Cardiovascular health is an important topic for the TS community as several concerns are more common in TS than in the general population. In this webinar, Dr. Prakash provides an overview of these concerns and the care guidelines to ensure early detection. After reviewing congenital heart and blood vessel problems that are more common in […]
Learn about prenatal screening and diagnostic testing, impact on prenatal care, and resources for expectant parents.
This session will review different types of hearing loss and causes of hearing loss. It will also provide possible services and resources available. Lastly, it will identify reasonable accommodations that are needed in the home, school, or workplace. Join an experienced educator and clinician from Winston-Salem State University for an informative and practical session focused […]
Join the Legislative Advocacy Information Session Thank you for being part of the Turner Syndrome community. As our efforts continue to grow, we are expanding opportunities for community members to get involved in meaningful, mission-driven advocacy. Whether you are an experienced advocate or just beginning to explore how you can make a difference, we […]
Join independent filmmaker Brooke Gonsalves for an exclusive behind-the-scenes look at Like A Butterfly, her deeply personal and thought-provoking film. In this WE Learn webinar, Brooke shares the inspiration behind the story, why Turner Syndrome stories must be told, and how film can be a powerful tool for awareness, advocacy, and connection. Discover how storytelling […]
We’re truly grateful for this new collaboration with the National Lymphedema Network and for the opportunity to share trusted resources on Turner syndrome and lymphedema with our community. Turner syndrome and lymphedema are typically related to a genetic lymphatic response. Topics of particular interest to our audience include: How lymphedema may present in infant patients with Turner syndrome […]
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