Patient Caregiver Registry
Women and caregivers of children with Turner Syndrome are encouraged to join the Patient and Caregiver Registry.
Did you know that every day two babies survive Turner Syndrome? Nearly 10,000 babies are born in the United States every year, and most significantly, there are more than one hundred thousand or more families affected by the loss of babies who did not survive birth. You may ask, are there unmet needs and challenges? As we have learned, there sure are!