Share Your Story for Turner Syndrome Awareness
Help raise awareness and support for Turner syndrome with your story! Every individual with Turner syndrome and their caregivers deserve to be heard.
By sharing our stories, we create a better understanding of the impact Turner syndrome has on lives, spreading information about the needs of this community, and helping to create positive change.
Your story might be exactly what someone else needs to hear.
Share Your story in three easy steps:
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- COMPLETE the form on which you share your story by answering the questions and uploading photos. Stories can be about living with, caring for, or loving someone affected by Turner syndrome. We may contact you about publishing your story if we have further requests for information. See examples of stories below.
- CREATE a fundraising page as an optional next step to bringing more awareness and support to Turner syndrome! On your page, be sure to share a bit of your story.
- SHARE your page with family, friends and community members, getting them involved in supporting the cause in your honor!
If you need any help setting up your personal story page, feel free to contact us for assistance:
Call: (800)594-4585
Email: info@tsfusa.org
Important note: The information you share via a My Story submission or fundraising page will be public information on the world wide web and may be posted to TSF’s website and/or social media. You should consider only entering information you are comfortable sharing publicly. Children must have the consent of their parents to post, and TSF assumes no responsibility in securing permissions, content, errors or omissions. TSF has the right to take down or edit any material that is deemed inaccurate, inappropriate or harmful.
Turner Syndrome Stories
Introducing Mike McDowell: TSF Board Member
One of the many struggles women with Turner syndrome and their families can face is a lack of understanding of the condition. This can include their own lack of understanding, or in more common cases, a lack of understanding by medical professionals, teachers, and the general public. Many get involved with the Turner Syndrome Foundation
Medical Gaps In The Treatment of Adult Women with Turner Syndrome
I am both a retired pediatric endocrinologist and a woman with Turner syndrome (TS). I have been a pediatric endocrinologist since 2000, and enjoy interacting with other girls and women with TS. My personal medical journey and pediatric endocrinology training have given me a unique perspective in the ongoing knowledge of Turner syndrome management. My
My Story: A Mother’s Journey With Turner Syndrome
A Diagnosis That Changed Everything During my pregnancy, I was considered high risk. My amniotic fluid levels were low, and my baby was measuring smaller than expected. The doctors suspected she might be born with a form of dwarfism. I was overwhelmed with fear, uncertainty, and a fierce desire to protect the tiny life inside
An International Perspective from Turner Syndrome Patients
Underscoring our commitment to serve and inform Turner syndrome patients wherever they are located, these are three patient stories and experiences from different geographic locations. These stories from Germany, the United Kingdom, and the United States represent that across the would, many experiences with TS are unique, while there are common threads that connect us
Introducing Marvin Prestridge: TSF Board Member
The Turner Syndrome Foundation is grateful to have the support of many amazing Board Members who are passionate about advancing the cause. We are excited to introduce the newest member of our Board: Marvin Prestridge IV, Trustee Corporate Partnerships! Marvin joins our Board with a personal connection to TS in hopes of bringing awareness to
My Story: Living, Learning, and Leading with Turner Syndrome
Getting Diagnosed with Turner Syndrome at 10 Years Old Before my diagnosis at 10 years old I had a fairly typical childhood (and still did even after diagnosis). Aside from frequent ear infections, curled toenails, being a bit colicky as a baby, and growing a little more slowly compared to other children around me my
