There are common frequently asked questions that you may have about the process of transitioning a child to adult care. These questions and answers are meant to be used as general information to help you learn more about the process of transitioning care.
As girls with TS become older, doctor visits may become less frequent but not any less important. Without a good transition into adult care, girls do not follow up or get any age-appropriate screenings which leads to less than optimal health outcomes in the future. The process of transitioning care is an ideal time to promote independent self-care knowledge and behaviors that will create better lifestyle habits going into adulthood.
The transition to adult care should happen at the completion of puberty, around 18 years of age. The process of transition may take 2-3 years and the age of completing puberty may be different for some. To find out more about transition, click here https://turnersyndromefoundation.org/turner-syndrome-across-the-lifespan/transition/
Ultimately, your daughter won’t learn how to become more independent unless she observes and practices on her own. You may be used to scheduling appointments, doing all the talking at appointments, keeping track of medication, etc. but as your daughter gets older you must take a step back and let her begin to have the freedom to do such things. A young adult won’t become completely knowledgeable and independent as soon as she turns 18; like many other things it is a process. For the best possible outcomes, work collaboratively with your child and your health care provider during the process of transition.
Pediatric care is family-focused. Most of the time, one or both parents will come to the visit, parents do the talking and listening, and parents explain to their child what the doctor said during the appointment. Parents also arrange any follow-up appointments, obtain any medication, handle insurance, and more. In adult care settings, no one usually goes with the individual, they are seen alone. They must make appointments themselves, show necessary documentation at the time of appointment, participate in the appointment by listening and asking questions by themselves, make decisions about treatment by themselves, and much more. This can become a problem for those who do not get any practice trying to be more independent before they must do so own their own.
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2023thu23mar8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
2023thu30mar8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
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