Specialized Center of Care

Specialized Centers of Care

Alabama
Children’s Hospital of Alabama
1601 4th Ave S

Park Place 2
Birmingham, AL 35233-1723

Tel# 205-538-9107

Alaska
Providence Alaska Medical Center
3340 Providence Drive, Suite A – 351
Anchorage, AK 99508
Tel# 907-212-4824  Fax 907-212-4831
Contact: Cydney Fenton, MD
Website: http://Alaska.Providence.org/

California
Lucile Package Children’s Hospital Stanford
725 Welch Rd, Palo Alto, CA 94304
Tel# 650-723-5791
Contact: Ofelia Colin
Website: http://www.stanfordchildrens.org/

Children’s Hospital Los Angeles
4650 Sunset Blvd, Mailstop #61
Los Angeles, CA 90027
Tel# 323-361-4606
Contact: Janet Guerrero
Website: http://www.chla.org/medical-management-well-known-genetic-disorders

Radys Children’s Hospital, UC San Diego
7910 Frost Street, Ste. 200
San Diego, CA 92123
Contact: Karen Oerter Klein
Tel# 858- 966-5999
wWebsite: http://www.radyschildrenshospital.org

Colorado
Department of Endocrinology at Children’s Hospital Colorado
Anschutz Medical Campus 13123 East 16th Ave., Aurora, CO 80045
Tel: 720-777-1234
Contact: Susan Howell
Website: http://www.childrenscolorado.org/departments/endocrinology

Connecticut
Connecticut Children’s Medical Center
282 Washington Street, Hartford, CT 06106
Contact: Karen Rubin, MD
Tel: 860-545-9000
Website: http://www.connecticutchildrens.org

Florida
Turner Syndrome Center at the University of Florida
2000 SW Archer Road, Gainesville, FL 32608
Contact: Debbie McKeown, MD
Tel: 352-265-PEDS or 352-273-5625 Fax: 352-627-4415
Website: https://ufhealth.org

All Children’s Hospital
501 6th Avenue South, St. Petersburg, FL 33701
Tel: 727-898-7451 Toll-Free: 800-456-4543
Website: http://www.allkids.org

Georgia
Emory Children’s Center
2015 Upper Gate Drive NE, Atlanta, GA 30322
Contact: Aretha Samuels, Admin Assistant
Tel: 404-778-2400 Fax: 404-727-3423
Website: http://www.choa.org

Illinois
Lurie Children’s Hospital
225 E. Chicago Ave., Chicago, IL 60611​
Tel: 800-543-7362
Contacts: Lauren Robinson, RN Tel: 312-227-6495 or Eliz Capella Tel: 312-227-4641
Website: https://www.luriechildrens.org

Massachusetts
Turner Syndrome Clinic at Mass General Hospital for Children
Yawkey Center for Outpatient Care, Suite 6B, 32 Fruit Street, Boston, MA 02114
Contact:  Sheri Mangini, Service Coordinator , Pat Ryan, Ped Endo   Sylvia Curry, Repro Endo
Tel: 617-726-1561 Fax: 617-726-1566
Website: http://www.massgeneral.org

Michigan
C. S. Mott Children’s Hospital
1540 E. Hospital Drive
Ann Arbor, MI 48109
Pediatric Endocrinology (734) 764-5175
Referral from primary care physician required
http://www.mottchildren.org/patient-visitor-guide

Missouri
Children’s Mercy on Broadway- Turner Syndrome Clinic
3101 Broadway Blvd, Kansas City, MO 64111
Contact: Kathy Williams
Tel: 816-960-8803 Toll free: 888-563-3070
Website: http://www.childrensmercy.org

Turner Syndrome Clinic at Cardinal Glennon Children’s Medical Center
1465 S. Grand Boulevard, St. Louis, MO 63104
Contact: Dr. Susan Myers, MD
Tel: 314-577-5648
Website: 

https://www.ssmhealth.com/cardinal-glennon

New Jersey
The Alfiero and Lucia Palestroni Birth Defects Center, St. Joseph’s Children’s Hospital Youth and Adult Care
11 Getty Avenue, Paterson, NJ 07503
Contact: Christina Flora, MSGC, CGC GENETICS, Coordinator / Counselor or Ashley-Lynn Amoruso, LSW
Tel: 973-754-2174
or 973-754-3222 Fax: 973.566.9467
Website: http://stjosephshealth.org

Rutgers-Robert Wood Johnson Medical School
Children’s Health Institute of New Jersey
89 French Street, Suite 2300, New Brunswick, NJ 08901
Contact: Ian Marshall, MD
Tel: 732-235-9378 or email: marshaia@rwjms.rutgers.edu
Website: http://umg.umdnj.edu

The Molly Center for Center for Children with Diabetes and Endocrine Disorders
Hackensack University Medical Center
30 Prospect Avenue, WFan Building, Hackensack, NJ 07601
Contact: Javier Aisenberg, MD or Amy Chartoff , APN
Tel: 551-996-5329
Website: http://www.hackensackumc.org

New Mexico

UNM Health System
2211 Lomas Blvd NE
3rd Floor Pediatric Dept/ Endo-Division
Albuquerque, NM 87102

Turner Syndrome Clinic – will see adults
To schedule appointment call 505 272-6631

