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  • Legislative Advocacy Meeting

    Legislative Advocacy Meeting
    Online

    Legislative Advocacy Working Group The Turner Syndrome Foundation's Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy, education, and community engagement, members help ensure that the voices of patients, families, caregivers, and healthcare professionals are […]

  • Group Coaching for Women with Turner Syndrome

    Online

    This is not therapy, but a structured coaching program focused on turning goals into consistent action. Supporting the Turner Syndrome Foundation Enrollment in this special Turner syndrome cohort also creates a meaningful opportunity to support the Turner Syndrome Foundation. A portion of the service fee may be donated to TSF at the client's discretion. https://form.jotform.com/jsform/261816097341156

    $6000

  • Facebook Chat: Growth Experiences

    Online

    Growth Experiences July 15: 8-9pm Join us for a live conversation on Facebook to discuss experiences with growth in individuals with Turner syndrome. To participate, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences […]

  • Webinar – Growth Charts for Children with Turner Syndrome in MyChart

    Online

    Growth Charts for Children with Turner Syndrome in MyChart Join us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos, a large-scale dataset created through collaboration among leading […]

    Free

  • TSF Campus Club Launch

    Online

    The Turner Syndrome Foundation Campus Club Initiative empowers college students to lead awareness, advocacy, and education efforts for Turner syndrome—an often underrecognized and underserved condition. Despite affecting approximately 1 in 2,000 females, Turner syndrome remains widely underdiagnosed, and many individuals lack access to resources and support. Campus clubs help bridge this gap by increasing awareness […]

  • Turner Syndrome in the Classroom: Educator Insights and Academic Accommodations

    Online

    Monday, August 10, 2026 | 8:00 PM ET Complimentary Live Webinar Every student deserves an educational environment where they are understood, supported, and empowered to succeed. Join the Turner Syndrome Foundation's Educating the Educator Initiative for an informative webinar designed to help educators, school psychologists, counselors, administrators, therapists, and families better understand the educational implications […]

  • Summer Social at Liberty Lake, Bordentown, NJ

    Liberty Lake Picnic 1195 Florence Columbus Rd, Bordentown, NJ, United States

    Summer Fun with Friends! A Day of Connection, Nature, and Community Join the Turner Syndrome Foundation for a meaningful one-day retreat designed for girls, women, and families living with Turner syndrome. Set in a peaceful, nature-based environment, this experience offers something rare and powerful: the opportunity to connect with others who truly understand the journey. […]

  • BlueClaws Cover Photo

    BlueClaws vs Wilmington Blue Rocks

    Jersey Shore BlueClaws 2 Stadium Way, Lakewood, NJ, United States

    Turner Syndrome Community Event 8/28 7:05 PM – Jersey Shore BlueClaws VS Greenville Drive at ShoreTown Ballpark Lakewood, NJ 08701 Baseball and Turner Syndrome... As good as it gets! Join us at the BlueClaws Baseball Game on August 28th for the 2nd Turner Syndrome Foundation community event. The game starts at 7:05 pm. Tickets are […]

  • FXT Golf Outing

    Thunder Hills Country Club 16682 Thunder Hills Dr, Peosta, IA, United States

    Join the Arensdorf family for the 1st Annual FXT Golf Outing benefiting the Fragile X Foundation and the Turner Syndrome Foundation. Enjoy an 18-hole shotgun start, followed by a meal, while supporting research, education, advocacy, and family support programs for individuals affected by Fragile X syndrome and Turner syndrome. https://form.jotform.com/jsform/261825891521158

    $70

  • NVLD and Navigating Emerging Adulthood

    Online

    WE LEARN Webinar NVLD and navigating Emerging Adulthood Hosted by Turner Syndrome Foundation, Inc. Date: Thursday, October 8 Time: 8:00 PM EDT Format: Live Stream   About This Event Join us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive […]

    Free