Study for Patient and Caregiver Perspectives of Genetics Care
https://form.jotform.com/jsform/260985603229160
Free
20 events found.
Events
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Send a Greeting Card
OnlineGreeting cards. A handwritten note. A keepsake. A thoughtful gesture. Card designers have donated their original art to support TS. Cards are $5.00 100% of the proceeds support Turner syndrome. Don't buy a card from a box store. Give an orginal and make it be a gift of support! Buy one or many. Stock up […]
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Spring Auction 2026
FeaturedOnlineBloom Spring Auction Benefiting the Turner Syndrome Foundation Welcome to the Bloom Spring Auction, where generosity blooms into impact. Every bid you place directly supports the Turner Syndrome Foundation’s mission to advance research, education, advocacy, and care for individuals affected by Turner syndrome. This is more than an auction—it’s an opportunity to create meaningful change. […]
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Freddy’s for TSF
2136 ROUTE 35 SOUTH, HOLMDEL, NJ 07733 2136 Route 35 South, Holmdel, NJ, United StatesJoin Freddy's as they support Turner Syndrome May 4, 2026 11am - 9pm 2136 Route 35 South, Holmdel, NJ, 07733 How To Participate: In-Store Show flyer or say "I'm here for the fundraiser" at checkout Online/Mobile Use Promo Code: GIVEBACK Freddy's is proud to contribute 15% of event sales
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Education Working Group
OnlineThe education working group will meet the first Monday of each month. The group is comprised of educators, administrators, and allied health professionals. https://form.jotform.com/jsform/240147016103137
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Understanding Lymphedema Webinar
OnlineWe’re truly grateful for this new collaboration with the National Lymphedema Network and for the opportunity to share trusted resources on Turner syndrome and lymphedema with our community. Turner syndrome and lymphedema are typically related to a genetic lymphatic response. Topics of particular interest to our audience include: How lymphedema may present in infant patients with Turner syndrome […]
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Facebook Chat: Occupational Therapy Experiences
OnlineFacebook Chat: Occupational Therapy Experiences May 13th, 8 PM ET Join us for a live conversation on Facebook to discuss the role of occupational therapy for individuals with Turner syndrome. To participate, just visit the Turner Syndrome Foundation's Facebook page at the scheduled time and respond to the question posted on our timeline every 10 […]
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Webinar – The Role of Occupational Therapy for Turner Syndrome
OnlineThe Role of Occupational Therapy for Turner Syndrome Occupational Therapy is a keen intervention for patients with Turner syndrome. This webinar will include an overview of the definition and scope of practice of occupational therapy, including how occupational therapy helps people perform important daily life activities. The webinar will also discuss the various challenges associated […]
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Turner Syndrome Expectant Parent Panel
OnlineFree Virtual Event Join TSF for a peer-to-peer panel discussion designed for expectant parents and families navigating a prenatal diagnosis of Turner syndrome. In this conversation, three mothers of girls with Turner syndrome will share their personal experiences receiving their daughters’ diagnoses during pregnancy. Panelists will discuss the emotions and uncertainty that can come with […]
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Star Sisters Monthly Meet Up Event
OnlineStar Sisters Monthly Meet-Up Event Be a Star Sister - Meet Others - Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join today […]
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Turner Syndrome Kindness Campaign
OnlineSend a Card and Spread Kindness The Turner Syndrome Kindness Campaign is dedicated to bringing back the joy and personal connection of handwritten mail. We are bringing back the joy of receiving a card. You can lift someone with a kind note to show that you care. Send a beautifully handmade card with a custom […]
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MLB Miami Marlins vs Tampa Rays Baseball Game ‘Strikeouts for Ellis’
Tampa Bay Rays, Tropicana Field St. Petersburg, FL, United StatesPeter and Lydia Fairbanks invite you to support the Turner Syndrome Foundation TS Community Day on June 6, 2026 Miami Marlins vs. Tampa Rays game in Miami, FL Grab Bag Fundraiser Order Tickets Order Strikeouts for Ellis Merchandise Your support brings hope to many. Thank you for your donation. ORDER STRIKEOUTS FOR ELLIS […]
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Jersey Shore BlueClaws X TSF
Jersey Shore BlueClaws 2 Stadium Way, Lakewood, NJ, United StatesThe Jersey Shore BlueClaws are scheduled to play a home game against the Greenville Drive, A Red Sox affiliate, at ShoreTown Ballpark in Lakewood, NJ. The BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want […]
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Film & Advocacy Opportunity: A Family Planning Survey
Onlinehttps://form.jotform.com/jsform/261775708718167
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Research Opportunity: Positive Prenatal Screening for Turner Syndrome
Onlinehttps://form.jotform.com/jsform/261825198793169
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Legislative Advocacy Meeting
OnlineLegislative Advocacy Working Group The Turner Syndrome Foundation's Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy, education, and community engagement, members help ensure that the voices of patients, families, caregivers, and healthcare professionals are […]
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Group Coaching for Women with Turner Syndrome
OnlineThis is not therapy, but a structured coaching program focused on turning goals into consistent action. Supporting the Turner Syndrome Foundation Enrollment in this special Turner syndrome cohort also creates a meaningful opportunity to support the Turner Syndrome Foundation. A portion of the service fee may be donated to TSF at the client's discretion. https://form.jotform.com/jsform/261816097341156
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TS Women in Medicine
This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger, BS, MHS, PA-C and Mary Gwyn Roper, MD, both active volunteers, leaders and professional members of the Foundation. The objective of this event is to […]
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Facebook Chat: Growth Experiences
OnlineGrowth Experiences July 15: 8-9pm Join us for a live conversation on Facebook to discuss experiences with growth in individuals with Turner syndrome. To participate, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences […]
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Webinar – Growth Charts for Children with Turner Syndrome in MyChart
OnlineGrowth Charts for Children with Turner Syndrome in MyChart Join us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos, a large-scale dataset created through collaboration among leading […]
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