Pembrooke Office Park, 2305 N Parham Rd, Ste 1, Henrico, VA 23229 Tel: 804-828-2467 Website: http://www.chrichmond.org/ Washington University of Washington Medical Center Genetic Medicine Clinic Turner Syndrome Clinic 1705 North East Pacific Street, K253, Box 357720, Seattle, WA 98195 Contact: Virginia P. Sybert, MD Tel: 206-598-4030 Fax: 206-598-3269 Website: http://depts.washington.edu/medgen/clinics.shtml

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