New York
Winthrop University Hospital
120 Mineola Blvd #210, Mineola, NY 11501
Contact: Paul H. Saenger, MD
Tel: 917-359-9837
Website: http://www.winthrop.org

Children’s Hospital at Montefiore
3415 Bainbridge Ave., Bronx, NY 10467
Contact: Rubina Heptulla, MD or Susan Wesoly, RPA-C
Tel: 718-741-2450
Website: http://cham.org

Weil Cornell Medical College
1300 York Avenue, New York, NY 10065
Tel: 212-746-1503 Fax: 212-746-8527
Contact: Thomas Cunningham
Website:

https://weillcornell.org/pedsendo

North Carolina
UNC School of Medicine Turner Syndrome Clinic, UNC Department of Pediatrics
260 MacNider Building, CB# 7220, UNC School of Medicine, Chapel Hill, NC 27599
Contact: Jennifer Leonard
Tel: 919-966-1505 Fax: 919-966-7299
Website: http://pediatrics.med.unc.edu

Ohio
Cincinnati Children’s Turner Syndrome Center
3333 Burnet Avenue, Cincinnati, Ohio 45229
Contact: Lori Casnellie, RN
Tel: 513-636-0226
Appointment: 513-636-4744, option 1
Website: http://www.cincinnatichildrens.org

Turner Syndrome Clinic
Nationwide Children’s Hospital Outpatient Care Center
555 S. 18th Avenue, Columbus, OH 43205
Contact: Dr. David R. Respaske, MD
Tel: 614-722-4425
Website: http://www.nationwidechildrens.org

Turner Syndrome Center at Akron Children’s Hospital
Considine Professional Building
215 W. Bowery Street, Suite 6400, Akron, OH 44308
Contact: Mary Zwisler, RN, BC
Tel: 330-543-3276
Website: 

https://www.akronchildrens.org/departments/Turner-Syndrome-Center.html

Oklahoma
University of Oklahoma College of Medicine Turner Syndrome Clinic
1200 Children’s Avenue, Suite 4D, Oklahoma City, OK 73104
Contact:  Traci Schaeffer, RN
Tel: 405-271-6764 Fax: 405-271-3093
Website: http://www.oumedicine.com

Oregon
Doernbecher Children’s Hospital Endocrinology Clinic
Physicians Pavilion, 1st Schnitzer Diabetes Health Center
3181 SW Sam Jackson Park Road, Portland, OR  97239
Contact: Candi Hepper, RN
Tel: 503-494-3273
Website: http://www.ohsu.edu

Pennsylvania
Turner Syndrome Program at Children’s Hospital of Philadelphia
34th Street and Civic Center Boulevard, Philadelphia, PA 19104
Contact:  Denise Gruccio, MSN, CRNP
Tel: 215-590-3174
Website:  http://www.chop.edu

Children’s Hospital of Pittsburgh
One Children’s Hospital Drive, 4401 Penn Ave., Pittsburgh, PA 15224
Contact: Tammy Nenadovich, Endocrinology
Tel: 412-692-5325
Website: http://www.chp.edu

Thomas Jefferson University Kimmel School of Medicine
Nemours Children’s Clinic
833 Chestnut Street, Suite 1210, Philadelphia, PA 19107
Contact: Judith L. Ross, MD or Karen Kowal
Tel: 215-955-6520  Fax: 215-860-0408
Website: http://www.jefferson.edu

Lehigh Valley Hospital
1200 Cedar Crest Blvd., Allentown, PA 18103
Tel: 610-402-8000
Website: https://www.lvhn.org/conditions_treatments/childrens_care/turner_syndrome/learn_about_turner_syndrome

South Carolina
University of South Carolina School of Medicine
Office Hours – 8:30 a.m. – 4:30 p.m.
Phone: (803) 434-7990
Fax: (803) 434-4669
9 Medical Park, Suite 230
Columbia, SC 29203

Tennessee
Monroe Carrell Jr. Children’s Hospital at Vanderbilt
2200 Children’s Way, Nashville, TN 37232
Tel: 615-322-7427
Website: https://www.childrenshospital.vanderbilt.org/index.php

Texas
The University of Texas Health Science Center at Houston
6410 Fannin, Suite 500 Houston, Texas 77030
Tel: 832-325-6516
Contact: Michelle Rivera-Davila, MD
Website: http://www.utphysicians.com/1215/pediatric—endocrinology/

Lone Star Pediatrics
12120 FM 620 North, Austin, TX 78750
Tel: 512-833-7334
Website: http://www.lonestarpediatrics.com/Medical-Content/Medical- Conditions/Turner-Syndrome.aspx

Virginia
Children’s Hospital of Richmond at VCU
Pembrooke Office Park, 2305 N Parham Rd, Ste 1, Henrico, VA 23229
Tel: 804-828-2467
Website: http://www.chrichmond.org/

Washington
University of Washington Medical Center Genetic Medicine Clinic Turner Syndrome Clinic
1705 North East Pacific Street, K253, Box 357720, Seattle, WA 98195
Contact: Virginia P. Sybert, MD
Tel: 206-598-4030 Fax: 206-598-3269
Website: http://depts.washington.edu/medgen/clinics.shtml

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