Growth hormone treatment is costly and consumers often have many questions about obtaining, affording and delivering growth hormone treatment to their child. This page provides the companies with indications for the treatment of Turner Syndrome in no specific order, and includes additional resource agencies who may provide financial reimbursement assistance. TSF is providing information and welcomes recommendations for other patient care resources.
There are a number of programs available to help make the medical costs of Turner Syndrome more affordable for patients. Many of these reimbursement assistance programs are readily available, and most patients affected by Turner Syndrome qualify.
If you or a loved one has trouble keeping up with healthcare costs, contact your local healthcare provider, or consult your physician find the right reimbursement assistance program for you. Below you will find a list of programs that offer financial reimbursement services, along with general information and their websites:
Connections for Growth is a reimbursement assistance program run by the pharmaceutical company that produces Saizen®, which contains somatropin; an injectable growth hormone treatment. Saizen®offers a variety of financial assistance initiatives for varying levels of eligibility. Including savings on out-of-pocket costs, and free medication coverage. For more information, follow the link: https://www.emdserono.com/us-en/expertise/endocrinology.html#anchor-2/, or call their hotline at 1-800-582-7989 to see how their assistance programs can help you.
Genentech offers a variety of co-pay and coverage plans for patients who need medication and reimbursement assistance. Genentech has a partnership with Nutropin, a pharmaceutical derived from somatropin that is injected subcutaneously for hormone development. For more information about Genentech, visit: https://www.genentech-access.com/patient.html, or call their hotline at 866-422-2377. To find more about Nutrophin, visit their patient access website at http://www.nutropin.com/nutropin-patient-access-support#, or call their nurse support hotline at 1-866-688-7674.
Lilly Cares is a Patient reimbursement assistant that allows patients to evaluate their eligibility for reimbursement and helps them find the appropriate program for their desired medication. Lilly Cares specializes in offering providers of Humatrope®for muscle and bone development treatment. For more information and to see if you qualify, visit their website at: http://www.lillycares.com/index.aspx, or call their hotline at 1-800-545-6962.
Genotropin is a growth hormone product manufactured by Pfizer, which offers a variety of programs for patients needing financial assistance. Pfizer allows patients to receive Genotropin therapy for free if they meet the eligibility requirements. Pfizer also offers several other patient support programs such as a copay card. For more information about their available prescription assistance plans, visit their website at https://www.pfizerrxpathways.com/, or call them and speak to a Medicine Access Counselor at 1-844-989-7284 to find a program that works best for you. Learn more about Genotropin at https://www.genotropin.com.
NordiCare is a comprehensive reimbursement service run by Novo Nordisk. They specialize in a variety of endocrinological disorders, including growth hormone problems found in Turner Syndrome. They offer Norditropin®, an injectable medication that is involved in bone and muscle development treatment. For more information about Nordicare and their prescription relief programs, visit their website at: https://www.novocare.com/psp/PAP.html, or call their hotline at 1-866-310-7549 to find out if you’re eligible for compensation.
NPAF allows patients with limited prescription coverage to receive Novartis medication for free. If eligible, Novartis offers Omnitrope®, an injectable medication involved in growth hormone treatment. For more information about Omnitrope®, and how you can enroll in the prescription services offered by NPAF, follow the link: https://www.pharma.us.novartis.com/our-products/patient-assistance/patient-assistance-foundation-enrollmentor call their hotline at 1-800-277-2254 to learn more information about the foundation and their enrollment process.
Sandoz provides financial reimbursement assistance for patients seeking to use Omnitrope as a primary medication. For more information about Omnitrope and the program, visit: http://www.omnitrope.com/omnitrope-hcp/coverage/our-coverage-commitment/, or call at 877-456-6794 for consultation and enrollment.
ZomAccess provides reimbursement assistance from a medication known as Zomacton, a somatropin based product created by Ferring Pharmaceuticals. There is currently a needle-free delivery system available for Zomacton, which serves as an alternative to the injected medication. For more information about Zomacton, and their financial support program, visit their website at: http://www.zomacton.com/savings-and-support/or call their hotline at 844-944-9646 for a personalized financial consultation.
