Study for Patient and Caregiver Perspectives of Genetics Care
https://form.jotform.com/jsform/260985603229160
https://form.jotform.com/jsform/260985603229160
Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. Card designers have donated their original art to support TS. Cards are $5.00 100% of the proceeds support Turner syndrome. Don't buy a card from a box store. Give an orginal and make it be a gift of support! Buy one or many. Stock up […]
Send a Card and Spread Kindness The Turner Syndrome Kindness Campaign is dedicated to bringing back the joy and personal connection of handwritten mail. We are bringing back the joy of receiving a card. You can lift someone with a kind note to show that you care. Send a beautifully handmade card with a custom […]
https://form.jotform.com/jsform/261775708718167
https://form.jotform.com/jsform/261825198793169
This is not therapy, but a structured coaching program focused on turning goals into consistent action. Supporting the Turner Syndrome Foundation Enrollment in this special Turner syndrome cohort also creates a meaningful opportunity to support the Turner Syndrome Foundation. A portion of the service fee may be donated to TSF at the client's discretion. https://form.jotform.com/jsform/261816097341156
Star Sisters Monthly Meet-Up Event Be a Star Sister - Meet Others - Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join today […]
The education working group will meet the first Monday of each month. The group is comprised of educators, administrators, and allied health professionals. https://form.jotform.com/jsform/240147016103137
The Turner Syndrome Foundation Campus Club Initiative empowers college students to lead awareness, advocacy, and education efforts for Turner syndrome—an often underrecognized and underserved condition. Despite affecting approximately 1 in 2,000 females, Turner syndrome remains widely underdiagnosed, and many individuals lack access to resources and support. Campus clubs help bridge this gap by increasing awareness […]
Legislative Advocacy Working Group The Turner Syndrome Foundation's Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy, education, and community engagement, members help ensure that the voices of patients, families, caregivers, and healthcare professionals are […]
Monday, August 10, 2026 | 8:00 PM ET Complimentary Live Webinar Every student deserves an educational environment where they are understood, supported, and empowered to succeed. Join the Turner Syndrome Foundation's Educating the Educator Initiative for an informative webinar designed to help educators, school psychologists, counselors, administrators, therapists, and families better understand the educational implications […]
Summer Fun with Friends! A Day of Connection, Nature, and Community Join the Turner Syndrome Foundation for a meaningful one-day retreat designed for girls, women, and families living with Turner syndrome. Set in a peaceful, nature-based environment, this experience offers something rare and powerful: the opportunity to connect with others who truly understand the journey. […]
Turner Syndrome Community Event 8/28 7:05 PM – Jersey Shore BlueClaws VS Greenville Drive at ShoreTown Ballpark Lakewood, NJ 08701 Baseball and Turner Syndrome... As good as it gets! Join us at the BlueClaws Baseball Game on August 28th for the 2nd Turner Syndrome Foundation community event. The game starts at 7:05 pm. Tickets are […]
Join the Arensdorf family for the 1st Annual FXT Golf Outing benefiting the Fragile X Foundation and the Turner Syndrome Foundation. Enjoy an 18-hole shotgun start, followed by a meal, while supporting research, education, advocacy, and family support programs for individuals affected by Fragile X syndrome and Turner syndrome. https://form.jotform.com/jsform/261825891521158
WE LEARN Webinar NVLD and navigating Emerging Adulthood Hosted by Turner Syndrome Foundation, Inc. Date: Thursday, October 8 Time: 8:00 PM EDT Format: Live Stream About This Event Join us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive […]
This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger, BS, MHS, PA-C and Mary Gwyn Roper, MD, both active volunteers, leaders and professional members of the Foundation. The objective of this event is to […]