Study for Patient and Caregiver Perspectives of Genetics Care
https://form.jotform.com/jsform/260985603229160
https://form.jotform.com/jsform/260985603229160
Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. Card designers have donated their original art to support TS. Cards are $5.00 100% of the proceeds support Turner syndrome. Don't buy a card from a box store. Give an orginal and make it be a gift of support! Buy one or many. Stock up […]
Bloom Spring Auction Benefiting the Turner Syndrome Foundation Welcome to the Bloom Spring Auction, where generosity blooms into impact. Every bid you place directly supports the Turner Syndrome Foundation’s mission to advance research, education, advocacy, and care for individuals affected by Turner syndrome. This is more than an auction—it’s an opportunity to create meaningful change. […]
Facebook Chat: Occupational Therapy Experiences May 13th, 8 PM ET Join us for a live conversation on Facebook to discuss the role of occupational therapy for individuals with Turner syndrome. To participate, just visit the Turner Syndrome Foundation's Facebook page at the scheduled time and respond to the question posted on our timeline every 10 […]
The Role of Occupational Therapy for Turner Syndrome Occupational Therapy is a keen intervention for patients with Turner syndrome. This webinar will include an overview of the definition and scope of practice of occupational therapy, including how occupational therapy helps people perform important daily life activities. The webinar will also discuss the various challenges associated […]
Free Virtual Event Join TSF for a peer-to-peer panel discussion designed for expectant parents and families navigating a prenatal diagnosis of Turner syndrome. In this conversation, three mothers of girls with Turner syndrome will share their personal experiences receiving their daughters’ diagnoses during pregnancy. Panelists will discuss the emotions and uncertainty that can come with […]
Star Sisters Monthly Meet-Up Event Be a Star Sister - Meet Others - Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join today […]
Bringing Back Snail Mail The Turner Syndrome Kindness Campaign is dedicated to bringing back the joy and personal connection of handwritten mail. With just a $5 donation, you will have the opportunity to send a beautifully handmade card with a custom message that we will handwrite and mail to someone living with Turner syndrome. […]
The education working group will meet the first Monday of each month. The group is comprised of educators, administrators, and allied health professionals. https://form.jotform.com/jsform/240147016103137
Peter and Lydia Fairbanks invite you to support the Turner Syndrome Foundation TS Community Day on June 6, 2026 Miami Marlins vs. Tampa Rays game in Miami, FL Grab Bag Fundraiser Order Tickets Order Strikeouts for Ellis Merchandise Your support brings hope to many. Thank you for your donation. ORDER STRIKEOUTS FOR ELLIS […]
The Jersey Shore BlueClaws are scheduled to play a home game against the Greenville Drive, A Red Sox affiliate, at ShoreTown Ballpark in Lakewood, NJ. The BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want […]
This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger, BS, MHS, PA-C and Mary Gwyn Roper, MD, both active volunteers, leaders and professional members of the Foundation. The objective of this event is to […]
Summer Fun with Friends! A Day of Connection, Nature, and Community Join the Turner Syndrome Foundation for a meaningful one-day retreat designed for girls, women, and families living with Turner syndrome. Set in a peaceful, nature-based environment, this experience offers something rare and powerful: the opportunity to connect with others who truly understand the journey. […]
Growth Charts for Children with Turner Syndrome in MyChart Join us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos, a large-scale dataset created through collaboration among leading […]
Save the date.... more to follow!
WE LEARN Webinar NVLD and navigating Emerging Adulthood Hosted by Turner Syndrome Foundation, Inc. Date: Thursday, October 8 Time: 8:00 PM EDT Format: Live Stream About This Event Join us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive functioning […]