The Partnership for Prescription Assistance allows qualifying patients to search for available drug coverage options. PPA works with some of the programs listed above, including Novartis, Lilly, and Pfizer. For more information about their program, visit them at: https://www.pparx.org/
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2022feb1:00 amfeb(feb 28)11:59 pmIt's February Awareness Month!Month Long Event (february)
February is Turner Syndrome Awareness Month, a special opportunity to take action! Every February our community comes together to post, share, talk, and educate. We challenge you to take action
February is Turner Syndrome Awareness Month, a special opportunity to take action! Every February our community comes together to post, share, talk, and educate. We challenge you to take action this February – then keep the momentum going all year long!
Month Long Event (february)
Fundraiser contest hosted by Doreen Sullivan. Raising $2000 -$1,000 of the proceeds will benefit TSF - $1,000 paid out to winners Setting up this football pool to have some fun, win some money (perhaps)
more
Fundraiser contest hosted by Doreen Sullivan.
Raising $2000
-$1,000 of the proceeds will benefit TSF
– $1,000 paid out to winners
Setting up this football pool to have some fun, win some money (perhaps) and support a good cause!
Select your boxes here. Donating $25 per box:
https://superbowlpoolsite.com/contest/462473
Doreen Squares Contest is an online squares contest created for free at Super Bowl Pool Site.
This contest was created by Doreen Sullivan. This fundraiser is a proceeds benefit hosted by an individual, and not by TSF. If you have any questions about this contest, please direct those questions via email to the commissioner at drs0908@aol.com
Rules: https://superbowlpoolsite.com/rules/462473
Month Long Event (january)
Month Long Event (january)
Card artists are invited to donate cards for the February Awareness Month annual card auction! World renowned artists, and enthusiasts, have joined together to support Lori Kobular's fundraiser for Turner
Card artists are invited to donate cards for the February Awareness Month annual card auction! World renowned artists, and enthusiasts, have joined together to support Lori Kobular’s fundraiser for Turner Syndrome Awareness. You can help Lori to reach her fundraising goals again this year. Lori is asking for your generous support to make this event a continued tremendous success. The cards will be awarded to the highest bidder!
The event is being organized by Lori Kobular on Instagram @mulchlady6 or email: lkobular@tsfusa.org.
1 (Wednesday) 9:00 am - 28 (Tuesday) 11:59 pm
2023thu09feb8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
Awareness Committee will meet the third Wednesday of each month to rally, brainstorm and plan for awareness outreach and impact. If you would like to be part of the committee,
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Awareness Committee will meet the third Wednesday of each month to rally, brainstorm and plan for awareness outreach and impact. If you would like to be part of the committee, please complete a volunteer application and let us know you wish to be part of the committee. If you have already submitted a volunteer application, email kholly@tsfusa.org to let her know that you would like to be part of the working committee. Link to Join: https://turnersyndromefoundation.org/volunteer_take_action/talent-application/
Why join this committee? 1- You can make a difference 2- You all meet some really great people 3- You will hone new skills & learn more about the mission. Gaining experience through doing is good for the mission and for you, too!
Thank you to everyone who is part of the awareness committee. We are so glad that you are here!
(Wednesday) 8:00 pm - 9:00 pm
2023thu16feb8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
2023thu23feb8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
Join in on a night of conversation, building connections, sharing stories and coloring together with friends! Socialize, have fun & introduce your pets to the Star Sisters community! What you'll need:
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Join in on a night of conversation, building connections, sharing stories and coloring together with friends! Socialize, have fun & introduce your pets to the Star Sisters community!
What you’ll need: Get comfy – relax in the comfort of home to meet & share with friends!
Being a Star Sisters is a way to connect with others in the Turner syndrome community to share honest experiences and form a sisterhood of positivity. This is an opportunity to raise awareness while receiving support. All meet-ups and events occur online – so anyone personally affected by TS, almost anywhere can participate!
Star Sister’s enjoy these benefits offered freely to all who join.
If you are new to TSF and wish to join Star Sisters, sign up here: https://turnersyndromefoundation.org/living/star-sisters/star-sisters-application/
(Friday) 8:00 pm - 9:00 pm
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