Free Virtual Event Join TSF for a peer-to-peer panel discussion designed for expectant parents and families navigating a prenatal diagnosis of Turner syndrome. In this conversation, three mothers of girls with Turner syndrome will share their personal experiences receiving their daughters’ diagnoses during pregnancy. Panelists will discuss the emotions and uncertainty that can come with […]
Peter and Lydia Fairbanks invite you to support the Turner Syndrome Foundation TS Community Day on June 6, 2026 Miami Marlins vs. Tampa Rays game in Miami, FL Grab Bag Fundraiser Order Tickets Order Strikeouts for Ellis Merchandise Your support brings hope to many. Thank you for your donation. ORDER STRIKEOUTS FOR ELLIS […]
The Jersey Shore BlueClaws are scheduled to play a home game against the Greenville Drive, A Red Sox affiliate, at ShoreTown Ballpark in Lakewood, NJ. The BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want […]
https://form.jotform.com/jsform/261775708718167
Growth Experiences July 15: 8-9pm Join us for a live conversation on Facebook to discuss experiences with growth in individuals with Turner syndrome. To participate, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences […]
Growth Charts for Children with Turner Syndrome in MyChart Join us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos, a large-scale dataset created through collaboration among leading […]
Monday, August 10, 2026 | 8:00 PM ET Complimentary Live Webinar Every student deserves an educational environment where they are understood, supported, and empowered to succeed. Join the Turner Syndrome Foundation's Educating the Educator Initiative for an informative webinar designed to help educators, school psychologists, counselors, administrators, therapists, and families better understand the educational implications […]
Summer Fun with Friends! A Day of Connection, Nature, and Community Join the Turner Syndrome Foundation for a meaningful one-day retreat designed for girls, women, and families living with Turner syndrome. Set in a peaceful, nature-based environment, this experience offers something rare and powerful: the opportunity to connect with others who truly understand the journey. […]
Join us for a live conversation on Facebook to discuss the Campus Life, Aug 27, 8pm ET. To participate, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences and engage with others in the […]
Turner Syndrome Community Event 8/28 7:05 PM – Jersey Shore BlueClaws VS Wilmington Blue Rocks at ShoreTown Ballpark Lakewood, NJ 08701 Baseball and Turner Syndrome... As good as it gets! Join us at the BlueClaws Baseball Game on August 28th for the 2nd Turner Syndrome Foundation community event. The game starts at 7:05 pm. Tickets […]
Join the Arensdorf family for the 1st Annual Golf Outing Fundraiser benefiting the Fragile X Foundation and the Turner Syndrome Foundation. The event will feature an 18-hole shotgun start at 8:00 AM with a meal to follow. Registration will begin at 7am. All proceeds from the outing will be distributed between the two foundations, supporting their […]
Make an Impact Through Your Donor-Advised Fund A Donor-Advised Fund (DAF) offers a simple, flexible, and tax-efficient way to support the Turner Syndrome Foundation and help improve the lives of girls and women affected by Turner syndrome. By recommending a grant to the Turner Syndrome Foundation (TSF) through your DAF, you help advance our mission […]
WE LEARN Webinar NVLD and navigating Emerging Adulthood Hosted by Turner Syndrome Foundation, Inc. Date: Thursday, October 8 Time: 8:00 PM EDT Format: Live Stream About This Event Join us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive […]
This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger, BS, MHS, PA-C and Mary Gwyn Roper, MD, both active volunteers, leaders and professional members of the Foundation. The objective of this event is to […]
Introducing NASCARR: A new partnership connecting researchers, families, TSF, and the NIH to advance research for X&Y Chromosome Variations Join us for an informative webinar introducing NASCARR and its potential to advance research and clinical trial readiness for Turner syndrome. With a combined 40+ years of experience in medicine and clinical research, including the […]
Legislative Advocacy Working Group The Turner Syndrome Foundation's Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy, education, and community engagement, members help ensure that the voices of patients, families, caregivers, and healthcare professionals are […]
The education working group will meet the first Monday of each month. The group is comprised of educators, administrators, and allied health professionals. https://form.jotform.com/jsform/240147016103137
Campus Club Ambassador Office Hours Ready to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. Whether you're just getting started or preparing for your first event, these office hours provide an opportunity to ask […]
Campus Club Ambassador Office Hours Ready to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. Whether you're just getting started or preparing for your first event, these office hours provide an opportunity to ask […]
Star Sisters Monthly Meet-Up Event Be a Star Sister - Meet Others - Get Involved! Sign Up Now A virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls, women, and their parents or guardians. Learn from experts, people with experience, life coaches & learn from one another! Join today […]
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