Study for Patient and Caregiver Perspectives of Genetics Care
https://form.jotform.com/jsform/260985603229160
Free
17 events found.
Events
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Send a Greeting Card
OnlineGreeting cards. A handwritten note. A keepsake. A thoughtful gesture. Card designers have donated their original art to support TS. Cards are $5.00 100% of the proceeds support Turner syndrome. Don't buy a card from a box store. Give an orginal and make it be a gift of support! Buy one or many. Stock up […]
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Film & Advocacy Opportunity: A Family Planning Survey
Onlinehttps://form.jotform.com/jsform/261775708718167
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Research Opportunity: Positive Prenatal Screening for Turner Syndrome
Onlinehttps://form.jotform.com/jsform/261825198793169
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Group Coaching for Women with Turner Syndrome
OnlineThis is not therapy, but a structured coaching program focused on turning goals into consistent action. Supporting the Turner Syndrome Foundation Enrollment in this special Turner syndrome cohort also creates a meaningful opportunity to support the Turner Syndrome Foundation. A portion of the service fee may be donated to TSF at the client's discretion. https://form.jotform.com/jsform/261816097341156
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Facebook Chat: Growth Experiences
OnlineGrowth Experiences July 15: 8-9pm Join us for a live conversation on Facebook to discuss experiences with growth in individuals with Turner syndrome. To participate, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences […]
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Summer Social at Liberty Lake, Bordentown, NJ
Liberty Lake Picnic 1195 Florence Columbus Rd, Bordentown, NJ, United StatesSummer Fun with Friends! A Day of Connection, Nature, and Community Join the Turner Syndrome Foundation for a meaningful one-day retreat designed for girls, women, and families living with Turner syndrome. Set in a peaceful, nature-based environment, this experience offers something rare and powerful: the opportunity to connect with others who truly understand the journey. […]
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Webinar – Growth Charts for Children with Turner Syndrome in MyChart
OnlineGrowth Charts for Children with Turner Syndrome in MyChart Join us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos, a large-scale dataset created through collaboration among leading […]
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Star Sisters Monthly Meet Up Event
OnlineStar Sisters Monthly Meet-Up Event Be a Star Sister - Meet Others - Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join today […]
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Education Working Group
OnlineThe education working group will meet the first Monday of each month. The group is comprised of educators, administrators, and allied health professionals. https://form.jotform.com/jsform/240147016103137
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TSF Campus Club Launch
OnlineThe Turner Syndrome Foundation Campus Club Initiative empowers college students to lead awareness, advocacy, and education efforts for Turner syndrome—an often underrecognized and underserved condition. Despite affecting approximately 1 in 2,000 females, Turner syndrome remains widely underdiagnosed, and many individuals lack access to resources and support. Campus clubs help bridge this gap by increasing awareness […]
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Legislative Advocacy Meeting
OnlineLegislative Advocacy Working Group The Turner Syndrome Foundation's Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy, education, and community engagement, members help ensure that the voices of patients, families, caregivers, and healthcare professionals are […]
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Turner Syndrome in the Classroom: Educator Insights and Academic Accommodations
OnlineMonday, August 10, 2026 | 8:00 PM ET Complimentary Live Webinar Every student deserves an educational environment where they are understood, supported, and empowered to succeed. Join the Turner Syndrome Foundation's Educating the Educator Initiative for an informative webinar designed to help educators, school psychologists, counselors, administrators, therapists, and families better understand the educational implications […]
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BlueClaws vs Wilmington Blue Rocks
Jersey Shore BlueClaws 2 Stadium Way, Lakewood, NJ, United StatesTurner Syndrome Community Event 8/28 7:05 PM – Jersey Shore BlueClaws VS Greenville Drive at ShoreTown Ballpark Lakewood, NJ 08701 Baseball and Turner Syndrome... As good as it gets! Join us at the BlueClaws Baseball Game on August 28th for the 2nd Turner Syndrome Foundation community event. The game starts at 7:05 pm. Tickets are […]
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FXT Golf Outing
Thunder Hills Country Club 16682 Thunder Hills Dr, Peosta, IA, United StatesJoin the Arensdorf family for the 1st Annual FXT Golf Outing benefiting the Fragile X Foundation and the Turner Syndrome Foundation. Enjoy an 18-hole shotgun start, followed by a meal, while supporting research, education, advocacy, and family support programs for individuals affected by Fragile X syndrome and Turner syndrome. https://form.jotform.com/jsform/261825891521158
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NVLD and Navigating Emerging Adulthood
OnlineWE LEARN Webinar NVLD and navigating Emerging Adulthood Hosted by Turner Syndrome Foundation, Inc. Date: Thursday, October 8 Time: 8:00 PM EDT Format: Live Stream About This Event Join us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive […]
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TS Women in Medicine
This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger, BS, MHS, PA-C and Mary Gwyn Roper, MD, both active volunteers, leaders and professional members of the Foundation. The objective of this event is to […]
